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Re: Digest Number 545

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Hi Kay,

With psych symptoms that bad, I wouldn't take any chances. I would

decrease her dose of antibiotics, possibly even stop them for a day or

so, and see what happens. Yes, it's good if it's herxing, but sometimes

herxes become too much to handle and we have to back off abx for a day

or so.

The stress over losing a favorite teacher may not ordinarily bring about

such a reaction, but being in a weakened state because of Lyme, as we

all know, can make some things seem worse than they really are.

And there was someone on the List who, when she began IV abx, had a

really bad time with psych symptoms. I don't remember for sure, so I

don't want to mention a name in error.

In my humble opinion - we do NOT have to be " super lymie " during all of

our herxes - sometimes they really do become too intense and we need to

take a short break. Trust me - we will herx again.

In fact, many of us pulse our abx just for that reason.

Good luck Kay and I hope I've been of some help. I know how horrible

it is to watch our children go through so much pain and suffering.

Take care and know that we're here for you.

Hugs,

Patty

> Date: Mon, 9 Aug 1999 00:26:02 -0700

> From: " Kay " <b10g7@...>

> Subject: has anyone had a herx of their psychiatric symptoms.

>

> anyone?

>

> meredith is suicidal. she is having stress, her teacher is leaving

> at the end of this week.

>

> we don't know if this is herx, which is good, or stress enabling the

> spirochetes.

>

> kay

--

Sometimes on our way to our dreams we get lost -

and find something even better.

Home Page: http://www.olg.com/pattymcd

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Kay,

I didn't realize Meredith is so young.. For some reason, I was under the

impression she was fifteen years old. Oh, poor kid.. That makes it even

harder. It always helps to talk with other kids who have same disorders.. Can

she talk? If so, perhaps she could use VRT the whole time so there is no need

to read. Hmm, I don't know if VRT includes computer reading aloud the texts,

too. If not, then there is some programs the blind people use.. I don't know

if it s prohibitively expensive or not. I don't even know if it is practical

in your situation.

It may be prudent to take her off the abx if the herx is causing this severe

reaction. But it could also be a symptom of lyme disease itself.. Sometimes

it is not easy to distinguish between an herx reaction and a lyme symptom. Is

she taking meds for her depression?

I hope you will find online support for parents with kids who have lyme.They

react differently to meds than adults because their metabolism are much

higher, they are still growing, and they are much smaller than us.

good luck and hugs,

elizabeth

In a message dated 99-08-09 12:46:19 EDT, you write:

<<

>>>Being a teenager is tough enough without dealing with lyme disease. I

hope she will feel less suicidal. Does she know other teenagers with lyme

online that she can talk with?<<<

hi elizabeth,

meredith just turned 10 last month. she can barely write and can not

type.(due to cns, neurological damage) she just started reading again (at

about 1st grade level) a few weeks ago.

thanks for you support,

kay

>>

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>>>Being a teenager is tough enough without dealing with lyme disease. I

hope she will feel less suicidal. Does she know other teenagers with lyme

online that she can talk with?<<<

hi elizabeth,

meredith just turned 10 last month. she can barely write and can not

type.(due to cns, neurological damage) she just started reading again (at

about 1st grade level) a few weeks ago.

thanks for you support,

kay

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  • 1 year later...

In a message dated 1/27/01 10:57:00 AM Pacific Standard Time,

bodyforlife writes:

<< Healthy,

athletic, lean but very feminine. Again, that's just MY preference.....I

know others who love the vascular look of very low bodyfat.

Sara

>>

Sara, dont think I'm weird but I've printed out your before and after photos

along with a few selected others with before pics similar to mine and use

them for inspiration. You are at my goal. What a wonderful 40th birthday

gift to yourself. I should only hope to still be in that shape at 40 (I'll

be 33 this year so not so far off).

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In a message dated 1/27/01 10:57:00 AM Pacific Standard Time,

bodyforlife writes:

<< By the way I managed to go from a size 18 to a size

12 so far.......and that was with taking full advantage of the FREE DAY. >>

Do you have any pictures posted so far or are you waiting until the end of

your 12 weeks?

