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Hi Diane

Boy can I tell you stories!

After developing totally normally and hitting all milestones my son acquired

autism after getting his MMR vaccine at age 16 mos.

30 days prior to his MMR he had a nasty case of roseola, and 10 days before

his MMR he had an ear infection and the day he received his vaccine he was

finishing his course of antibiotics and still had a cold.

About 3 months later I went to his pedi and said he is loosing language and

has developed bad constipation. I was told it was all normal so I let it

go... (this was back in 1987)

At age 10 yrs 10 mos my son came into contact with someone who had the step

virus and overnight he developed tics so severe that I thought he was having

seizures. Lots of testing and family health history later he was diagnosed

with PANDAS (strep induced tourettes)

As a child my mother had syndhams correa (cousin to strep induced

tourettes). As adults both she and her Dad (my grandpa) developed allergies to

penicillin and other medications that they previously had no problems with.

My daughter who is 24 has had problems since childhood with milk tolerance

and has had some GI problems too. Over the last year she has suffered with a

lot of body aches, head aches, sleep problems and worsening of the GI problems

to constant diarrhea. She has just been diagnosed with Fibromyalgia after

being testing negative for RA. She and I both think the 3 courses of the hep B

(which has mercury in it ) might be connected to her developing FM.

My husbands 1/2 sister developed MS in her 30s and by her early 40s she was

bedridden it was so severe.

My first cousin died in his late 40s from ALS (Lou Gherigs disease)

Lots of Aunts, Mom, and brother all have diabetes...

My family members are walking magnets for autoimmune disorders and I really

worry about what else Andy might develop.

Jan

**************************************Check out AOL's list of 2007's hottest

products.

(http://money.aol.com/special/hot-products-2007?NCID=aoltop00030000000001)

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Hi Diane

Boy can I tell you stories!

After developing totally normally and hitting all milestones my son acquired

autism after getting his MMR vaccine at age 16 mos.

30 days prior to his MMR he had a nasty case of roseola, and 10 days before

his MMR he had an ear infection and the day he received his vaccine he was

finishing his course of antibiotics and still had a cold.

About 3 months later I went to his pedi and said he is loosing language and

has developed bad constipation. I was told it was all normal so I let it

go... (this was back in 1987)

At age 10 yrs 10 mos my son came into contact with someone who had the step

virus and overnight he developed tics so severe that I thought he was having

seizures. Lots of testing and family health history later he was diagnosed

with PANDAS (strep induced tourettes)

As a child my mother had syndhams correa (cousin to strep induced

tourettes). As adults both she and her Dad (my grandpa) developed allergies to

penicillin and other medications that they previously had no problems with.

My daughter who is 24 has had problems since childhood with milk tolerance

and has had some GI problems too. Over the last year she has suffered with a

lot of body aches, head aches, sleep problems and worsening of the GI problems

to constant diarrhea. She has just been diagnosed with Fibromyalgia after

being testing negative for RA. She and I both think the 3 courses of the hep B

(which has mercury in it ) might be connected to her developing FM.

My husbands 1/2 sister developed MS in her 30s and by her early 40s she was

bedridden it was so severe.

My first cousin died in his late 40s from ALS (Lou Gherigs disease)

Lots of Aunts, Mom, and brother all have diabetes...

My family members are walking magnets for autoimmune disorders and I really

worry about what else Andy might develop.

Jan

**************************************Check out AOL's list of 2007's hottest

products.

(http://money.aol.com/special/hot-products-2007?NCID=aoltop00030000000001)

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Hi Diane:

I was a little worried about a flu shot, given that my sister has Lupus, but as

a nurse, I started getting flu shots years ago because it was required.

My 21 year old son with autism has a great immune system (just the occasional

cold) but I have chosen to give him flu shots every year for quite some time,

since he is in close contact with other students and young adults. Neither of

us have had any ill effects...so...the jury may still be out on all of this.

Of course his autism came to the fore right around age 16 months and he did have

the MMR at 15 months...causative or coincidental...who knows?

Ellen

Ellen Garber Bronfeld

egskb@...

Autoimmune Problems

Oh God- I'm not crazy AND NOT alone. Yea, those autoimmune Dz!

