Guest guest Posted May 24, 2006 Report Share Posted May 24, 2006 Have not updated in a while, primarily because I have been feeling awful from the side effects of the steroids I am on to treat Graft Versus Host Disease. It has been a very difficult 3 months. I have started weaning off the drug (Medrol) in small increments, hoping the GVHD does not return. So far, so good and tomorrow I will be down to only 8 mgs a day. I am slowly starting to feel my energy coming back, but still quite debilitated from the muscle wasting in my legs, which is a common side effect of the Medrol. It appears that the plan to induce Graft versus Host Disease (via a high dose Donor Leukocyte Infusion) in order to spark my immune system into fighting the residual cancer cells (Graft Versus Leukemia) may be working. My test results from May 9th came in and shows that I am once again 100% Donor Cells and my BCR-ABL count (cancer cell count) has gone down from 8.32 in January to 0.13 as of May 9th. This is the best possible news I could get at this point. I return to Houston on June 15 for a bone marrow biopsy and with any luck those results will show a continued trend for the better. Regards and Prayers Dane Tessler www.caringbridge.org/tx/dane www.danesweb.com Quote Link to comment Share on other sites More sharing options...
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