RE: I have CML.. ATTN SHY (sorry)

[Guest guest]

Hey, Welcome to the group. (but Sorry your here)

I know you are getting great information from these people on this site that

have walked in your shoes. This diagnosis kind of whacks you upside your head

and turns your life upside down. At least in the beginning. Please

understand that once the dusts settles, you will be living, some what, of the

same

life as before, minus a few side effects depending on your individual effects.

I was 33 last year and the mother of 3 small children when I was diagnosed.

This was life changing for us. Everyone has to go through some sort of

griefing process as you learn all you can about your situation.

I too had the elevated white blood count and an enlarged spleen. I went in

with ankle pain and came out with CML. Go figure!

I was told I had 3-5 years to live. I fired that doctor and found a doctor

who specialized in Leukemia. I too took hydrea and am now on Gleevec 600 mg

daily, ($4700 monthly) soon to go to 800 mg, just waiting my most recent PCR

results.

If I can tell you the most important things I have found, educate yourself,

find a top Leukemia doctor and most of all keep your faith, hope and a POSITIVE

attitude!

This will most likely be a chronic condition like diabetes for you, instead

of a fatal disease.

Better days ahead-

Las Vegas

34, wife and mom to 3 (10, 7,5)

CML 5/13/05

Gleevec 600mg daily

[Guest guest]

My partner passed away on Monday. Please remove his e-mail form your

list.

I wish you all the best.

Rolf Mueller

[Guest guest]

So sorry Rolf. Big hugs to you and your family.

:{

RE: [ ] I have CML.. ATTN SHY (sorry)

My partner passed away on Monday. Please remove his e-mail form your

list.

I wish you all the best.

Rolf Mueller