Guest guest Posted December 9, 2004 Report Share Posted December 9, 2004 Here is a link on Dr. shippen. http://www.maxsportsmag.com/science/issue14/14s1.htm Phil Summers <rsummers@...> wrote: One point that Dr. Shippen makes in his book " The Testosterone Syndrome " and should be the main point in hypogonadism and aging in general, is that when the body no longer has all the hormones it needs to have a very active sexual ability and activity, then the body no longer deems it necessary to continue to keep the body alive. It is mother nature's way of getting rid of all the old " no longer able to reproduce " people. ------- That is absolutely remarkable. While at my lowest point before finding HRT that worked, I developed an appetite loss - it seemed like too much trouble to eat or drink nutritious foods. Also had a strange aversion to being touched and the really bizarre symptom was a recurring vision, strangely not unpleasant, of lying out on the desert as a skeleton with the sun bleaching my bones. I reached the conclusion that this was indeed my body signalling me to leave the important resources for the younger members of the herd and to go off by myself and die. I *must* get a copy of that book! Quote Link to comment Share on other sites More sharing options...
Guest guest Posted February 7, 2005 Report Share Posted February 7, 2005 , welcome sweetie! Tell us a little about yourself. Where are you from? Do you have hobbies or interests? I am a very proud single mom & grandma, I have kids from 29 to almost 18. I'm an old school Jesus Freak! I love antiques and " junk " shops, vintage clothes & jewelry, cooking, reading, and especially studying the Bible. I have psor. arth, fibro, and " overlapping diagnoses. " whatever that means. makes me sound like a patchwork quilt, which is probably not too far off! I am so sorry you are hurting, and any time you need to talk or rant or whatever, I'm in and out of the group several times a day unless work is crazy. You will find a lot of wonderful supportive people in this group and more information than I have found anywhere else to help us stay current on medical advances. God bless & hang in there. Jane > > > Hi all; > I just joined this group to educate myself and learn all i can about > this disease. i am 23 and have been preliminary diagnosed. the worst > is my knees and feet, but it also affects my shoulders, elbows neck > and fingers...wrists, ankles. pretty much everything at some point > or another! its so frustrating, i cannot even get out of bed in the > morning. so i guess i am just looking for any info or insight re: > treatment, coping, day to day tips, etc., medication, exersise... > i just joined a gym and have been using the eliptical machine as it > does not put as much pressure on my knees. my aunt has RA terrible in > her legs, and while i am not a size 0 i wouldnt say i am terribly > overweight... > so thats my story...looking forward to meeting all of you and sharing > experiences. > thanks for listening! > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted February 7, 2005 Report Share Posted February 7, 2005 , welcome sweetie! Tell us a little about yourself. Where are you from? Do you have hobbies or interests? I am a very proud single mom & grandma, I have kids from 29 to almost 18. I'm an old school Jesus Freak! I love antiques and " junk " shops, vintage clothes & jewelry, cooking, reading, and especially studying the Bible. I have psor. arth, fibro, and " overlapping diagnoses. " whatever that means. makes me sound like a patchwork quilt, which is probably not too far off! I am so sorry you are hurting, and any time you need to talk or rant or whatever, I'm in and out of the group several times a day unless work is crazy. You will find a lot of wonderful supportive people in this group and more information than I have found anywhere else to help us stay current on medical advances. God bless & hang in there. Jane > > > Hi all; > I just joined this group to educate myself and learn all i can about > this disease. i am 23 and have been preliminary diagnosed. the worst > is my knees and feet, but it also affects my shoulders, elbows neck > and fingers...wrists, ankles. pretty much everything at some point > or another! its so frustrating, i cannot even get out of bed in the > morning. so i guess i am just looking for any info or insight re: > treatment, coping, day to day tips, etc., medication, exersise... > i just joined a gym and have been using the eliptical machine as it > does not put as much pressure on my knees. my aunt has RA terrible in > her legs, and while i am not a size 