Guest guest Posted February 15, 2006 Report Share Posted February 15, 2006 In a message dated 2/15/2006 2:40:06 P.M. Eastern Standard Time, giora1@... writes: even said that novartis is flying patients or coming to their homes to do the tests and follow up. i suggest that you contact novartis usa, try to get to the person in charge of clinical trieals their, and if not to barbara (i dont remember her last name) who is a top public relation at novartis, and demend that they will keep tracking you on the trial even if your centre does not want to do it. i hope you will get what you deserve. love Well, thank you, Giora, that is good advice. I did not realize I could do that. I will try it and see what comes of it. You must have several patients so they are willing to continue with you as part of a larger group. I got the impression Novartis was not interested in following me, as I was the only patient in the area. I was told, " Gleevec is FDA approved, and so they don't need your information. " I was stunned, and did not react, and the person who came in and delivered this statement got up and left, said she'd be in touch with me later. I never met her before, nor did I have any warning this would happen so suddenly. Thanks for your kind comments and the information. As Always, gratefully yours, Lynne A. Quote Link to comment Share on other sites More sharing options...
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