Fungal Infections

[Guest guest]

ken:

there is an herb called lomatium that works better than anything i've ever

tried on external skin fungul problems. try the liquid tincture and apply it

topically.

i once used it on athletes foot and it completely cured the infection

overnight

[Guest guest]

I'VE HAD ATHLETES FOOT FOR A FEW MONTHS NOW. WHERE DO I GET LOMATIUM OIL AT?

THANKS.

----- Original Message -----

From: " aluckower " <aluckower@...>

> ken:

>

> there is an herb called lomatium that works better than anything i've ever

> tried on external skin fungul problems. try the liquid tincture and apply

> it

> topically.

>

> i once used it on athletes foot and it completely cured the infection

> overnight

[Guest guest]

Health food store?

Jay Ice wrote:

>

> I'VE HAD ATHLETES FOOT FOR A FEW MONTHS NOW. WHERE DO I GET LOMATRIUM OIL AT?

> THANKS.

>

> ----- Original Message -----

> From: " aluckower " <aluckower@...>

>

> > ken:

> >

> > there is an herb called lomatium that works better than anything i've ever

> > tried on external skin fungul problems. try the liquid tincture and apply

> > it

> > topically.

> >

> > i once used it on athletes foot and it completely cured the infection

> > overnight

>

>

> OxyPLUS is an unmoderated e-ring dealing with oxidative therapies, and other

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>

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>

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[Guest guest]

you can get lomatium tincture at a good health food store with a selection

of herbs

[Guest guest]

Hi Trudy

Really good probiotics, there seem to be a few that stand out like

three lac and primal defense.

I used to be Rx amphotericin b but the last time I used it it did not

work so well and although it is not supposed to be absorbed from the

gut it made me tender around the liver area after a while, did not feel

so good either.

After that I went for a protocol that would treat more than just canida

since the whole of my GI tract, gall bladder and liver seemed to be in

a mess. This time I wanted to be sure the candida did not come back and

to treat any yeast/fungal infections as well.

I opted for garlic first, then berberine complex gradually building up

to the max dose of 2 caps tid, then wild oregano oil and finally

grapefruit seed extract. This was during the time everyone was raving

about olive leaf extract but it did not do much for me at all, I just

keep some around for when a virus strikes now.

There are many options for treating candida without antifungal meds, so

I am sure you will get lots of other suggestions.

Cheers, Tansy

> Hi everyone,

>

> I would like to know what people are doing alternatively to treat

fungal

> infections (i.e. candida, yeast, etc.)? What products are you using?

>

> Thanks!

>

> Kind regards,

> Trudy

[Guest guest]

Hi Tansy,

You are so full of good information. Thanks for sharing it so generously!

Okay, this new ND that I am seeing has me on a program for yeast;

however, I don't think it is aggressive enough. My new motto is: " Take

no prisoners! " ;-) LOL

With my ND's program I think that I have the probiotics covered. He

also has me taking oregano, bentonite and Herbal Bulk (Genestra).

I don't know what berberine is, so I'll have to research that one.

I know about garlic for yeast. What kind of garlic did you take? Did

you take the powdered capsules? I've got some Allimax here that I

picked up off the bargain table. Do you think that might work?

Not long ago I purchased some grapefruit seed extract. How did you take

it? I found the taste difficult and was wondering if I could just put

it in gelatin caps. What do you think about that?

Thanks for your help, Tansy!

Kind regards,

Trudy

Message: 18

Date: Tue, 26 Apr 2005 22:26:57 -0000

From: " tansyap " <tansyap@...>

Subject: Re: Fungal Infections

Hi Trudy

Really good probiotics, there seem to be a few that stand out like

three lac and primal defense.

I used to be Rx amphotericin b but the last time I used it it did not

work so well and although it is not supposed to be absorbed from the

gut it made me tender around the liver area after a while, did not feel

so good either.

After that I went for a protocol that would treat more than just canida

since the whole of my GI tract, gall bladder and liver seemed to be in

a mess. This time I wanted to be sure the candida did not come back and

to treat any yeast/fungal infections as well.