0 i wouldnt say i am terribly > overweight... > so thats my story...looking forward to meeting all of you and sharing > experiences. > thanks for listening! > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted February 7, 2005 Report Share Posted February 7, 2005 Hello again, and thanks everyone for the kind words. Like i said, I am 23, i live right outside of Philadelphia. I work at the software company SAP America as a contractor for IT support. I went to the Catholic University of America in Washington DC. Now, i live at home with my mom and sister (20). I enjoy spending time with my friends, music, watching sports, going to the gym. I have 2 young nephews, Jack 2 and Charlie 8 mos. who are by far my favorite two people in the world. Jack is my godson and we have a very special relationship The pain that I experience started a few months ago and i thought nothing of it at first, as it would only affect one or two joints about once a week. Just recently it has worsened to the point of constant pain all say, and espcially in the morning, which i am sure all of you are familiar with. it takes me a good amount of time to get out of bed in the morning. I am waiting for an appt with a rheumatologist but for now i take 600 MG of Motrin 3X a day, and go to the gym to keep active. Are there any other tips or ways of coping that you all have come across? I know in the morning a hot shower will usually loosen me up a bit, but i am still a mess trying to get out of my car after my 40 minute drive to work. Sound familiar to everyone? -- In , " JANE " <janeatregis@y...> wrote: > > , welcome sweetie! Tell us a little about yourself. Where > are you from? Do you have hobbies or interests? I am a very proud > single mom & grandma, I have kids from 29 to almost 18. I'm an old > school Jesus Freak! I love antiques and " junk " shops, vintage clothes > & jewelry, cooking, reading, and especially studying the Bible. I > have psor. arth, fibro, and " overlapping diagnoses. " whatever that > means. makes me sound like a patchwork quilt, which is probably not > too far off! I am so sorry you are hurting, and any time you need to > talk or rant or whatever, I'm in and out of the group several times a > day unless work is crazy. You will find a lot of wonderful supportive > people in this group and more information than I have found anywhere > else to help us stay current on medical advances. God bless & hang in > there. > Jane > > > > > > > > Hi all; > > I just joined this group to educate myself and learn all i can > about > > this disease. i am 23 and have been preliminary diagnosed. the > worst > > is my knees and feet, but it also affects my shoulders, elbows neck > > and fingers...wrists, ankles. pretty much everything at some point > > or another! its so frustrating, i cannot even get out of bed in the > > morning. so i guess i am just looking for any info or insight re: > > treatment, coping, day to day tips, etc., medication, exersise... > > i just joined a gym and have been using the eliptical machine as it > > does not put as much pressure on my knees. my aunt has RA terrible > in > > her legs, and while i am not a size 0 i wouldnt say i am terribly > > overweight... > > so thats my story...looking forward to meeting all of you and > sharing > > experiences. > > thanks for listening! > > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted February 7, 2005 Report Share Posted February 7, 2005 Hello again, and thanks everyone for the kind words. Like i said, I am 23, i live right outside of Philadelphia. I work at the software company SAP America as a contractor for IT support. I went to the Catholic University of America in Washington DC. Now, i live at home with my mom and sister (20). I enjoy spending time with my friends, music, watching sports, going to the gym. I have 2 young nephews, Jack 2 and Charlie 8 mos. who are by far my favorite two people in the world. Jack is my godson and we have a very special relationship The pain that I experience started a few months ago and i thought nothing of it at first, as it would only affect one or two joints about once a week. Just recently it has worsened to the point of constant pain all say, and espcially in the morning, which i am sure all of you are familiar with. it takes me a good amount of time to get out of bed in the morning. I am waiting for an appt with a rheumatologist but for now i take 600 MG of Motrin 3X a day, and go to the gym to keep active. Are there any other tips or ways of coping that you all have come across? I know in the morning a hot shower will usually loosen me up a bit, but i am still a mess trying to get out of my car after my 40 minute drive to work. Sound familiar to everyone? -- In , " JANE " <janeatregis@y...