Re: Digest Number 382

October 1, 1999

,

I am so happy that the rubber ball is working for you. I've talked about it

here and there, so it might have been that I was the someone that mentioned

the ball on this list. I have a " Biggins " which is sold at toy stores, is

about three feet in diameter and when I bought it for my kids just a few

years ago it was $20. For those of you that have kids, the kids love it and

their friends always go to it like a magnet. So overall it's a good

investment.

Though it's great that the ball helped you, I've been too fatigued lately to

get on the ball myself. Your testimonial will help motivate me to try it

again as soon as I am able.

BarbS

<< A while back, someone on this board mentioned a large rubber ball for

bouncing. I bought one and its terrific. It's called Resist-a-Ball and

available at sporting goods stores for about $30. The 55cm. (almost 2

feet)diameter ball size works well. You can just sit on it and bounce.

Other then stretching, it's the only exercise I can get. I can't stand up

long enough to use the mini-trampoline. It definitely has been beneficial.

>>

February 1, 2000

Digest Number 382

>

> ---------------------------

June 13, 2000

: i my self would print out Biamonte's web site.

She should be informed about the :

!. Diet

2. Die-off & what to expect and do for it.

3. How smart the yeast is.

4. Rotation for meds in order to trick the yeast.

5. Parasites.

6. Cleansing or a good fiber along with the diet, meds to help it along.

7. Testing! (more than once, quite ofton)

8. Which Herbs does what.

9. How long does she think this will take to get rid of it? ( longer than

3 months at least)

Maybe someone else can give you more ideas. let us know what happens!

Mogdrmom

June 13, 2000

Hello everyone. I have an appointment with an MD who practices alternative

medicine tomorrow. I know nothing about this woman, except that she is

around 50. What questions might I ask her to determine her competence and to

assess whether she has stayed current regarding the latest research and

treatments? Also, can you suggest any web pages I should print out and

bring with me?

Thanks,

August 28, 2000

I wished people would stop saying their questions are 'ignorant'...

Ignorance is NOT asking a question.

NO question is ignorant or silly....

The only silliness is someone to afraid to ask.

Also, addressing themselves as ignorant, also deters others from asking

questions for fear they may be called 'stupid, dumb, ignorant, idiot,

silly'...

None of us are those things..

We are all smart, intellegent people...who ask questions for knowledge.

As my Mom says

" Knowledge is Power, and the way to get knowledge is by asking questions and

LISTENING to the answers, and on occasion, challange the question, but never

be afraid to ask the initial question "

(sounds pretty preachy coming from me...but I just get so sad when i see

someone say they're questions are ignorant....because YOU'RE NOT)..

Anyways...

My question..

Is emu oil good for your skin? And how is it good for your skin? Can you use

it only in soaps, or can you use it for shampoos, and lotions too? Ive never

used this, and would like to hear peoples success-failers on this.

i just found out the poor animals actually are killed to get this (i wouldnt

have bought it had i known it...but now wont waste it, or its had its life

taken in TOTAL vain & wont buy it again)...

Thanks.

Keep them questions rollin...

Blessings..

Moe

September 8, 2000

<< Mark gets 1 mg in the am and 2 at bedtime, at noon he gets 1/2 of a .5 mg

of

clonidine...chills his butt out...Just a thought.

Jeannie >>

Hi, Everyone........Jeannie.......... Does this Clonidine do the same as

Ritalin or does Mark also get Ritalin? Does he have the OCD problems really

bad like Gareth? Gareth gets 2 mg of Risperdal am and 2 mg at bedtime. He

takes Ritalin at 8 am and noon for school. He's can also be nasty in the

afternoons, but I figured it was because he was coming off the Ritalin. It's

not something that's a big problem. I guess there are more serious

behaviors to be concerned about for Gareth.

Take care, Everyone.

Margaret

September 8, 2000

In a message dated 9/8/00 5:12:41 PM Pacific Daylight Time, mfroof@...

writes:

<< He's can also be nasty in the

afternoons, but I figured it was because he was coming off the Ritalin. >>

Margaret,

Mark tried Ritalin, the regular and the time released. He is a tiny thing

anyway, so when he was on ritalin, he did not eat, had trouble sleeping...one

neurologist wanted him off of it as it can cause aggressiveness in DS

children. Mark takes the clonidine for ADHD.

Jeannie

Mom to Mark and

September 8, 2000

In a message dated 9/8/00 9:08:19 PM Eastern Daylight Time,

stolzfamily@... writes:

<< Major headache time-maybe I am getting migranes as they seem to be very,

very, bad and directly related to periods. Cant' think in full sentences.