Funny thing is 2 years ago, against my better judgement, and the

coaking of my medical field colleages, I took the flu shot for the

very first time. Well, you think I would have known better, as I

have a son that acquired ASD after his 24 month shots right? Well,

ever since, I have been dealing with aches and pains and fatique

similar to Rhuematoid arthritis, but I have not been Dx officially-

as it comes and goes. And developed a horrible Strep infection at

that same time. So, was it the shot I got while a had a strep

infection starting but not colinized enough yet to present symptoms,

or did the shot itself cause my already Dx autoimmune Dz go crazy?

About 6 yrs ago, I WAS officially Dx with a an autoimmune syndrome

called Sjogren's (which has some similar symptoms to R. Arthritis,

but never had the intensity of problems until after that wonderful

(NOT!) flu shot.

Is it possible to get a response from others- (who have kids with

Autism related Dz), as to which parents and or close relatives have

autoimmune issues? I have always wondered, and have in fact, had

this conversation about 1 1/2 yrs ago with another list member.

Please respond, as I would really like to know for further research

related purposes.

Your name is not necessary, just the Sx or named autoimmune Dz would

be great if anyone feels kind enough to help.

Diane S

> >

> >

> > In a message dated 11/22/2007 8:24:36 P.M. Eastern Standard Time,

> > ludwig33@ writes:

> >

> > " is STILL Extra-Special: A Book

> > About an Autism Journey " .

> > I know your husbands book! We have it in the library at the

> autism agency

> > where I have worked for 13 years. It was one of the first

> children's books we

> > had I think.

> > My daughter took part in writing what I think is a wonderful

> children's book

> > called In Our Own Words: Stories by Brothers and Sisters of

> children with

> > Autism. She was 12 when she wrote her story for the book. 11

> other children

> > shared their stories too.

> > My Andy is 22 and for years I have wanted to write a book about

> our

> > experiences with him having Autism, then developing Strep induced

> Tourettes just

> > before he turned 11 and finally getting a diagnosis of Bipolar at

> age 12 1/2. We

> > have had a very rocky journey at times and having a child with

> multiple

> > diagnosis, especially bipolar turns the whole Autism thing on

> it's head.

> > Well, maybe someday...

> >

> > Oh and good luck with your book. I will be looking for it when it

> comes out!!

> >

> > Jan

> >

> >

> >

> >

> >

> > **************************************Check out AOL's list of

> 2007's hottest

> > products.

> > (http://money.aol.com/special/hot-products-2007?

> NCID=aoltop00030000000001)

> >

> >

> >

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I made the same decision--Russ and I both get flu shots and have

since he aged out and went to an adult day agency (he's not there

now--that's for another day). Hubby gets them, since he is a

physician and is exposed to all sorts of nasty stuff on a regular

basis. His office orders enough for all of them and us as well. We

do it around Halloween. No ill affects, thus far, but the year we

didn't get them (remember the shortage?), we were both got sick as

dogs. Hubby got one and was fine.

I think it is a case by case--and family thing. If you have

problems, I believe you.

Marie

> > >

> > >

> > > In a message dated 11/22/2007 8:24:36 P.M. Eastern Standard

Time,

> > > ludwig33@ writes:

> > >

> > > " is STILL Extra-Special: A Book

> > > About an Autism Journey " .

> > > I know your husbands book! We have it in the library at the

> > autism agency

> > > where I have worked for 13 years. It was one of the first

> > children's books we

> > > had I think.

> > > My daughter took part in writing what I think is a wonderful

> > children's book

> > > called In Our Own Words: Stories by Brothers and Sisters of

> > children with

> > > Autism. She was 12 when she wrote her story for the book. 11

> > other children

> > > shared their stories too.

> > > My Andy is 22 and for years I have wanted to write a book

about

> > our

> > > experiences with him having Autism, then developing Strep

induced

> > Tourettes just

> > > before he turned 11 and finally getting a diagnosis of

Bipolar at

> > age 12 1/2. We

> > > have had a very rocky journey at times and having a child

with

> > multiple

> > > diagnosis, especially bipolar turns the whole Autism thing

on

> > it's head.

> > > Well, maybe someday...

> > >

> > > Oh and good luck with your book. I will be looking for it

when it

> > comes out!!

> > >

> > > Jan

> > >

> > >

> > >

> > >

> > >

> > > **************************************Check out AOL's list

of

> > 2007's hottest

> > > products.