> wrote: > > , welcome sweetie! Tell us a little about yourself. Where > are you from? Do you have hobbies or interests? I am a very proud > single mom & grandma, I have kids from 29 to almost 18. I'm an old > school Jesus Freak! I love antiques and " junk " shops, vintage clothes > & jewelry, cooking, reading, and especially studying the Bible. I > have psor. arth, fibro, and " overlapping diagnoses. " whatever that > means. makes me sound like a patchwork quilt, which is probably not > too far off! I am so sorry you are hurting, and any time you need to > talk or rant or whatever, I'm in and out of the group several times a > day unless work is crazy. You will find a lot of wonderful supportive > people in this group and more information than I have found anywhere > else to help us stay current on medical advances. God bless & hang in > there. > Jane > > > > > > > > Hi all; > > I just joined this group to educate myself and learn all i can > about > > this disease. i am 23 and have been preliminary diagnosed. the > worst > > is my knees and feet, but it also affects my shoulders, elbows neck > > and fingers...wrists, ankles. pretty much everything at some point > > or another! its so frustrating, i cannot even get out of bed in the > > morning. so i guess i am just looking for any info or insight re: > > treatment, coping, day to day tips, etc., medication, exersise... > > i just joined a gym and have been using the eliptical machine as it > > does not put as much pressure on my knees. my aunt has RA terrible > in > > her legs, and while i am not a size 0 i wouldnt say i am terribly > > overweight... > > so thats my story...looking forward to meeting all of you and > sharing > > experiences. > > thanks for listening! > > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted February 7, 2005 Report Share Posted February 7, 2005 Hey! Welcome!! I live in NJ where do you live? Stiffness is a terrible problem!! Hot showers defiantly help and heating pads. But what really helps in winter is a heating blanket in between the sheets. It does help in the morning. At least for me!! kelly Quote Link to comment Share on other sites More sharing options...
Guest guest Posted February 7, 2005 Report Share Posted February 7, 2005 Hey! Welcome!! I live in NJ where do you live? Stiffness is a terrible problem!! Hot showers defiantly help and heating pads. But what really helps in winter is a heating blanket in between the sheets. It does help in the morning. At least for me!! kelly Quote Link to comment Share on other sites More sharing options...
Guest guest Posted February 8, 2005 Report Share Posted February 8, 2005 Hi : Welcome to the group - sounds like you are in a good place with your family all around you. Keeping limber in the gym is a good idea - if they have a pool there, water exercises are very good for the joints. I, too, have trouble getting started in the morning. Most of the time, I get up about an hour before I want to, take a pain pill, and then go back to bed. By the time the alarm goes off, my pain pill has started to work, and I am usually pretty good to go. A hot shower is a definate must though. As for your drive, 40 minutes in the car is a very long time in one position, and if there is traffic this just ads to the stress. My husband has a back massager that works off of his car cigarette lighter, and it fits onto the car seat so he can drive in comfort. It heats up and has three massage speeds for the upper back, lower back, and thigh areas. Maybe something like that would help you too. When is your appointment - hope you don't have to wait too long - let us know how it goes - Kathe in CA --- kristen_gormley <kristen_gormley@...> wrote: > > > Hello again, and thanks everyone for the kind words. > Like i said, I > am 23, i live right outside of Philadelphia. I work > at the software > company SAP America as a contractor for IT support. > I went to the > Catholic University of America in Washington DC. > Now, i live at home > with my mom and sister (20). I enjoy spending time > with my friends, > music, watching sports, going to the gym. I have 2 > young nephews, > Jack 2 and Charlie 8 mos. who are by far my favorite > two people in > the world. Jack is my godson and we have a very > special > relationship > The pain that I experience started a few months ago > and i thought > nothing of it at first, as it would only affect one > or two joints > about once a week. Just recently it has worsened to > the point of > constant pain all say, and espcially in the morning, > which i am sure > all of you are familiar with. it takes me a good > amount of time to > get out of bed in the morning. I am waiting for an > appt with a > rheumatologist but for now i take 600 MG of Motrin > 3X a day, and go > to the gym to keep active. > Are there any other tips or ways of coping that you > all have come > across? I know in the morning a hot shower will > usually loosen me up > a bit, but i am still a mess trying to get out of my > car after my 40 > minute drive to work. > Sound familiar to everyone? > > > > > > > > > > > -- In , " JANE " > <janeatregis@y...