I opted for garlic first, then berberine complex gradually building up

to the max dose of 2 caps tid, then wild oregano oil and finally

grapefruit seed extract. This was during the time everyone was raving

about olive leaf extract but it did not do much for me at all, I just

keep some around for when a virus strikes now.

There are many options for treating candida without antifungal meds, so

I am sure you will get lots of other suggestions.

Cheers, Tansy

[Guest guest]

Hi Trudy

I used garlic caps with a high allicin content, I also ate raw garlic

and crushed fresh garlic onto hot food just before eating to avoid

destroying the allicin.

The Berberine complex I used is sold under the PhytoPharmica label

and consists of extracts of barberry, Oregon grape, and goldenseal.

The blurb on it says it –

" Exhibits broad antibacterial, antifungal, & antiprotozoal effects

Excellent for use with " travelers diarrhea " or acute diarrhea.

Has shown effectiveness with diarrhea secondary to cholera,

giardiasis, & non-specific gastroenteritis.

Inhibits the growth of candida & other fungi without killing

acidophilus, bifidus, & other beneficial gastrointestinal organisms.

Is helpful with infection of the mucous membranes i.e. mouth, throat,

sinuses, bronchi, urinary & gastrointestinal tissue.

Has immune modulatory as well as its antibiotic, anti-infective

effects.

Has anti-convulsant and sedative effects.

May be beneficial with cirrhosis.

Has blood pressure lowering effects.

May help with those ventricular heart irregularities caused by

decreased blood supply to the heart.

Is used in China to treat white blood cell depression caused by

chemotherapy/radiation treatments. "

Seemed like a good choice for me, especially since I knew I was

dealing with more than yeast in my GI tract and others had found it

worked for systemic yeast and fungal infections.

I hope the oregano your ND has recommended is wild oregano oil, it's

much more effective. After using WOO I said goodbye to my almost

constant chronic sinusitis, just get the odd flare up now and then

which soon goes.

My stomach does not tolerate grapefruit juice and objected almost as

much to the grapefruit seed extract in liquid form, so I just used

some tabs I found, seemed to work.

One probiotic which helped with oral candida and my gastritis

especially was the powdered form of flora balance, a soil based

organism.

Cheers, Tansy

> Hi Tansy,

>

> You are so full of good information. Thanks for sharing it so

generously!

>

> Okay, this new ND that I am seeing has me on a program for yeast;

> however, I don't think it is aggressive enough. My new motto

is: " Take

> no prisoners! " ;-) LOL

>

> With my ND's program I think that I have the probiotics covered.

He

> also has me taking oregano, bentonite and Herbal Bulk (Genestra).

>

> I don't know what berberine is, so I'll have to research that one.

>

> I know about garlic for yeast. What kind of garlic did you take?

Did

> you take the powdered capsules? I've got some Allimax here that I

> picked up off the bargain table. Do you think that might work?

>

> Not long ago I purchased some grapefruit seed extract. How did you

take

> it? I found the taste difficult and was wondering if I could just

put

> it in gelatin caps. What do you think about that?

>

> Thanks for your help, Tansy!

>

> Kind regards,

> Trudy

>

> Message: 18

> Date: Tue, 26 Apr 2005 22:26:57 -0000

> From: " tansyap " <tansyap@y...>

> Subject: Re: Fungal Infections

>

>

> Hi Trudy

>

> Really good probiotics, there seem to be a few that stand out like

> three lac and primal defense.

>

> I used to be Rx amphotericin b but the last time I used it it did

not

> work so well and although it is not supposed to be absorbed from

the

> gut it made me tender around the liver area after a while, did not

feel

> so good either.

>

> After that I went for a protocol that would treat more than just

canida

> since the whole of my GI tract, gall bladder and liver seemed to be

in

> a mess. This time I wanted to be sure the candida did not come back

and

> to treat any yeast/fungal infections as well.

>

> I opted for garlic first, then berberine complex gradually building

up

> to the max dose of 2 caps tid, then wild oregano oil and finally

> grapefruit seed extract. This was during the time everyone was

raving

> about olive leaf extract but it did not do much for me at all, I

just

> keep some around for when a virus strikes now.

>

> There are many options for treating candida without antifungal

meds, so

> I am sure you will get lots of other suggestions.