> > > (http://money.aol.com/special/hot-products-2007?

> > NCID=aoltop00030000000001)

> > >

> > >

> > >

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Greetings Diane and Jan!

I believe autism spectrum disorders can be precipitated by immunizations in

those with a genetic predisposition to autoimmune disease. I don't consider

lack of colds or flu as proof of a good immune system. My 24-year old Aspie

hasn't had the sniffles or an URI since he was 6 or 7, yet he is one toxic

kid. My developed a continual severe diaper rash after his first shots

(along with constipation, despite my breastfeeding). A month after his third

DPT vaccine, a fungal infection appeared on his toenails, fingernails and

underarms, which sent us off to specialists around Chicago. It took nearly 3

months before a pediatric dermatologist at the U of Chicago diagnosed psoriasis

and asked to take photos of his toes and fingers to show his students. He

had never seen such badly pitted nails in an infant before and was sure

someone else in the family also had psoriasis (NOPE!) It would take me a

further

18 years to realize what had occurred, that psoriasis wasn't just an

inconvenient rash, but an aberration in immune response from T2 to T1

cytokines, an

autoimmune disease.

Following a meningitis vaccine received in England in 2000 (I was

still blindly trusting mainstream medicine to make my health decisions for me

then), again a recurring fungal infection/rash appeared on his back and trunk

(resistant to many different creams and ointments). His brother, neurotypical,

received the same vaccine, and was diagnosed with Chronic Fatigue Syndrome 6

months later. Which makes me wonder what autoimmunity lurks inside of me

-- I know I had a horrible allergic reaction to penicillin in my early 20's

following strep, though I had taken penicillin several times previously for

strep infections.

I think giving vaccines to those on the autism spectrum is playing Russian

roulette. I am wiser now and take responsibility for healthcare decisions by

educating myself. It is not difficult to learn the facts about vaccines --

but it does take time, an open mind and a passion for the truth, wherever it

may lead. Often it leads us where we don't want to know.

Further information:

_informationliberation - Vaccination: The Hidden Truth_

(http://www.informationliberation.com/?id=13924)

_Flu Shot Facts -- Battling Influenza - Articles_

(http://articles.mercola.com/sites/articles/archive/2007/10/23/flu-shot-facts-ba\

ttling-influenza.aspx)

_VRAN: VACCINATION RISK AWARENESS NETWORK - HOME PAGE_

(http://www.vran.org/index.htm)

Withers

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Yes, I believe, that in my son's case, his Autism is related to the many

autoimmune problems in our family, specifically that he was exposed to a virus

in utero that I, as his mother, was not able to protect him from due to my own

compromised immune system. I have ankylosing spondolyiltis, an autoimmune

arthritis in the spine. I think my son had Autism since birth. There was no

regression. He didn't have language until 4 years of age and had many Autistic

behaviors since birth. My brother has Type I diabetes. My nephew has

ulcerative colitis. Many other cousins and relatives have Rheumatoid Arthritis,

Multiple Sclerosis, thyroid disorders, Diabetes, etc.

Our whole family has had the flu shot for many years without any problems.

Maybe I should be more concerned!!

Autoimmune Problems

Oh God- I'm not crazy AND NOT alone. Yea, those autoimmune Dz!

Funny thing is 2 years ago, against my better judgement, and the

coaking of my medical field colleages, I took the flu shot for the

very first time. Well, you think I would have known better, as I

have a son that acquired ASD after his 24 month shots right? Well,

ever since, I have been dealing with aches and pains and fatique

similar to Rhuematoid arthritis, but I have not been Dx officially-

as it comes and goes. And developed a horrible Strep infection at

that same time. So, was it the shot I got while a had a strep

infection starting but not colinized enough yet to present symptoms,

or did the shot itself cause my already Dx autoimmune Dz go crazy?

About 6 yrs ago, I WAS officially Dx with a an autoimmune syndrome

called Sjogren's (which has some similar symptoms to R. Arthritis,

but never had the intensity of problems until after that wonderful

(NOT!) flu shot.

Is it possible to get a response from others- (who have kids with

Autism related Dz), as to which parents and or close relatives have

autoimmune issues? I have always wondered, and have in fact, had

this conversation about 1 1/2 yrs ago with another list member.

Please respond, as I would really like to know for further research

related purposes.

