Zavie's List

[Guest guest]

Do you have the Zero Club list on line?

[Guest guest]

Hi Lottie,

My list was just the result of a simple Google inquiry. The point I was

trying to make is that there are many drugs/foods that interact with

Gleevec. Not all of them have serious consequences. You might have to

experiment to see which ones do. Also, when two drugs have a serious

interaction, you may have to choose one over the other depending which is

more life threatening.

The experts (Talpaz, Druker, etc) have a great deal of experience in this

area. The ordinary run of the mill hemo/oncs do not. Like doctors, you need

to find a good pharmacist to advise you.

Zavie

Zavie (age 70)

67 Shoreham Avenue

Ottawa, Canada, K2G 3X3

dxd AUG/99

INF OCT/99 to FEB/00, CHF

No meds FEB/00 to JAN/01

Gleevec since MAR/27/01 (400 mg)

CCR SEP/01. #102 in Zero Club

2.8 log reduction Sep/05

3.0 log reduction Jan/06

2.9 log reduction Feb/07

3.6 log reduction Apr/08

e-mail: zmiller@...

Tel: 613-726-1117

Fax: 309-296-0807

Cell: 613-282-0204

ID: zaviem

YM: zaviemiller

Skype: Zavie

_____

From: [mailto: ] On Behalf Of Lottie

Duthu

Sent: October 6, 2008 10:28 PM

CML

Subject: [ ] Zavie's list

Hi Zavie,

Your list is different. How in the heck are we to know what to take and what

not to take, the list changes. I was on Zocar after my heart attack and

stroke, but I went over my list and asked my doctor if I could stop taking

Zocar and he said I could. I took Sporonox (1 pill) and thought I was going

to die. I brought it back to the drug store and told the pharmacist that I

knew that they were allowed to take back meds you couldn't take and the drug

maker would issue a refund. Well, he took possession of the bottle and

watched the rep flush them down the toilet. This is a direct contradiction

of what a pharmacist is supposed to do to destroy meds. I was issued a

refund check, but it was only for about half, because the pharmacist kept

his profit. I stopped doing business there after that.

Now, as to the Cipro, I take it all the time for sinus infections. I take

Diltiazem for my heart and Xanax before I go to bed. I'm wondering what else

is out there that we should know about. I am no longer on Gleevec, but it is

still a TKI, however I do not have the same warnings.

It's good someone is watching out for our backs and it's not necessarily the

medical profession. Seems the pharmacist would know if there was a

contraindication and apprise us of that.

Blessings

xoxox

Lottie