>

> Cheers, Tansy

[Guest guest]

hi u can buy grapeseed extract in capsules.. i think the liquid might eat

thru any capsule u put it into..i was on it for short term to clean out the

junk in my stomach and found it hard to tolearte ...good luck tealk

ps now i use it to keep my water from growing anythinmg

> [Original Message]

> From: Trudy Newman <tnew@...>

> < >

> Date: 4/26/2005 8:09:28 PM

> Subject: Re: Fungal Infections

>

>

> Hi Tansy,

>

> You are so full of good information. Thanks for sharing it so generously!

>

> Okay, this new ND that I am seeing has me on a program for yeast;

> however, I don't think it is aggressive enough. My new motto is: " Take

> no prisoners! " ;-) LOL

>

> With my ND's program I think that I have the probiotics covered. He

> also has me taking oregano, bentonite and Herbal Bulk (Genestra).

>

> I don't know what berberine is, so I'll have to research that one.

>

> I know about garlic for yeast. What kind of garlic did you take? Did

> you take the powdered capsules? I've got some Allimax here that I

> picked up off the bargain table. Do you think that might work?

>

> Not long ago I purchased some grapefruit seed extract. How did you take

> it? I found the taste difficult and was wondering if I could just put

> it in gelatin caps. What do you think about that?

>

> Thanks for your help, Tansy!

>

> Kind regards,

> Trudy

>

> Message: 18

> Date: Tue, 26 Apr 2005 22:26:57 -0000

> From: " tansyap " <tansyap@...>

> Subject: Re: Fungal Infections

>

>

> Hi Trudy

>

> Really good probiotics, there seem to be a few that stand out like

> three lac and primal defense.

>

> I used to be Rx amphotericin b but the last time I used it it did not

> work so well and although it is not supposed to be absorbed from the

> gut it made me tender around the liver area after a while, did not feel

> so good either.

>

> After that I went for a protocol that would treat more than just canida

> since the whole of my GI tract, gall bladder and liver seemed to be in

> a mess. This time I wanted to be sure the candida did not come back and

> to treat any yeast/fungal infections as well.

>

> I opted for garlic first, then berberine complex gradually building up

> to the max dose of 2 caps tid, then wild oregano oil and finally

> grapefruit seed extract. This was during the time everyone was raving

> about olive leaf extract but it did not do much for me at all, I just

> keep some around for when a virus strikes now.

>

> There are many options for treating candida without antifungal meds, so

> I am sure you will get lots of other suggestions.

>

> Cheers, Tansy

>

>

>

>

>

>

>

> This list is intended for patients to share personal experiences with

each other, not to give medical advice. If you are interested in any

treatment discussed here, please consult your doctor.

>

[Guest guest]

Hi Tansy,

Okay, in the past I used to eat a lot of raw garlic. It seemed, however,

that I was the only one who appreciated it! ;-) LOL My sister gently

told me that the smell was going through my skin. I better stick with

the pills.

I will look into Berberine. I'm busted flat right now and will have to

wait until next month. From my studies I see that it is also helpful for

parasites. It seems that garlic, grapefruit seed extract and oregano are

also helpful.

I'm also planning on doing a parasite cleanse during all of this.

Okay, I looked on the bottle of Oregano that my ND put me on. It doesn't

say " wild. " It just says " standardized extract from leaves. " I'll look

and see if they have a " wild " version the next time I'm at my health

food store. (I've also added Garden of Life's Fungal Defense to his

pills. Basically, I'm just using it up before the expiry date. I think

that Garden of Life is a pretty good product--expensive anyway! ;-)

I had some Grapefruit Seed Extract pills on hand, but they must have

been 10 years old. I was uncomfortable using them, so I will have to get

some new ones when I get some money.

I'll also check and see if they have Flora Balance. Sometimes it is

really hard to get these products here in Canada. Other times I'm amazed

that our local stores carry them.

Thanks for all the info.

Kind regards,

Trudy

Message: 3

Date: Wed, 27 Apr 2005 00:48:30 -0000

From: " tansyap " <tansyap@...>

Subject: Re: Fungal Infections

Hi Trudy

I used garlic caps with a high allicin content, I also ate raw garlic

and crushed fresh garlic onto hot food just before eating to avoid

destroying the allicin.