Your name is not necessary, just the Sx or named autoimmune Dz would

be great if anyone feels kind enough to help.

Diane S

> >

> >

> > In a message dated 11/22/2007 8:24:36 P.M. Eastern Standard Time,

> > ludwig33@ writes:

> >

> > " is STILL Extra-Special: A Book

> > About an Autism Journey " .

> > I know your husbands book! We have it in the library at the

> autism agency

> > where I have worked for 13 years. It was one of the first

> children's books we

> > had I think.

> > My daughter took part in writing what I think is a wonderful

> children's book

> > called In Our Own Words: Stories by Brothers and Sisters of

> children with

> > Autism. She was 12 when she wrote her story for the book. 11

> other children

> > shared their stories too.

> > My Andy is 22 and for years I have wanted to write a book about

> our

> > experiences with him having Autism, then developing Strep induced

> Tourettes just

> > before he turned 11 and finally getting a diagnosis of Bipolar at

> age 12 1/2. We

> > have had a very rocky journey at times and having a child with

> multiple

> > diagnosis, especially bipolar turns the whole Autism thing on

> it's head.

> > Well, maybe someday...

> >

> > Oh and good luck with your book. I will be looking for it when it

> comes out!!

> >

> > Jan

> >

> >

> >

> >

> >

> > **************************************Check out AOL's list of

> 2007's hottest

> > products.

> > (http://money.aol.com/special/hot-products-2007?

> NCID=aoltop00030000000001)

> >

> >

> >

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WOW !

Your story brought back even more thoughts to me about Andy.

Andy is RARELY ever ill. Nothing more than minor colds that don't even last

more than a few days. Other than that his only illness has been couple of ear

infections but only maybe 2 or 3 max in the last 10 years. He doesn't get

stomach bugs ever (hasn't had one of those since he was maybe 7) he just

doesn't get sick ever.

On the other hand he has had almost constant diarrhea for 18 months. I have

tried all kinds of probiotics and even tried sacromyces boulardi (a specific,

and very strong type of probiotic) but nothing helps.

I know this means his immune system is screwed up.

Right after birth Andy had a nasty case of thrush. Over the last few years

he has had a number of fungal infections on his trunk. The last time we used

this lotion and got rid of it but it came back... His new GP doc says these

are common but I've never even heard of anyone getting one of these. She says

that after he gets rid of it if we have him wash his trunk once or twice a

week with selsen blue (shampoo) it shouldn't come back. Still I think this is

kind of odd.

He now has something going on with the skin on his face. It looks like he is

loosing his pigment (and he is fair skinned) all around his side burns and

around his ear and going down towards his neck. In the right light it looks

very strange. I've been wondering if that is some kind of fungal infection

too...

it's all very odd and I have no doubt all these things are related to his

immune problems

Jan

**************************************Check out AOL's list of 2007's hottest

products.

(http://money.aol.com/special/hot-products-2007?NCID=aoltop00030000000001)

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Dear Jan,

Perhaps Andy's gastrointestinal problems could be addressed by Dr. Arthur

Krigsman, who works with Andy Wakefield at Thoughtful House in Austin, Texas.

Dr. Krigsman still has offices in New York, so you may be able to get there

more easily. You can find out more about the gut/brain connection and

download his presentations from conferences at this website:

_www.thoughtfulhouse.org_ (http://www.thoughtfulhouse.org)

There is absolutely a connection with bowel problems and immune function.

My still has constipation problems, and 7 years after his meningitis

vaccine. the rash on his trunk and back is undiminished. The dandruff shampoo

in the bath trick only treats a symptom, it does nothing to address the reason

for the skin rash, which is a shift in immune system. A natural medicine

doctor recently took one look at 's chest and said " that's a vaccine

reaction! " . I have been trying to locate a DAN practitioner in the Chicago

area

who will treat ASD adults. We have some excellent ones (Dr. Anju Usman,

especially), but they are swamped with newly-diagnosed children and limit

themselves to pediatrics. If anyone knows of any doctors treating young adults

with

a DAN protocol, please let me know!

I would like to discuss this further with you off-list.

Withers

_Patswithers@..._ (mailto:Patswithers@...)

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So interesting, Pat! Especially as a nurse, I find your son's case really

fascinating.

