Guest guest Posted August 30, 2006 Report Share Posted August 30, 2006 Hi All, after a long absence, is probably right that Gleevec (IM) would be the best drug if this is Ph+ CML, but CML in a child this young is often quite a different disease than in older people and management choices may be more different than I know. The risks and benefits of transplant are also very different - and highly favorable for children vs. adults: they usually tolerate the procedure better and the mortality is much lower (50% mortality is much higher than most centers experience on average, though many factors play into the risk). My best to everyone, R > I don't know a lot Jamal but I would be very concerned with your daughter's > care. Your daughter should be on gleevec or a similar medication and at her > age I don't know that a BMT would be a great idea. It is a scary process for > a adult with about a 50% survival rate from what I understand. Gleevec is a > medication that people with CML take once daily which keeps our WBC low and > keeps the leukemia for most from returning. There are side effects for many > people but it keeps you alive. It is a drug that you are on forever but it > circumvents a BMT. Please seek a second opinion if you can. > Hang in there, best of luck!!! > :{ > Quote Link to comment Share on other sites More sharing options...
Recommended Posts
Join the conversation
You are posting as a guest. If you have an account, sign in now to post with your account.
Note: Your post will require moderator approval before it will be visible.