Guest guest Posted April 30, 2011 Report Share Posted April 30, 2011 Not sure if this is the right thread of e-mails but I wanted to pass along that " Bonnie Doon " Icecream makes a chocolate frozen yougart (in the icecream section) that " contains Active Acidophilus & Bifidus Cultures " It tastes pretty good. I am sure there are probably others on the market and in different flavors, I just happened to pickup this one up at the grocery store and thought I would mention. Take care, Terri mom to (3-XLA) From: kristin-smith@... Date: Fri, 22 Apr 2011 13:26:15 +0000 Subject: Fungal Infections Does anyone deal with difficult to treat fungal skin infections? All of my kids have had issues with fungal infections, but we seem to be having a particularly tough time at the moment. We have two kids on long-term oral antifungals because they just don't seem to respond to topical treatments. I'm also finding between our immunologist and infectious disease doc, that there really aren't many options for treating. There seem to be only a handful of drugs and all have the potential for serious side effects. Conner's liver numbers are still slightly elevated due to the powerful antifungals used during transplant. Anyway, I'm trying to find some resources for good information on the drugs and maybe some good ways to prevent infections. I'm concerned that if they are prone to these skin infections that it wouldn't be too difficult for some of these infections to become systemic, which really worries me. Our docs have Conner using Nizoral shampoo on his body a couple of times a week, but I'm starting to think that might have made some of this stuff resistant. All four of our kids have a severe MBL (mannose binding lectin) deficiency and we think this is what's causing the problem. Conner's BMT didn't cure this part of the immune system, he would have needed a new liver for that (and we aren't going there!). Thanks in advance for any advice or commiserating :-) (NEMO carrier) Mom to Hayden (16-unknown PID) Evan (16-unknown PID) Conner (16-NEMO; bone marrow transplant 8/17/07) Kelsey (15-unknown PID and NEMO carrier) Wife to (unknown PID) www.caringbridge.org/visit/smithkids Quote Link to comment Share on other sites More sharing options...
Guest guest Posted April 30, 2011 Report Share Posted April 30, 2011 Not sure if this is the right thread of e-mails but I wanted to pass along that " Bonnie Doon " Icecream makes a chocolate frozen yougart (in the icecream section) that " contains Active Acidophilus & Bifidus Cultures " It tastes pretty good. I am sure there are probably others on the market and in different flavors, I just happened to pickup this one up at the grocery store and thought I would mention. Take care, Terri mom to (3-XLA) From: kristin-smith@... Date: Fri, 22 Apr 2011 13:26:15 +0000 Subject: Fungal Infections Does anyone deal with difficult to treat fungal skin infections? All of my kids have had issues with fungal infections, but we seem to be having a particularly tough time at the moment. We have two kids on long-term oral antifungals because they just don't seem to respond to topical treatments. I'm also finding between our immunologist and infectious disease doc, that there really aren't many options for treating. There seem to be only a handful of drugs and all have the potential for serious side effects. Conner's liver numbers are still slightly elevated due to the powerful antifungals used during transplant. Anyway, I'm trying to find some resources for good information on the drugs and maybe some good ways to prevent infections. I'm concerned that if they are prone to these skin infections that it wouldn't be too difficult for some of these infections to become systemic, which really worries me. Our docs have Conner using Nizoral shampoo on his body a couple of times a week, but I'm starting to think that might have made some of this stuff resistant. All four of our kids have a severe MBL (mannose binding lectin) deficiency and we think this is what's causing the problem. Conner's BMT didn't cure this part of the immune system, he would have needed a new liver for that (and we aren't going there!). Thanks in advance for any advice or commiserating :-) (NEMO carrier) Mom to Hayden (16-unknown PID) Evan (16-unknown PID) Conner (16-NEMO; bone marrow transplant 8/17/07) Kelsey (15-unknown PID and NEMO carrier) Wife to (unknown PID) www.caringbridge.org/visit/smithkids Quote Link to comment Share on other sites More sharing options...
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