I think, given your son's and others possible reactions to immunizations and

others, such as my son's, totally benign experience with vaccines, that the only

thing we can conclude is that there appears to be a wide range of experiences

associated with immunizations. Just as our children have a very diverse

behavioral and cognitive profile, so too, they have varied immunological

profiles.

I guess the best we can do for our children is be aware of all of the

possibilities and make decisions based on our " instincts " and what we observe

with our own children.

To be honest, I still recommend immunizations for infants, but more widely

spaced. Any signs or symptoms of autoimmune dysfunction either prior to any

immunications or after SHOULD be taken seriously and might then require a

rethinking about initial or further immunizations. I agree about learning facts

and taking responsibility for healthcare decisions, especially with regard to

our children.

Ellen

Ellen Garber Bronfeld

egskb@...

Re: Autoimmune Problems

Greetings Diane and Jan!

I believe autism spectrum disorders can be precipitated by immunizations in

those with a genetic predisposition to autoimmune disease. I don't consider

lack of colds or flu as proof of a good immune system. My 24-year old Aspie

hasn't had the sniffles or an URI since he was 6 or 7, yet he is one toxic

kid. My developed a continual severe diaper rash after his first shots

(along with constipation, despite my breastfeeding). A month after his third

DPT vaccine, a fungal infection appeared on his toenails, fingernails and

underarms, which sent us off to specialists around Chicago. It took nearly 3

months before a pediatric dermatologist at the U of Chicago diagnosed

psoriasis

and asked to take photos of his toes and fingers to show his students. He

had never seen such badly pitted nails in an infant before and was sure

someone else in the family also had psoriasis (NOPE!) It would take me a

further

18 years to realize what had occurred, that psoriasis wasn't just an

inconvenient rash, but an aberration in immune response from T2 to T1

cytokines, an

autoimmune disease.

Following a meningitis vaccine received in England in 2000 (I was

still blindly trusting mainstream medicine to make my health decisions for me

then), again a recurring fungal infection/rash appeared on his back and trunk

(resistant to many different creams and ointments). His brother, neurotypical,

received the same vaccine, and was diagnosed with Chronic Fatigue Syndrome 6

months later. Which makes me wonder what autoimmunity lurks inside of me

-- I know I had a horrible allergic reaction to penicillin in my early 20's

following strep, though I had taken penicillin several times previously for

strep infections.

I think giving vaccines to those on the autism spectrum is playing Russian

roulette. I am wiser now and take responsibility for healthcare decisions by

educating myself. It is not difficult to learn the facts about vaccines --

but it does take time, an open mind and a passion for the truth, wherever it

may lead. Often it leads us where we don't want to know.

Further information:

_informationliberation - Vaccination: The Hidden Truth_

(http://www.informationliberation.com/?id=13924)

_Flu Shot Facts -- Battling Influenza - Articles_

(http://articles.mercola.com/sites/articles/archive/2007/10/23/flu-shot-facts-ba\

ttling-influenza.aspx)

_VRAN: VACCINATION RISK AWARENESS NETWORK - HOME PAGE_

(http://www.vran.org/index.htm)

Withers

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DAN (Defeat Autism Now) was a think tank begun by Dr. Bernard Rimland of the

Autism Research Institute to discover treatments for the medical problems

related to autism. From their website:

Defeat Autism Now! is dedicated to educating parents and clinicians

regarding biomedically-based research, appropriate testing and safe and

effective

interventions for autism. Since 1995, ARI has convened recurring meetings for

carefully selected physicians, researchers, and scientists committed to finding

effective treatments for autism. Their work has become known as Defeat

Autism Now!

Parents and clinicians who do not regard psychotropic drugs as the best or

only means of treating autistic patients will welcome this chance to learn

effective strategies for addressing the medical illnesses associated with

autism

_http://www.autism.com/dan/index.htm_ (http://www.autism.com/dan/index.htm)

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This might seem like a strange question, but what does DAN stand for?

Maureen

Patswithers@... wrote: Dear Jan,

Perhaps Andy's gastrointestinal problems could be addressed by Dr. Arthur

Krigsman, who works with Andy Wakefield at Thoughtful House in Austin, Texas.

Dr. Krigsman still has offices in New York, so you may be able to get there

more easily. You can find out more about the gut/brain connection and

download his presentations from conferences at this website:

_www.thoughtfulhouse.org_ (http://www.thoughtfulhouse.org)

There is absolutely a connection with bowel problems and immune function.