The Berberine complex I used is sold under the PhytoPharmica label

and consists of extracts of barberry, Oregon grape, and goldenseal.

The blurb on it says it

" Exhibits broad antibacterial, antifungal, & antiprotozoal effects

Excellent for use with " travelers diarrhea " or acute diarrhea.

Has shown effectiveness with diarrhea secondary to cholera,

giardiasis, & non-specific gastroenteritis.

Inhibits the growth of candida & other fungi without killing

acidophilus, bifidus, & other beneficial gastrointestinal organisms.

Is helpful with infection of the mucous membranes i.e. mouth, throat,

sinuses, bronchi, urinary & gastrointestinal tissue.

Has immune modulatory as well as its antibiotic, anti-infective

effects.

Has anti-convulsant and sedative effects.

May be beneficial with cirrhosis.

Has blood pressure lowering effects.

May help with those ventricular heart irregularities caused by

decreased blood supply to the heart.

Is used in China to treat white blood cell depression caused by

chemotherapy/radiation treatments. "

Seemed like a good choice for me, especially since I knew I was

dealing with more than yeast in my GI tract and others had found it

worked for systemic yeast and fungal infections.

I hope the oregano your ND has recommended is wild oregano oil, it's

much more effective. After using WOO I said goodbye to my almost

constant chronic sinusitis, just get the odd flare up now and then

which soon goes.

My stomach does not tolerate grapefruit juice and objected almost as

much to the grapefruit seed extract in liquid form, so I just used

some tabs I found, seemed to work.

One probiotic which helped with oral candida and my gastritis

especially was the powdered form of flora balance, a soil based

organism.

Cheers, Tansy

[Guest guest]

Hi tea lk,

That is a great idea to add grapeseed extract to water. I was recently thinking

it might be a good idea to add a few drops of colloidal silver to tap water.

Once I get rid of all these parasites, I don't want to see them again! ;-)

Kind regards,

Trudy

Message: 11

Date: Tue, 26 Apr 2005 23:06:01 -0400

From: " tea lk " <48tealk17@...>

Subject: RE: Re: Fungal Infections

hi u can buy grapeseed extract in capsules.. i think the liquid might eat

thru any capsule u put it into..i was on it for short term to clean out the

junk in my stomach and found it hard to tolearte ...good luck tealk

ps now i use it to keep my water from growing anythinmg

[Guest guest]

In a message dated 5/4/2005 7:44:07 A.M. Eastern Daylight Time,

tripletsand1@... writes:

I was wondering if anyone here has a PID child who has problems fighting

fungal infections? Conner has a small (size of a quarter) lesion on his arm

that his ped and pulmonologist believe is fungal, we've been treating it

with topical creams for a few weeks now and it just doesn't seem to be

getting much better.

Is this ringworm? Is it growing? Or is it staying the same?

Janet, Mom to Brittany, CVID, age 14

[Guest guest]

,

I wouldn't mess around with Drs. who are guessing...Call the immunologist,

explain what is happening and how far away you are. At least he/she will be

able to indicate if you should be more aggressive and point your Dr. in the

right direction. My Dr. always said one of the risks with skin issues in the

chance of flesh eating disease. Not trying to scare you, just what they said to

me.

Good luck.

Kim, Mom to 8 - CVID

Fungal Infections

> I was wondering if anyone here has a PID child who has problems

> fighting

> fungal infections? Conner has a small (size of a quarter) lesion

> on his arm

> that his ped and pulmonologist believe is fungal, we've been

> treating it

> with topical creams for a few weeks now and it just doesn't seem

> to be

> getting much better. I've been trying to get him into our

> infectious

> disease doc but haven't had any luck. I'm trying to figure out

> how serious

> something like this is for him and how pushy I need to get with

> the docs to

> get it taken more seriously. From what I understand, fungal

> infections can

> sometimes indicate a problem with T-cell function, but it could

> have also

> been caused by the steroids that caused his adrenal problem. His

> pulmonogist thought that maybe someone should put him on an oral

> anti-fungal, but he didn't want to do it himself. His

> immunologist is 7

> hours away. Any advice?