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In a message dated 1/27/01 10:57:00 AM Pacific Standard Time,

bodyforlife writes:

<< I feel certain it's not in the single

digits like the fitness competitors I see in magazines. Or, do you think it

is? >>

Personally I dont think any woman not competing in body building or running

marathons and such on a competitive, ongoing basis can sustain single digit

bodyfat. I'm sure their are exceptions (those with genetic anomalies) but low

to mid teens I think is absolutely ideal.

Has anyone noticed since starting this how out of shape " regular " thin models

look? I mean those not in fitness related magazines. They are thin with no

muscle tone at all. No fat but no muscle either. They are probably all dead

on their feet from lack of food and diet pills.

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In a message dated 1/27/01 10:57:00 AM Pacific Standard Time,

bodyforlife writes:

<< That is what made my first challenge so do-able for me. I

was never more than 6 days away from a big bag of M & M's, cheese dip and

chips and lots more junk food. >>

Wow, you really ate all that and still got your great results? Now I really

feel I can do this! Tell me Sara, did you also use all the supplements

during your first Challenge? Or was it mostly following just the diet and

exercise.

The book doesn't say much about supplements and makes it seem that they are

not necessary to achieve good results. Do the PhenFree (Beta-Lean) and

Creatine supplements really make that much difference? I dont need to get

really low on bodyfat and I'm not officially entering the challenge. I just

want to get toned and lose excess fat. Can I get pretty good results without

supplements?

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,

I'm thrilled that my photos can inspire you! That photo shoot was my 40th

birthday present to myself and I'm so glad I did it. One of my goals in

Jan. was to be in my best body ever by my birthday in July. I live in a

beach resort town and am always in a swimsuit so I was determined to have a

body to be proud to be on the beach with.

I really did PIG OUT on my free days during that first challenge. I am a

candy-holic and I ate so much candy on those days. Lots of M & M's, Sugar

Babies, Three Musketeers, Hershey Kisses, etc. I also got my fill of chips

on those days, too. Rarely did anything healthy pass between my lips.

The only supplements I used (and still do) were Myoplex Lite shakes and

Precision Protein powder. I do occasionally (not much at all) eat a Myoplex

Lite bar. You may have heard me say before that I didn't have a lot of fat

to burn so I didn't feel like I needed PhenFree (BetaLean wasn't available

then but ephedra scares me) and I didn't want to start using creatine

(Betagen) and get great results and feel like I'd need to continue to use it

forever. I knew I was looking for a lifestyle that I could live with and

afford. And, I've found it! The shakes are affordable for me and I love

working out so little compared to what I used to. Those before pictures of

mine are taken after TWO YEARS of walking FAST at least 5 nights a week for

45 minutes and working out 3 days a week for 1 1/2 hours a day! BFL is a

much more efficient way for me along with MUCH better results! Let me know

if I can help you any.

Sara

-

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,

I'm thrilled that my photos can inspire you! That photo shoot was my 40th

birthday present to myself and I'm so glad I did it. One of my goals in

Jan. was to be in my best body ever by my birthday in July. I live in a

beach resort town and am always in a swimsuit so I was determined to have a

body to be proud to be on the beach with.

I really did PIG OUT on my free days during that first challenge. I am a

candy-holic and I ate so much candy on those days. Lots of M & M's, Sugar

Babies, Three Musketeers, Hershey Kisses, etc. I also got my fill of chips

on those days, too. Rarely did anything healthy pass between my lips.