Prayer, please.

Thanks

S >>

Feel better . (((((hugs)))))

Gail

September 8, 2000

>

> << He's can also be nasty in the

> afternoons, but I figured it was because he was coming off the

> Ritalin. >>

>

Mattt had a psychiatrist visit this afternoon. She wants to add time

released Ritalin in addition to Risperdal and Naltrexone. He was on

regular Ritalin for many years (About 7 years), when in December after

surgery, he developed a tic related to Ritalin. So we discontinued it,

but she wants to try again, this time with time released stuff. I am

changing the administration time of Risperdal, from bedtime to right

after school and see if that helps the late afternoon/evening melt downs.

She did suggest a psychologist experienced with

moderately-severely-profoundly retarded people and behavior modification

stuff. I'll have to check and see if she is on our insurance. Probably

not! I may pay out of pocket anyway.

Also had the determination meeting this morning where they said

officially that he has autism! ISnt' that wonderful??? I have been

telling them for a year, but they now agree. Meeting actually went well.

Thank goodness.

Lori- don't give up. YOu are teaching your children (both of them) much

more than academics. And, try " testing " him again later. It is very

common to " forget " lots of things, and then " remember " them later. He may

be having an off day. Find a way to " play " like your felt board idea,

and that will prove that he does indeed know it.

Major headache time-maybe I am getting migranes as they seem to be very,

very, bad and directly related to periods. Cant' think in full sentences.

Prayer, please.

Thanks

S

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September 9, 2000

In a message dated 09/08/2000 8:08:18 PM Central Daylight Time,

stolzfamily@... writes:

<< Major headache time-maybe I am getting migranes as they seem to be very,

very, bad and directly related to periods. Cant' think in full sentences.

Prayer, please. >>

, hormones are a wonderful thing, aren't they? (heavy sarcasm) I hope

you feel better soon and your headaches stop. I used to get whopper PMS

headaches - I would know when my period was coming by the headache. They

lasted a few years consistently and now I only get them occasionally.

Sending a prayer your way,

Maureen

September 9, 2000

<<Major headache time-maybe I am getting migranes as they seem to be

very,

very, bad and directly related to periods. Cant' think in full sentences.

Prayer, please.

Thanks

S>>

I'm sorry to hear this , you have my prayer. I'm happy you

have agreement about Matt and his dx. How old is he again?

The other Gail

September 15, 2000

does anybody know if this diet would help with low blood pressure

thanks jerry j.

December 18, 2000

Dear Connie:

Your situation may be slightly different than most concerning

vision, because of your diabetes, and some other situations. But, there

are many cases of vision changing when on interferon. Some have seen

their vision getting worse during therapy, and that is why it is

suggested not to wear contacts during therapy.

The positive thing is that, after therapy is stopped, many find

their vision has improved. This also happened to Debbie. After she

finished, she found that her reading vision was improved, and she finds

reading with glasses harder for these, but, her distance vision is about

the same as pre-therapy.

I have many patients that have experienced the same thing, but,

there is no way of telling until everything is completed. Most, if there

are no other outside factors, either stay the same, or get better. Marty

December 18, 2000

Dear Connie:

Your situation may be slightly different than most concerning

vision, because of your diabetes, and some other situations. But, there

are many cases of vision changing when on interferon. Some have seen

their vision getting worse during therapy, and that is why it is

suggested not to wear contacts during therapy.

The positive thing is that, after therapy is stopped, many find

their vision has improved. This also happened to Debbie. After she

finished, she found that her reading vision was improved, and she finds

reading with glasses harder for these, but, her distance vision is about

the same as pre-therapy.

I have many patients that have experienced the same thing, but,

there is no way of telling until everything is completed. Most, if there

are no other outside factors, either stay the same, or get better. Marty

February 21, 2002

Someone mentioned that Dr. ll Erwin has retired. Does anyone know if

he has referred his patients to another doctor in Houston?

Also, has anyone had any luck with a corset? I wore one for about 3 months

after my cast came off.....oh...24 years ago. LOL I doubt it would still

fit. ;-) But I'm wondering if having another one fitted would be

beneficial. I'm concerned about getting " dependent " on it. Would it weaken

the muscles even more? We just found out we are pregnant with our 5th

natural child. I am trying to be very careful with my back right from the

beginning, so I don't have any problems during the pregnancy. I also have a

problem with severe varicose veins in one leg only. My whole right leg

swells and turns blue, while the other leg doesn't even have a spider vain!

