Guest guest Posted March 8, 2006 Report Share Posted March 8, 2006 Hi all, I had the second BMB earlier. They did the first important part only today, said the more painful biopsy was not necessary this time. That was last done for diagnosis 3 months ago. I took an Ativan before hand and it hurt heaps, I reckon I nearly squeezed Yianis' hand off! I am sore but it is bearable. My platelets are down and so is my haemoglibin due to heavy, irregular periods. I was offered a transfusion yesterday but said no for the moment. I have been put on the pill to stop the bleeding and Iron and Folate tablets and they will monitor the counts twice a week. said the Glivec is causing this, marrow suppression. The Registrar at the hospital asked him if he was prepared to lower my dose of Glivec but he said no and that he was 'happy' with things for the moment, but to have it monitored closely. I feel as if I need heaps of rest and sleep, but psychologically my work keeps me going. Jackie Quote Link to comment Share on other sites More sharing options...
Guest guest Posted July 26, 2007 Report Share Posted July 26, 2007 O!!! YIPPEEE!!! Number 1080 in the Zero Club Zavie Zavie (age 69) 67 Shoreham Avenue Ottawa, Canada, K2G 3X3 dxd AUG/99 INF OCT/99 to FEB/00, CHF No meds FEB/00 to JAN/01 Gleevec since MAR/27/01 (400 mg) CCR SEP/01. #102 in Zero Club 2.8 log reduction Sep/05 3.0 log reduction Jan/06 2.9 log reduction Feb/07 3.2 log reduction Jun/07 e-mail: zmiller@... Tel: 613-726-1117 Fax: 309-296-0807 Cell: 613-202-0204 ID: zaviem _____ From: [mailto: ] On Behalf Of lunaemica@... Sent: July 26, 2007 10:31 AM Subject: [ ] BMB Hey guys, Just got a call yesterday from the nurse at my new onc. Don't love the new onc BTW but he's close to home and I can use my local PCP who I love so I'll deal. Anyway, the nurse said my BMB came back and that, 'the results were perfect' and that, 'there were no leukemic cells' so does that mean that I would be part of the zero club now? I asked her what my last PCR was but she didn't have the info. The new onc just says things are 'going good' each time I see him. I still have the awful side effects, BAD diareah, severe fatigue, sometimes insomina, very bad bone/muscle/joint pain, nausia, etc. which I tell the doc of but he just says these are normal...which is what I heard, so I'm OK with that. I'm alive and kicking and I'm hanging in there. :} Quote Link to comment Share on other sites More sharing options...
Guest guest Posted July 27, 2007 Report Share Posted July 27, 2007 Congratulations. I know side effects are annoying and we are learning how to live with those side effects. T -------------- Original message -------------- From: " lunaemica@... " <lunaemica@...> Hey guys, Just got a call yesterday from the nurse at my new onc. Don't love the new onc BTW but he's close to home and I can use my local PCP who I love so I'll deal. Anyway, the nurse said my BMB came back and that, 'the results were perfect' and that, 'there were no leukemic cells' so does that mean that I would be part of the zero club now? I asked her what my last PCR was but she didn't have the info. The new onc just says things are 'going good' each time I see him. I still have the awful side effects, BAD diareah, severe fatigue, sometimes insomina, very bad bone/muscle/joint pain, nausia, etc. which I tell the doc of but he just says these are normal...which is what I heard, so I'm OK with that. I'm alive and kicking and I'm hanging in there. :} Quote Link to comment Share on other sites More sharing options...
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