>

>

>

>

> Mom to Conner (10, Asperger's, partial seizures, asthma, GERD,

> immunodeficiency-SCIG, and now adrenal insufficiency),

> Hayden (10, PDD-NOS, IBS and moderate hearing loss/aided),

> Evan (10, asthma and mild hearing loss/unaided),

> and Kelsey - surviving triplet (9 going on 19!)

>

>

>

>

>

[Guest guest]

,

Just to clarify, I am not suggesting that he has flesh eating...just that a skin

lesion can be an entry for it.

Kim

Fungal Infections

>

> > I was wondering if anyone here has a PID child who has problems

> > fighting

> > fungal infections? Conner has a small (size of a quarter)

> lesion

> > on his arm

> > that his ped and pulmonologist believe is fungal, we've been

> > treating it

> > with topical creams for a few weeks now and it just doesn't seem

> > to be

> > getting much better. I've been trying to get him into our

> > infectious

> > disease doc but haven't had any luck. I'm trying to figure out

> > how serious

> > something like this is for him and how pushy I need to get with

> > the docs to

> > get it taken more seriously. From what I understand, fungal

> > infections can

> > sometimes indicate a problem with T-cell function, but it could

> > have also

> > been caused by the steroids that caused his adrenal problem.

> His

> > pulmonogist thought that maybe someone should put him on an oral

> > anti-fungal, but he didn't want to do it himself. His

> > immunologist is 7

> > hours away. Any advice?

> >

> >

> >

> >

> > Mom to Conner (10, Asperger's, partial seizures, asthma, GERD,

> > immunodeficiency-SCIG, and now adrenal insufficiency),

> > Hayden (10, PDD-NOS, IBS and moderate hearing loss/aided),

> > Evan (10, asthma and mild hearing loss/unaided),

> > and Kelsey - surviving triplet (9 going on 19!)

> >

> >

> >

> >

> >

[Guest guest]

When was littler he did and they put him on oral diflucan and it

cleared it up when the creams didn't help.

Amy

Re: Fungal Infections

>

>In a message dated 5/4/2005 7:44:07 A.M. Eastern Daylight Time,

>tripletsand1@... writes:

>

>I was wondering if anyone here has a PID child who has problems fighting

>fungal infections? Conner has a small (size of a quarter) lesion on his

arm

>

>that his ped and pulmonologist believe is fungal, we've been treating it

>with topical creams for a few weeks now and it just doesn't seem to be

>getting much better.

>

>

>Is this ringworm? Is it growing? Or is it staying the same?

>

>Janet, Mom to Brittany, CVID, age 14

>

>

>

>

[Guest guest]

In a message dated 5/4/2005 4:43:52 AM Pacific Standard Time,

tripletsand1@... writes:

His

pulmonogist thought that maybe someone should put him on an oral

anti-fungal, but he didn't want to do it himself. His immunologist is 7

hours away. Any advice?

,

My son has had yeast in his ear canals just from showering. I still have

to keep wax earplugs in his ears to limit water exposure. When his Ped gave

Diflucan for this, it was given for seven days. It can be hard on the liver if

used incorrectly or too often. It was very effective.

Sandi, Mom to , age 12. CVID, Tetrology of Fallot, Pulmonary valve

transplant (2003), asthma, Carnitine deficiency, GERD

[Guest guest]

In a message dated 5/5/2005 8:08:29 P.M. Eastern Daylight Time,

sassykay59@... writes:

It can be hard on the liver if

used incorrectly or too often. It was very effective.

Britt has been on Diflucan for a year now. They did blood work to check her

liver and it was fine. I was worried about it also. But she has to have it

for Chronic Candidia.

Janet, Mom to Brittany, CVID, age 14

[Guest guest]

In a message dated 5/6/2005 1:10:30 P.M. Eastern Daylight Time,

tripletsand1@... writes:

I thought I

had remembered reading that PID kids often have trouble with yeast/fungal

infections. I thought it was usually a problem with t-cells that caused

this (but I could be way off base). We still don't really know how much

t-cell function Conner has, although his actual t-cell numbers are normal.

