Re: Speaking Up -- BMS Trial

[Guest guest]

In a message dated 1/17/2006 6:51:08 P.M. Eastern Standard Time,

loewen1@... writes:

You must speak up and let people know that there's something wrong or you'll

just keep getting treated badly as some patients are. Tell people in charge

when you are being treated badly whether it's a verbal insult, a tone or

physical discomfort. I'm no shrinking violet.

, bravo to you. I had the MOST horrible bmb I've ever had out the 14 I

have endured during 6 years. It was last year, this so -called " oncologist " at

the hospital where I am treated did a job on me. I felt the most horrendous

pain and instinct made me try and get away. In doing so, I turned the wrong

way and twisted a muscle that seems to have never healed. I called 2 days

later to complain, and the nurse that was there at the time said to me, " OH, I

didn't know you heard anything we said. " What they said to the doctor was,

" Doctor, you put the needle in on the wrong side, the one that was not

numbed!! "

I should have sued, because to this day I am afraid of bmb's now, and when I

turn to the right my muscle cramps up and causes pain. I fired that doctor

and never want to see her again. The oncologist I had since then left the

hospital and guess what? They gave me my next appointment with HER. I refuse.

So, I went last week to another oncologist whom I really don't want to be

treated by either, but he is the lesser of two evils. My March bmb will be the

test for this new onc. I made it clear to everyone there that if I ever, ever

have another bmb like that one, I'll sue. I mean it. We have enough to deal

with as it is. Thanks for sharing your experience and encouraging others to

speak out. - Lynne A

[Guest guest]

At 06:45 PM 1/17/06 -0500, you wrote:

>You must speak up and let people know that there's something wrong or

>you'll just keep getting treated badly as some patients are. Tell people

>in charge when you are being treated badly whether it's a verbal insult, a

>tone or physical discomfort. I'm no shrinking violet.

>

> L

Hi ,

I agree with you. Most places do post a Patient's Bill of Rights. We have

the right to refuse care, to get a second opinion, etc. If you have

questions about what someone plans to do to you, ASK for a full explanation

and decide if you want to go ahead. It's not a butcher shop and we are not

a slab of meat, right?

Maui Nanc

[Guest guest]

Righto, Nanc! Thanks for the note.

(formerly Felicity)

Re: [ ] Speaking Up -- BMS Trial

At 06:45 PM 1/17/06 -0500, you wrote:

>You must speak up and let people know that there's something wrong or

>you'll just keep getting treated badly as some patients are. Tell people

>in charge when you are being treated badly whether it's a verbal insult, a

>tone or physical discomfort. I'm no shrinking violet.

>

> L

Hi ,

I agree with you. Most places do post a Patient's Bill of Rights. We have

the right to refuse care, to get a second opinion, etc. If you have

questions about what someone plans to do to you, ASK for a full explanation

and decide if you want to go ahead. It's not a butcher shop and we are not

a slab of meat, right?

Maui Nanc

[Guest guest]

Lynn, it sounds like you've been through the BMB needling machine too many

times, too. I think every doc who gives a BMB should have to have one. Good

luck in March! I hope this guy is better than you remember.

L

Re: [ ] Speaking Up -- BMS Trial

In a message dated 1/17/2006 6:51:08 P.M. Eastern Standard Time,

loewen1@... writes:

You must speak up and let people know that there's something wrong or you'll

just keep getting treated badly as some patients are. Tell people in charge

when you are being treated badly whether it's a verbal insult, a tone or

physical discomfort. I'm no shrinking violet.

, bravo to you. I had the MOST horrible bmb I've ever had out the 14 I

have endured during 6 years. It was last year, this so -called " oncologist " at

the hospital where I am treated did a job on me. I felt the most horrendous

pain and instinct made me try and get away. In doing so, I turned the wrong

way and twisted a muscle that seems to have never healed. I called 2 days

later to complain, and the nurse that was there at the time said to me, " OH,

I

didn't know you heard anything we said. " What they said to the doctor was,

" Doctor, you put the needle in on the wrong side, the one that was not

numbed!! "

I should have sued, because to this day I am afraid of bmb's now, and when I

turn to the right my muscle cramps up and causes pain. I fired that doctor

and never want to see her again. The oncologist I had since then left the

hospital and guess what? They gave me my next appointment with HER. I refuse.

So, I went last week to another oncologist whom I really don't want to be

treated by either, but he is the lesser of two evils. My March bmb will be the

test for this new onc. I made it clear to everyone there that if I ever, ever

have another bmb like that one, I'll sue. I mean it. We have enough to deal

with as it is. Thanks for sharing your experience and encouraging others to

speak out. - Lynne A

[Guest guest]

>hi susan,

i rcently had my first BMB last week and the doc said if he had

trouble going thru my hip he would go thru my breastbone ,which left

very little discomfort i wish you the best

richie

> Hi Gang,

>

> I've been on 800 mg IM since 2002 but a few months ago, for the

first time, I had an abnormal FISH and a BMB revealed 7 bad cells out

of 20. That BMB was done as part of the BMS trial protocol and I was

turned down because I needed to have 8 bad cells which would have put

me over the magic number of 35% bad cells. Also, the BMB was the

worst I've ever had -- extreme pain, two tries plus the biopsy and I

ended up with a bruise that covered my right buttock, hip and up

towards my shoulder blades.

>

> I had a second BMB at the same hospital where the results should

have just been thrown away because they were so far from anything

I've ever evidenced but I got a Fellow to do the BMB and he was great.

>

> I have now let the Clinical Research Nurse know that I will not

allow the first doc to do another BMB and canceled an appointment

when I heard I was scheduled for him. So, next week I'm going in and

I have the Fellow again.

>

> You must speak up and let people know that there's something wrong

or you'll just keep getting treated badly as some patients are. Tell

people in charge when you are being treated badly whether it's a

verbal insult, a tone or physical discomfort. I'm no shrinking

violet.

>

> L

>

>