My dr. is convinced it's because of the fact my scoliosis has the baby

positioned funny, possibly sitting on an artery or something. Therefore,

I'm considering one of those " maternity back support belts. " Apparently it

" lifts " the baby up and supports your back with metal stays. Has anyone

tried this with good results?

I seem to be having more frequent lower back pain (even before pregnancy).

As an update, I have a 78 degree S curve (post surgery). The curve is

higher up. In fact it caused me to lose about half my lung capacity. I'm

wondering why this would cause so much lower back pain, while I have

virtually no pain elsewhere. The pain is right at the spot where my scar

make an indention in my back. Does that make sense? Also, does anyone else

have a hyper-sensitive scar? I absolutely can't stand to have my scar

touched. Not that it's necessary, but I'm just wondering if this is common.

Sorry to have rambled, it's just so unique for me to have anyone in the

world to talk to that could even possibly understand some of what I deal

with in this area.

In His Service,

Mc

mcmom@...

Joyful Wife of my beloved

Thankful Mother of , Christa, , , , Caleb,

Abigail, Virginia Grace, our Little One yet being formed in the womb, and

our Little One in Heaven

VISIT OUR WEBSITE

www.patriarchspath.org

VISIT OUR DISCUSSION BOARD

http://www.patriarchspath.org/wwwthreads/wwwthreads.php?Cat=

Behold, children are a gift of the Lord; the fruit of the womb is a reward.

Like arrows in the hand of a warrior, so are the children of one's youth.

How blessed is the man whose quiver is full of them; they shall not be

ashamed, when they speak with their enemies in the gate. Psalm 127:3-5

December 2, 2002

Dave,

I am wondering if you could tell me anyhting about Abilitly Camp. I am

scheduled to take my 5 year old son there in Feb. I am not sure if this will

happen or not yet, only because Connor is still wearing a Halo, due to his

accident, and due to the recent surgery he had to fuse C1 and C2 of his

vertebrea. I need this removed before we go.

I have contacted them and feel very excited about their program. I am

feeling very nervous to be away from my other 2 children, but have been

contacted by their facility and felt such a warm and loving feeling over the

phone!

It seems to me from reading your post you will be newbies too, if I am wrong,

I will be very excited about your knowelege of the camp. If I am right

about your newbie status, regardless, we will be getting there when you will

be leaving. We are currently scheduled for the Feb 10 - Mar 14 time frame.

Maybe we can meet? All of this depends on the Halo of course, but we are

pretty cretain it will be removed before our intended departure.

The plan is, my husband will drive us there, then he will fly home. My car

is an Intrepid, sports addition. Now my husband is worried if that will get

us through the snow. We have discussed the 3 of us flying in, and renting a

4 wheel drive for the 5 weeks my son and I are there.

I was just wondering if you can give me any insights or information. One of

my biggest concerns, in addition to all obvious, is being isolated for the 5

weeks I am there. We have a cell phone, with free long distanse, but don't

know if Canada is in the plan. My other biggest concern is staying in touch

with all my on line support groups.......... is their a computer to access?

I will be leaving my 8 year old son, and 7 year old daughter to come for this

therapy for my 5 year old son, who sustained a TBI on 7/07/02. My other 2

children had a very hard time adjusting to my being gone for the 7 weeks of

initial Rehab......... and we were only an hour away, and they came every

weekend. I know this will not be possible when we go to Canada, I have been

a stay at home Mom since my oldest was born.

Any help you can give me will be greatfully received.

Tiffant (Connor 5, TBI 7/02)

December 2, 2002

Tiffant,

Our knowledge of Ability camp is only based on what we have read in documents

and on the net as well as our conversations on the phone with Sandy. We will be

renting another van or full-size car and driving up our van full of 's

stuff as well. My wife is a stay at home mom as you are and our two daughters,

ages 10 and 8, will miss her. Being snowed into the camp for 5 weeks is a

disconcerting feeling. Hopefully it won't happen. Toronto is quite a long way

from Picton, so we ruled out flying into or out of Toronto. I hope that Sprint

PCS works in Picton as well. Cell Phone communication made my trip to Florida to

Ocean Hyperbaric Institute, with much easier. My wife will be in the

same boat that you will be in, only a month earlier. I appreciate the hardships

that you have expressed. We also have good/hopeful expectations of progress for

our son. If you want to send me your phone number directly, off of this

listserve, send it to snowflakes@... and perhaps my wife will be able

to call you from camp in January in order to give your her impressions. Thanks

for posting this email. Take Care and God Bless.

Dave Snow

-- Re: [ ] Digest Number 382

> Dave,