It is common with PID kids. Britt's T cells are fine. When they get these

funguses they are hard to get rid of. Anyone have problems with their kids

toenails with fungus? Britt has that also. It didn't respond to lamisil

treatment.

Janet, Mom to Brittany, CVID, age 14

[Guest guest]

Thanks for the responses, I pushed the issue and was able to get a

dermatologist to see Conner yesterday. He agrees that it is likely fungal

and put him on some stronger topical meds, but if it doesn't respond quickly

then he will probably go on an oral anti-fungal. He also did a scraping but

said it will take at least 2 weeks to see if anything grows. I thought I

had remembered reading that PID kids often have trouble with yeast/fungal

infections. I thought it was usually a problem with t-cells that caused

this (but I could be way off base). We still don't really know how much

t-cell function Conner has, although his actual t-cell numbers are normal.

Anyway, I just never seem to know what will pop up next with this kid! He

hasn't had a very healthy spring (a case of bronchitis and two sinus

infections) and is supposed to stop SCIG at the end of the month so we can

check levels this summer, I sure hope he does okay!

Mom to Conner (10, Asperger's, partial seizures, asthma, GERD,

immunodeficiency-SCIG, and now adrenal insufficiency),

Hayden (10, PDD-NOS, IBS and moderate hearing loss/aided),

Evan (10, asthma and mild hearing loss/unaided),

and Kelsey - surviving triplet (9 going on 19!)

[Guest guest]

Conner fought a fungal infection on his arm for a few months last Spring.

Our docs believed it was from our pets (cat/dog), even though they were

indoor pets. We finally found new homes for them. Conner's T-cell function

is questionable, we will be doing bacteriophage testing this summer to try

to pinpoint his disorder.

Mom to Conner (11, Asperger's, mild CP, partial seizures, asthma, GERD,

Hashimoto's disease, hypogammaglobulinemia, complement deficiency, antibody

deficiency, NK cell defect, and resolved adrenal insufficiency),

Hayden (11, PDD-NOS, IBS and moderate hearing loss/aided),

Evan (11, asthma and mild hearing loss/unaided),

and Kelsey - (10)

Please visit us at www.caringbridge.org/in/connersmith

[Guest guest]

I must be the exception to the comment by Dr. Furman about fungal infections

being unusual with CLL patients. I have had more life-threatening infections

than I count - four this year (one currently in my lungs), not counting less

severe fungal infections of the skin, etc. I also have had a systemic fungal

infection a couple of years ago. And the amazing part of this tale - I have been

on full dose Posaconazole since March and have developed these four fungal

infections of 2009. Prior to 2009, I was taking Diflucan prophylactically and

Itraconazole sprinkled in with IV Caspofungin and IV Micafungin.

What would predispose me to this rate of fungal infections, Dr. Furman? I am

very immune compromised after 13+ years with CLL, so I am assuming this to be

the cause. Are there other contributing factors that come to your mind?

Also, Pat had posted a question for me because I am very ill right now with a

fungal infection in my lungs regarding the rapidity with which this recent

fungal culture grew out (less than a week) versus all of the others taking 3-4

weeks. Can you direct me (and the group) to a resource that lists fungi and

their time to growth on culture? I know it will be another 2-3 weeks before I

have the fungi ID'd and sensitivities that will confirm whether or not the IV

Micafungin has the lowest MIC.

I appreciate your generous gift of time and knowledge that you share with this

CLL Community. Stacie

In His grip,

Stacie

Current Age 45;

CLL diagnosed at age 33 in 1997 after abnormal CLL in 1996 at age 32

DISEASE HISTORY:

2007 Monthly IVIG begins due to being severely immunocompromised

(Low neutrophils, Low IgG, IgA, and IgM as well as depleted T-Cells that never

recovered after Fludarabine)

Multiple Anaphylactic Drug Reactions-Desensitization now required for all drugs

(Believed to be CLL mediated)

Leukapheresis 1999-2001 to lower WBC levels of over 300,000

RBC transfusions - Multiple

Extensive use of Neupogen

98% marrow involvement since 1999

CONVENTIONAL TREATMENTS:

