Re: Re: Speaking Up -- BMS Trial

[Guest guest]

Thanks, Richie. So, did he go through your sternum? How was that?

L

[ ] Re: Speaking Up -- BMS Trial

>hi susan,

i rcently had my first BMB last week and the doc said if he had

trouble going thru my hip he would go thru my breastbone ,which left

very little discomfort i wish you the best

richie

> Hi Gang,

>

> I've been on 800 mg IM since 2002 but a few months ago, for the

first time, I had an abnormal FISH and a BMB revealed 7 bad cells out

of 20. That BMB was done as part of the BMS trial protocol and I was

turned down because I needed to have 8 bad cells which would have put

me over the magic number of 35% bad cells. Also, the BMB was the

worst I've ever had -- extreme pain, two tries plus the biopsy and I

ended up with a bruise that covered my right buttock, hip and up

towards my shoulder blades.

>

> I had a second BMB at the same hospital where the results should

have just been thrown away because they were so far from anything

I've ever evidenced but I got a Fellow to do the BMB and he was great.

>

> I have now let the Clinical Research Nurse know that I will not

allow the first doc to do another BMB and canceled an appointment

when I heard I was scheduled for him. So, next week I'm going in and

I have the Fellow again.

>

> You must speak up and let people know that there's something wrong

or you'll just keep getting treated badly as some patients are. Tell

people in charge when you are being treated badly whether it's a

verbal insult, a tone or physical discomfort. I'm no shrinking

violet.

>

> L

>

>