Guest guest Posted May 6, 2006 Report Share Posted May 6, 2006 At 11:54 PM 5/5/06 +0000, you wrote: >I posted a short time ago that I would take a gleevec vacation and >have throat surgery (vocal chords)and let the group know how I made >out. Surgery was successful. I speak much better. It was a great week >without those side effects. My wife said so. But the purpose of this >post is some really great news. Just had Fish and PCR. Fish was >negative. PCR was 0.0005! that's the lowest ever. I was diagnosed late >Dec of 2002, started gleevec Feb 03. I went from 400 mg to 600 to >800mg. At present I am on 600. I'll be 66 on June 20. I read your >posts daily and appreciate them all. You have my prayers and I >appreciate yours. Best regards. Nick Woods Congratulations Nick.....those are great results.....and if you are saying that it took about 3 years to get there, that is encouragement for other slow responders. I am curious about the vocal chord surgery.....was the problem a side effect of Gleevec? When I was on Gleevec, 800mg (I am now on BMS) I had vocal chord edema which was considered a side effect of Gleevec......on BMS I do not have this problem, or any of the other edema problems that I had. My best wishes, C. Quote Link to comment Share on other sites More sharing options...
Guest guest Posted May 6, 2006 Report Share Posted May 6, 2006 > >> > > Congratulations Nick.....those are great results.....and if you are saying > that it took about 3 years to get there, that is encouragement for other > slow responders. > > I am curious about the vocal chord surgery.....was the problem a side > effect of Gleevec? When I was on Gleevec, 800mg (I am now on BMS) I had > vocal chord edema which was considered a side effect of Gleevec......on BMS > I do not have this problem, or any of the other edema problems that I had. > > My best wishes, > C. > , My vocal chords were bowed out, said my otolaryngologist, by prolonged use of corticosteroid inhalers for asthma, and they wouldn't resonate anymore. Bad news for a preacher! So he put permanent rubber shims beside the chords to push them together. Now I can talk properly and even sing again. Truth to tell, I have been on 600 mg for a long time and it seems to me that there have been times when my throat seemed swollen inside, but never diagnosed as vocal chord edema. Appreciate your response. Best wishes to you. Nick W Quote Link to comment Share on other sites More sharing options...
Guest guest Posted May 6, 2006 Report Share Posted May 6, 2006 At 04:39 AM 5/6/06 +0000, you wrote: >, My vocal chords were bowed out, said my otolaryngologist, by >prolonged use of corticosteroid inhalers for asthma, and they >wouldn't resonate anymore. Bad news for a preacher! So he put >permanent rubber shims beside the chords to push them together. Now I >can talk properly and even sing again. Truth to tell, I have been on >600 mg for a long time and it seems to me that there have been times >when my throat seemed swollen inside, but never diagnosed as vocal >chord edema. Appreciate your response. Best wishes to you. Nick W The vocal chord edema is a relatively uncommon side effect of Gleevec. When Dr. Talpaz at MD saw me in consult, he said I was one of the 3 worst cases he had seen! but I think I was actually worse that day because of the long flight to Houston (and the bad plane air). In the AM especially I sounded raspy.....and on the phone people who did not know me would always ask if something was wrong, like I was crying. It was a bit embarrassing. The more I talked the better I sounded.......until the end of the day when I was tired. I also had some edema in one ear and when I used a diuretic, I think it helped both problems a bit. Glad you can preach and sing again! Quote Link to comment Share on other sites More sharing options...
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