Fludarabine + Rituxan (5 days + 1 day) May 2002;

Fludarabine (3 days) Sept. 2003;

Fludarabine + Rituxan (4 days + 1 day) April 2004;

Rituxan-4 Weekly Infusions - October 1- October 23, 2004;

Half Dose Rituxan + Neupogen and Multiple Other " Alternative Additions "

(8 weeks)- June - August 2009

ALTERNATIVE TREATMENTS:

Acupuncture and Chinese Massage

2008 Used Artemisinin and Butyrate which lowered WBC

1998 - IV Hydrogen Peroxide and IV High Dose Vitamin C

1999 - 714 X injections

2000 - Laetrile

2009- Currently taking with Half-Dose Rituxan: Singulair, Neupogen, Green Tea

Extract, Curcumin, Beta Glucans, Probiotics, Barley Grass and Kelp, Vitamin D3,

Alpha Lipoic Acid, Cranberry Extract, Fish Oil, Juicing, Anti-Cancer Diet

" For by Me your days will be multiplied and years added unto your life. " -

Proverbs 9:11

My faith and love of God: My source of hope, life, and healing.

[Guest guest]

If it is a place to paint it Genetian Violet works GREAT but it turns everything

purple. Diet is another issue with it being REALLY important to cut down yeast

and sugar foods. Also may want to eat good quality yogurt to try to change the

flora.

BARBIE

________________________________

From: kristinz4 <kristin-smith@...>

Sent: Fri, April 22, 2011 6:26:15 AM

Subject: Fungal Infections

Does anyone deal with difficult to treat fungal skin infections? All of my kids

have had issues with fungal infections, but we seem to be having a particularly

tough time at the moment. We have two kids on long-term oral antifungals because

they just don't seem to respond to topical treatments. I'm also finding between

our immunologist and infectious disease doc, that there really aren't many

options for treating. There seem to be only a handful of drugs and all have the

potential for serious side effects. Conner's liver numbers are still slightly

elevated due to the powerful antifungals used during transplant.

Anyway, I'm trying to find some resources for good information on the drugs and

maybe some good ways to prevent infections. I'm concerned that if they are prone

to these skin infections that it wouldn't be too difficult for some of these

infections to become systemic, which really worries me. Our docs have Conner

using Nizoral shampoo on his body a couple of times a week, but I'm starting to

think that might have made some of this stuff resistant. All four of our kids

have a severe MBL (mannose binding lectin) deficiency and we think this is

what's causing the problem. Conner's BMT didn't cure this part of the immune

system, he would have needed a new liver for that (and we aren't going there!).

Thanks in advance for any advice or commiserating :-)

(NEMO carrier)

Mom to Hayden (16-unknown PID)

Evan (16-unknown PID)

Conner (16-NEMO; bone marrow transplant 8/17/07)

Kelsey (15-unknown PID and NEMO carrier)

Wife to (unknown PID)

www.caringbridge.org/visit/smithkids

[Guest guest]

Hi All ~ My one son goes in spurts with yougart. Would a yougart smoothe work

the same way? Just thought I would mention and ask.

Take care,

Terri

3 sons, , (Brutons),

From: kristin-smith@...

Date: Fri, 22 Apr 2011 16:23:06 +0000

Subject: Re: Fungal Infections

Barbie,

I agree, gentian violet is the best, especially for thrush (it cures stuff that

Nystatin can't touch). I actually turned the transplant team onto it when I

started using it for Conner's thrush. I've never thought about using it on the

skin though. Right now we are dealing with a full body fungal rash, can you

imagine if we used that? LOL!

I think I really need to research the diet stuff, I haven't looked at that much.

My kids aren't big yogurt eaters, but someone just told me about Kefir, I'm

going to get some of that to see if they like it. Thanks for the push to look

into this a bit more.

Take care,

[Guest guest]

Sometimes they like the Greek yogurts better with fresh fruit and nuts or honey.

They are actually better for you anyway since they have more protein. the best

ones are like Trader Joes, 's etc not Yoplait since it is SOOO full of

additives.