The only supplements I used (and still do) were Myoplex Lite shakes and

Precision Protein powder. I do occasionally (not much at all) eat a Myoplex

Lite bar. You may have heard me say before that I didn't have a lot of fat

to burn so I didn't feel like I needed PhenFree (BetaLean wasn't available

then but ephedra scares me) and I didn't want to start using creatine

(Betagen) and get great results and feel like I'd need to continue to use it

forever. I knew I was looking for a lifestyle that I could live with and

afford. And, I've found it! The shakes are affordable for me and I love

working out so little compared to what I used to. Those before pictures of

mine are taken after TWO YEARS of walking FAST at least 5 nights a week for

45 minutes and working out 3 days a week for 1 1/2 hours a day! BFL is a

much more efficient way for me along with MUCH better results! Let me know

if I can help you any.

Sara

-

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Liz, Rashellal dnd Karma,

You are all wonderful!!1 Great advice. I just might start that stuff you

recommended.

Also, the side stretches are great. I did at least 60bbb today. They are a

lot easier to do than the life lift pah!! I do not think i do it right and

will re-read Liz's directions over and over to get it.

My waits got huge. all of the incehs came back. Been pretty good on

Somercize..not perfect but just watching myself.

I should go ll now..so so tired!!1 Is it possible to do too many bbb? I

hope not.

so off to exercise now. Great advice Karma..Maybe that clense will help and

then I will have more energy. I am up so early in the am that I am bushed

when I get home from school. I ahve been adding a soy product to my hrt..I

take a very low does and probably need more but my body does not handle more.

It gets to be a problem.

While I am thinking of it, I will go and get it now!!!

Thanks again.

Ellen

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Hi Ellen,

Remember to modify your pah and do it more like a deep sigh, down deep into the

bottom of your belly. You will like the feeling and the results are great. It is

a good thing to graduate to once you have learned to do the full Life Lift

breath.

Take good care,

Rashelle

Be sure to check out all of the great specials available on my web sites. Great

Valentines Gifts. All new workout videos are on sale now!

Save on the Large Body Wrap package. Some sales have been extended until to

Feb. 28th.

Visit us at http://www.lifelift.com

Join our discussion group at LifeLift-subscribe@...

Re: Digest Number 545

Liz, Rashellal dnd Karma,

You are all wonderful!!1 Great advice. I just might start that stuff you

recommended.

Also, the side stretches are great. I did at least 60bbb today. They are a

lot easier to do than the life lift pah!! I do not think i do it right and

will re-read Liz's directions over and over to get it.

My waits got huge. all of the incehs came back. Been pretty good on

Somercize..not perfect but just watching myself.

I should go ll now..so so tired!!1 Is it possible to do too many bbb? I

hope not.

so off to exercise now. Great advice Karma..Maybe that clense will help and

then I will have more energy. I am up so early in the am that I am bushed

when I get home from school. I ahve been adding a soy product to my hrt..I

take a very low does and probably need more but my body does not handle more.

It gets to be a problem.

While I am thinking of it, I will go and get it now!!!

Thanks again.

Ellen

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  • 5 months later...
Guest guest

Cari,

the movie was Jewel. It was based on a novel, and I will send it to you if

you like. Just email me with your address, and I'll drop it in the mail.

Djackht@....

Beth

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  • 2 years later...

elr: i guess we'll need to wait for the figures to come in first, like say a

65% or higher success rate or something to that effect, or maybe lower/fewer

sides than the existing pegylated tx. i've gone to the site but they don't

seem to mention lab test results in terms of statistical data. but their

argument against synthetic interferon seem to hold some water, though.

=====

biggrick@... writes:

> viragen.com has promising news

________________________________________________

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¯¯¯¯¯¯¯¯¯¯¯¯¯¯¯¯¯¯¯¯¯¯¯¯¯¯¯¯¯¯¯¯¯¯¯¯¯¯¯¯¯¯¯¯¯¯¯¯

Live your life so you won't be ashamed to

leave your family parrot with the town gossip

________________________________________________

¤»¥«¤»§«¤»¥«¤»§«¤»¥«¤»§«¤»§«¤»¥«¤»§«¤»¥«¤»§«¤»¥«

¯¯¯¯¯¯¯¯¯¯¯¯¯¯¯¯¯¯¯¯¯¯¯¯¯¯¯¯¯¯¯¯¯¯¯¯¯¯¯¯¯¯¯¯¯¯¯¯

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  • 2 months later...