My still has constipation problems, and 7 years after his meningitis

vaccine. the rash on his trunk and back is undiminished. The dandruff shampoo

in the bath trick only treats a symptom, it does nothing to address the reason

for the skin rash, which is a shift in immune system. A natural medicine

doctor recently took one look at 's chest and said " that's a vaccine

reaction! " . I have been trying to locate a DAN practitioner in the Chicago

area

who will treat ASD adults. We have some excellent ones (Dr. Anju Usman,

especially), but they are swamped with newly-diagnosed children and limit

themselves to pediatrics. If anyone knows of any doctors treating young

adults with

a DAN protocol, please let me know!

I would like to discuss this further with you off-list.

Withers

_Patswithers@..._ (mailto:Patswithers@...)

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Those of you not in the Autism world may not know DAN stands for

Defeat Autism Now.

Marie

Dear Jan,

>

> Perhaps Andy's gastrointestinal problems could be addressed by

Dr. Arthur

> Krigsman, who works with Andy Wakefield at Thoughtful House in

Austin, Texas.

> Dr. Krigsman still has offices in New York, so you may be able

to get there

> more easily. You can find out more about the gut/brain

connection and

> download his presentations from conferences at this website:

> _www.thoughtfulhouse.org_ (http://www.thoughtfulhouse.org)

>

> There is absolutely a connection with bowel problems and immune

function.

> My still has constipation problems, and 7 years after his

meningitis

> vaccine. the rash on his trunk and back is undiminished. The

dandruff shampoo

> in the bath trick only treats a symptom, it does nothing to

address the reason

> for the skin rash, which is a shift in immune system. A natural

medicine

> doctor recently took one look at 's chest and said " that's

a vaccine

> reaction! " . I have been trying to locate a DAN practitioner in

the Chicago area

> who will treat ASD adults. We have some excellent ones (Dr.

Anju Usman,

> especially), but they are swamped with newly-diagnosed children

and limit

> themselves to pediatrics. If anyone knows of any doctors

treating young adults with

> a DAN protocol, please let me know!

>

> I would like to discuss this further with you off-list.

>

> Withers

> _Patswithers@..._ (mailto:Patswithers@...)

>

>

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Hi fellow listmates..... In a previous email I happened to mention

how the flu shot made me have worsened symptoms of an already

existent autoimmune dz.... I thank everyone for their responses. I

agree the jury is still out on the vaccines, flu shots etc.....

Mainly what I wanted to know was- how many listmates whose kids have

been Dx with ASD or related disorders, parent and or siblings and or

close relatives have an autoimmune disorder? Thus making children of

parents with autoimmune disorders or strong family history of

autoimmune disorders as having a higher rate of having children Dx

with ASD.

Thanks,

Diane

> > >

> > >

> > > In a message dated 11/22/2007 8:24:36 P.M. Eastern Standard

Time,

> > > ludwig33@ writes:

> > >

> > > " is STILL Extra-Special: A Book

> > > About an Autism Journey " .

> > > I know your husbands book! We have it in the library at the

> > autism agency

> > > where I have worked for 13 years. It was one of the first

> > children's books we

> > > had I think.

> > > My daughter took part in writing what I think is a wonderful

> > children's book

> > > called In Our Own Words: Stories by Brothers and Sisters of

> > children with

> > > Autism. She was 12 when she wrote her story for the book. 11

> > other children

> > > shared their stories too.

> > > My Andy is 22 and for years I have wanted to write a book about

> > our

> > > experiences with him having Autism, then developing Strep

induced

> > Tourettes just

> > > before he turned 11 and finally getting a diagnosis of Bipolar

at

> > age 12 1/2. We

> > > have had a very rocky journey at times and having a child with

> > multiple

> > > diagnosis, especially bipolar turns the whole Autism thing on

> > it's head.

> > > Well, maybe someday...

> > >

> > > Oh and good luck with your book. I will be looking for it when

it

> > comes out!!

> > >

> > > Jan

> > >

> > >

> > >

> > >

> > >

> > > **************************************Check out AOL's list of

> > 2007's hottest

> > > products.

> > > (http://money.aol.com/special/hot-products-2007?

> > NCID=aoltop00030000000001)

> > >

> > >

> > >

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