'sBARBIE

________________________________

From: kristinz4 <kristin-smith@...>

Sent: Fri, April 22, 2011 9:23:06 AM

Subject: Re: Fungal Infections

Barbie,

I agree, gentian violet is the best, especially for thrush (it cures stuff that

Nystatin can't touch). I actually turned the transplant team onto it when I

started using it for Conner's thrush. I've never thought about using it on the

skin though. Right now we are dealing with a full body fungal rash, can you

imagine if we used that? LOL!

I think I really need to research the diet stuff, I haven't looked at that much.

My kids aren't big yogurt eaters, but someone just told me about Kefir, I'm

going to get some of that to see if they like it. Thanks for the push to look

into this a bit more.

Take care,

[Guest guest]

Yogurt in any form is fine. I use it instead of sour cream to make Ranch

dressing and many other foods I add it instead of the milk. It works great and

gives you the benefits. I freeze fruit and then throw it in with yogurt for

Smoothies then no ice is needed.

BARBIE

________________________________

From: Terri Cahill <terric2000@...>

Sent: Fri, April 22, 2011 9:51:11 AM

Subject: RE: Re: Fungal Infections

Hi All ~ My one son goes in spurts with yougart. Would a yougart smoothe work

the same way? Just thought I would mention and ask.

Take care,

Terri

3 sons, , (Brutons),

From: kristin-smith@...

Date: Fri, 22 Apr 2011 16:23:06 +0000

Subject: Re: Fungal Infections

Barbie,

I agree, gentian violet is the best, especially for thrush (it cures stuff that

Nystatin can't touch). I actually turned the transplant team onto it when I

started using it for Conner's thrush. I've never thought about using it on the

skin though. Right now we are dealing with a full body fungal rash, can you

imagine if we used that? LOL!

I think I really need to research the diet stuff, I haven't looked at that much.

My kids aren't big yogurt eaters, but someone just told me about Kefir, I'm

going to get some of that to see if they like it. Thanks for the push to look

into this a bit more.

Take care,

[Guest guest]

, e gets a lot of fungal infections too....besides the Nizoral

shampoo, we sometimes use Betadine to " paint " the affected area....this can

help......also, this seems rough but I've been assured by the dermatologist that

it is not......soak in bathtub full of warm water with one cup of Clorox bleach

mixed in there....not much different than chlorine in a swimming pool

actually.....this is good.

She also has him do one bath soak a week with a cup of rock salt mixed in the

water...she said this helps the overall health of the skin and makes it less of

a host for fungi.....it's also a very soothing mineral bath.

I am very fearful of systemic antifungals unless absolutely necessary.....as you

have expressed......they are so hard on the liver...............hugs sue

From: kristinz4 <kristin-smith@...>

Subject: Fungal Infections

Date: Friday, April 22, 2011, 1:26 PM

 

Does anyone deal with difficult to treat fungal skin infections? All of my

kids have had issues with fungal infections, but we seem to be having a

particularly tough time at the moment. We have two kids on long-term oral

antifungals because they just don't seem to respond to topical treatments. I'm

also finding between our immunologist and infectious disease doc, that there

really aren't many options for treating. There seem to be only a handful of

drugs and all have the potential for serious side effects. Conner's liver

numbers are still slightly elevated due to the powerful antifungals used during

transplant.

Anyway, I'm trying to find some resources for good information on the drugs and

maybe some good ways to prevent infections. I'm concerned that if they are prone

to these skin infections that it wouldn't be too difficult for some of these

infections to become systemic, which really worries me. Our docs have Conner

using Nizoral shampoo on his body a couple of times a week, but I'm starting to

think that might have made some of this stuff resistant. All four of our kids

have a severe MBL (mannose binding lectin) deficiency and we think this is

what's causing the problem. Conner's BMT didn't cure this part of the immune

system, he would have needed a new liver for that (and we aren't going there!).

Thanks in advance for any advice or commiserating :-)

(NEMO carrier)

Mom to Hayden (16-unknown PID)

Evan (16-unknown PID)

Conner (16-NEMO; bone marrow transplant 8/17/07)

Kelsey (15-unknown PID and NEMO carrier)

Wife to (unknown PID)

www.caringbridge.org/visit/smithkids