Guest guest Posted October 24, 2006 Report Share Posted October 24, 2006 Muse, Cures are sold as Bone Marrow Transplants (so they say), but if you are young the odds are greater, the older you get the odds drop. There is no prevention because there is no explaining why the chromosomes mutate the way they do. My name is Pat Foundopoulos and I threw out some queries a week or so ago about smoking, working around gasoline or anything that uses petroleum products, because the speculation is that the mutation may occur from long exposure to radiation, gasoline, cigarettes, and the list grows. This is a rare disease, not common at all, but we have this web site and it is great. Pat Quote Link to comment Share on other sites More sharing options...
Guest guest Posted October 24, 2006 Report Share Posted October 24, 2006 G. I know all the explanations you cited and yes, I agree about the energy and resources needed to find a 'why' this happens. I remarked a week or so ago that I wish I could find every CML patient alive today and send them a form with a gazillion questions on life style, eating habits, nasty habits, etc. Because somehow there has to be a common thread. I do not dwell on it, though, I am just totally curious. Pat Foundopoulos _pfoundo@..._ (mailto:pfoundo@...) Quote Link to comment Share on other sites More sharing options...
Guest guest Posted October 24, 2006 Report Share Posted October 24, 2006 Hi Pat et al, There may be a lot of speculation on the part of some patients, but there's no scientific evidence that petroleum products, gasoline or cigarettes in any way increase the risk of getting CML. The only known risk factor is exposure to high levels of ionizing radiation (eg, nuclear bomb). You may be thinking of AML, for which a known risk factor is benzene exposure. Some people end up driving themselves nuts wondering what caused their CML. But remember, even babies and children (albeit rarely) can develop CML, and I doubt any of them dabbled in benzene. Having said all of that, I sometimes wonder too about risk factors, and in the past I have decried that fact that researchers seem to have nearly a complete lack of interest in prevention of CML and study of its risk factors, which I think is unfortunate. Sadly, now that there are medications that can help people effectively manage CML for apparently years, there may be even less interest in spending massive research dollars on understanding prevention and risks when the pharmaceutical industry can rake in billions of dollars on drugs to treat the condition. Prevention would put that line of drugs out of business. G. www.upstairswindow.org www.cmlsupport.com Re: [ ] Question from newbee <snip> My name is Pat Foundopoulos and I threw out some queries a week or so ago about smoking, working around gasoline or anything that uses petroleum products, because the speculation is that the mutation may occur from long exposure to radiation, gasoline, cigarettes, and the list grows. This is a rare disease, not common at all, but we have this web site and it is great. Pat Quote Link to comment Share on other sites More sharing options...
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