Guest guest Posted October 26, 2006 Report Share Posted October 26, 2006 Hey NEWBIES. . .1st of all, I want to WELCOME you to the Group that no one wants to be a member; but glad that you found us early in your survival. Don't hesitate to post any and all questions and/or concerns to the group. Your brother & sister survivors have been there/done that and are here for you. At diagnosis 11/2003, I was 800,000+ per Million, with 15 other fatal/terminal/chronic diseases. . .all of which I call Chronic Illnesses. My Oncologist gave me a referral to the Cancer Center in my area and 2 months mortality. During my consultation, 12/18/2003 the Specialist at the UMCCC gave me the stats on BMTs at 30%+ die in first 3 months and over 50% die in first year. Due to my other health issues, I was not a candidate, thought I wouldn't go that route if I were with the stats available today; and I was given 2-5 months morbid mortality. " Man points. . .GOD Appoints " ! ! ! I came home, had a 2 1/2 week pity party and then I armed myself to fight the battle of my life. . .for my life. I went through H**L as my body adjusted to the Gold~Gleevec I reached " 0/Negative " on the FISH Test and became #811 on Zavie's list in January 2005. On September 1, 2006; I received the results of my 2nd RT-PCR Test 0.00136,(1st~12/2005--I've come a 'long way' from diagnosis). I guess the best advice I can give to a Newbie is. . .RELAX--let your body adjust to our Gold & ENJOY--your new Life as a Survivor. If something doesn't seem right. . .it isn't. Run, do not walk, RUN to your nearest ER, PCP or medical facility. I had chest pains--ER--2 heart attacks--2 Stents implanted. I shudder when I think of the 5xs that I took Maalox and laid down. Dr. Drucker~Father of Gleevec stated at the ASH Conference in December that our bug is truly a Chronic disease, much like Diabetes, with a newly diagnosed person having a 25-year mortality; with only 51 months of scientific documentation available. We now have the AMS & BMS medications, the Vaccine, and 18 other medications on the horizon. Not to mention the BMT, which I don't consider a 'cure' because GVHD is a Killer; it is my opinion that the cure's in the SCT. (my 2 cents). Dr. Talpaz~Father of CML is at UM doing SC research. As I begin celebrating the 4th year of my new life as a Survivor, I truly know that 'every day is a Gift from GOD'! I AM A SURVIVOR. . .I AIN'T FINISHED YET ! ! ! Take care. . . I have added you to my prayers. *Note: I was able to email each Newbie years ago, now I post to the Group. I pray its not that more of us are being diagnosed. . .that more of us are finding the group. Has anyone seen any statistics on this, I was told my an Oncologist in '04 that there were approximately 4,000 Survivors worldwide. (?) " K " " K " " I AIN'T FINISHED YET " !!! Quote Link to comment Share on other sites More sharing options...
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