Which MDA specialist? Richters, or not Richters?

[Guest guest]

Don't say why didn't you seek advice from a Cll specialist?

Answer:

There are none on my Medicare Disadvantage Health Plan,

People's Health. After 5 months of spinning my wheels, and

with a diagnosis of Diffuse Large B Cell lymphoma a few

months ago, my Primary Care stepped up to help by writing

a request for a referral to MDA which was approved

yesterday. (My Heme/Onc's request a month earlier was

denied.)

For the last 4 months, I have copied the references and

other material some of you have sent and passed it on to my

Heme/Onc. I am very gratful to everyone who shared info on

diagnosing Richters. Now it's time to let the docs at MD

have a shot at it.

The ACOR list shows the following Cll specialists at MDA:

Keating, Lerner, O'Brien, Andreeff and Wierda. My only

experience is with O'Brien in 05. Besides the copies of the

tests, she said " You will have good days and bad days. " It

seemed the appt. was over in 5 minutes. I distinctly felt

she had no time for discussion. I heard many of you speak

of the chief, Dr. Keating, and also Dr. Wierda. If any one

can share their experiences with Dr. Keating and Dr. Wierda,

please reply to " sender "

Thanks,

Marilyn Barbera