Hello--

It seems possible your patient has bipolar disorder, and possibly he has

been prescribed the wrong medications. In the " old days, " Lithium was the

treatment of choice. Nowadays, you can see a combination of an

anticonvulsant, and antidepressant, and an atypical antipsychotic, such as

Tegretol, Paxil, and Seroquel. (And sometimes a psychiatrist will get lazy

and not mention to titrate the Seroquel, effectively knocking the patient on

his butt for the weekend.)

Possibly any eeg neurofeedback would also be oriented toward bipolar

disorder.

Thanks,

Gene

________________________________________________________________________

Message: 1

Date: Thu, 6 Nov 2003 04:53:35 -0800

From: " Shuel " <steve.shuel@...>

Subject: Insomnia

I'm new to neurofeedback so I would welcome any response here.

I'm a Chiropractor who does quite a bit of nutritional and metabolic

work.....

I have a patient I've been working with who has serious depression, anxiety

and

MAJOR insomnia ...he can go literally weeks even months at a time

getting only

1-3 hours of sleep per night. We've made excellent progress with the

depression

and anxiety ..but the insomnia has not budged. This insomnia is a 10 year

problem that he has been using very powerful prescription drugs for. He

wants to get away from the drugs for a variety of reasons. My question is

.......has anyone seen neurofeedback helpful in treating insomnia of this

magnitude. He says when he lays down to go to sleep at night his mind

" races " , oh yes, he also has ADD. He is 45 ears old.

Any experience in this area would be welcome

Shuel

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  • 3 years later...

Hey Group:

Dr. Drucker stated that CML is " truly a Chronic disease and a newly diagnosed

person has a 25 year median for survival " .

As you all know, I send a WELCOME letter to Newbies and for several months I

have been 'hmmmmmmmming' about my sister & brother PIONEERS/SURVIVORS ! ! !

I found my Hero~~Skip~~28 years and my Heroine~~Gwen~~12 years; that I used

after my diagnosis. There are many, many more of U from the Clinical Trials,

reaching " 0/Negative, PCR " etc. I am aware of Zavie, Ellen, Dorothy, etc.,

also BMT.

When I send the letter to the Newbies, I would like to include that there are

1,000+ " 0/Negative~~Fish Test " ; " ???~~PCR " ; and " ???~~PCRU " ??? Any information

you can give me will be greatly appreciated. My email address:

kttweety@...

How many of us are . . . CML ALIVE & KICKING ? ? ?

I know after my morbid mortality at diagnosis. . .

" I AM A SURVIVOR & I AIN'T FINISHED YET " ! ! !

All are in my prayers. . . " K "

" K "

" I AIN'T FINISHED YET " !!!

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Hey Group:

Dr. Drucker stated that CML is " truly a Chronic disease and a newly diagnosed

person has a 25 year median for survival " .

As you all know, I send a WELCOME letter to Newbies and for several months I

have been 'hmmmmmmmming' about my sister & brother PIONEERS/SURVIVORS ! ! !

I found my Hero~~Skip~~28 years and my Heroine~~Gwen~~12 years; that I used

after my diagnosis. There are many, many more of U from the Clinical Trials,

reaching " 0/Negative, PCR " etc. I am aware of Zavie, Ellen, Dorothy, etc.,

also BMT.

When I send the letter to the Newbies, I would like to include that there are

1,000+ " 0/Negative~~Fish Test " ; " ???~~PCR " ; and " ???~~PCRU " ??? Any information

you can give me will be greatly appreciated. My email address:

kttweety@...

How many of us are . . . CML ALIVE & KICKING ? ? ?

I know after my morbid mortality at diagnosis. . .

" I AM A SURVIVOR & I AIN'T FINISHED YET " ! ! !

All are in my prayers. . . " K "

" K "

" I AIN'T FINISHED YET " !!!

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