SKIP

October 22, 2006

Hi Skip,

I'm on the internet site reading now, and I just read your note. You were

diagnosed with CML 30 years ago? WOW

(I would have inserted the graphic, but this service does not accept them).

I am a Christian woman believing in Jesus Christ as my savior. I'm doing a

little introduction now because I have been in and out of being a little crazy.

And your 30 years has excited me, telling me that I can live longer too.

However, I don't want to take the medication because I'm afraid that I will get

larger, as the side effects says. I'm already large, but I will talk to my

primary doctor about this because even though I haven't been truly diagnosed

yet, I was informed by the technician that I should start reading on this

disease.

I am so frightened of everything now. Even though I love the Lord and I think I

trust him, being diagnosed with this at this time shakes me. I do trust the

Lord because he has been so good to me. I know he supplies my daily needs. I

know many, many times he lifts me out of horrible depression. I know he never

leaves me or forsakes me. I know that I cannot stop leaning on him now.

I probably sound a little crazy. I'll accept that, but I have to get this stuff

out to someone. My family won't talk about disease and it's consequences.

Friends listen, but they get tired and don't know the answers or some of my

feelings.

So who shall I go to? Maybe I should go to the Lord and wait for answers, but

some things he put you guys here to tell me about. Oh yes, I know.

I need help. I do feel as if I am going crazy now.

sorry, but much love

Muse

--------------------------------------------------------------------------------

I was DX 30 years ago. Was on Myleran for 28 of those

years. the last year I have been having a lot of

trouble with Gleevec I would receive blood products

about twice a week, platelets were down to 1,000 and

red 73,000. The Doctor I have asked if I would try a

drug AMN107 which I have started.. The reason for this

post is I have started a blog to follow my progress on

AMN 107. I am not good a keeping a diary so I will

try this for a time while my energy is still above the

basement where I have been for a while. If someone

else is doing this then I will delete the blog but if

it comes in handy for someone I will try to keep it

goin. According to the Dr;. and study nurse I am the

first in this area. the blog is at

http://skip-duffie.tripod.com/blog/index.blog Forgive

any errors my vision like a lot of you if very blurry.

Skip Duffie

Ms. Muse

" I believe that unarmed truth and unconditional love will have final word in

reality. This is why right, temporarily defeated, is stronger than evil

triumphant. "

Luther King, Jr.

October 24, 2006

Hi Muse --

When I was diagnosed with cml three years ago, I asked the onc/hem what if I

don't take the Gleevec. They said that I would live about three to four years

max.

Please take the Gleevec and count it as one of the many blessings that God gives

us in this world.

chris in minn

[ ] SKIP