Guest guest Posted January 17, 2006 Report Share Posted January 17, 2006 Hi Gang, I've been on 800 mg IM since 2002 but a few months ago, for the first time, I had an abnormal FISH and a BMB revealed 7 bad cells out of 20. That BMB was done as part of the BMS trial protocol and I was turned down because I needed to have 8 bad cells which would have put me over the magic number of 35% bad cells. Also, the BMB was the worst I've ever had -- extreme pain, two tries plus the biopsy and I ended up with a bruise that covered my right buttock, hip and up towards my shoulder blades. I had a second BMB at the same hospital where the results should have just been thrown away because they were so far from anything I've ever evidenced but I got a Fellow to do the BMB and he was great. I have now let the Clinical Research Nurse know that I will not allow the first doc to do another BMB and canceled an appointment when I heard I was scheduled for him. So, next week I'm going in and I have the Fellow again. You must speak up and let people know that there's something wrong or you'll just keep getting treated badly as some patients are. Tell people in charge when you are being treated badly whether it's a verbal insult, a tone or physical discomfort. I'm no shrinking violet. L Quote Link to comment Share on other sites More sharing options...
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