> wrote: > > > > , welcome sweetie! Tell us a little about > yourself. Where > > are you from? Do you have hobbies or interests? I > am a very proud > > single mom & grandma, I have kids from 29 to > almost 18. I'm an old > > school Jesus Freak! I love antiques and " junk " > shops, vintage > clothes > > & jewelry, cooking, reading, and especially > studying the Bible. I > > have psor. arth, fibro, and " overlapping > diagnoses. " whatever that > > means. makes me sound like a patchwork quilt, > which is probably not > > too far off! I am so sorry you are hurting, and > any time you need > to > > talk or rant or whatever, I'm in and out of the > group several times > a > > day unless work is crazy. You will find a lot of > wonderful > supportive > > people in this group and more information than I > have found > anywhere > > else to help us stay current on medical advances. > God bless & hang > in > > there. > > Jane > > > > > > > > > > > > > Hi all; > > > I just joined this group to educate myself and > learn all i can > > about > > > this disease. i am 23 and have been preliminary > diagnosed. the > > worst > > > is my knees and feet, but it also affects my > shoulders, elbows > neck > > > and fingers...wrists, ankles. pretty much > everything at some > point > > > or another! its so frustrating, i cannot even > get out of bed in > the > > > morning. so i guess i am just looking for any > info or insight re: > > > treatment, coping, day to day tips, etc., > medication, exersise... > > > i just joined a gym and have been using the > eliptical machine as > it > > > does not put as much pressure on my knees. my > aunt has RA > terrible > > in > > > her legs, and while i am not a size 0 i wouldnt > say i am terribly > > > overweight... > > > so thats my story...looking forward to meeting > all of you and > > sharing > > > experiences. > > > thanks for listening! > > > > > > > > > > __________________________________________________ Quote Link to comment Share on other sites More sharing options...
Guest guest Posted February 8, 2005 Report Share Posted February 8, 2005 Hi : Welcome to the group - sounds like you are in a good place with your family all around you. Keeping limber in the gym is a good idea - if they have a pool there, water exercises are very good for the joints. I, too, have trouble getting started in the morning. Most of the time, I get up about an hour before I want to, take a pain pill, and then go back to bed. By the time the alarm goes off, my pain pill has started to work, and I am usually pretty good to go. A hot shower is a definate must though. As for your drive, 40 minutes in the car is a very long time in one position, and if there is traffic this just ads to the stress. My husband has a back massager that works off of his car cigarette lighter, and it fits onto the car seat so he can drive in comfort. It heats up and has three massage speeds for the upper back, lower back, and thigh areas. Maybe something like that would help you too. When is your appointment - hope you don't have to wait too long - let us know how it goes - Kathe in CA --- kristen_gormley <kristen_gormley@...> wrote: > > > Hello again, and thanks everyone for the kind words. > Like i said, I > am 23, i live right outside of Philadelphia. I work > at the software > company SAP America as a contractor for IT support. > I went to the > Catholic University of America in Washington DC. > Now, i live at home > with my mom and sister (20). I enjoy spending time > with my friends, > music, watching sports, going to the gym. I have 2 > young nephews, > Jack 2 and Charlie 8 mos. who are by far my favorite > two people in > the world. Jack is my godson and we have a very > special > relationship > The pain that I experience started a few months ago > and i thought > nothing of it at first, as it would only affect one > or two joints > about once a week. Just recently it has worsened to > the point of > constant pain all say, and espcially in the morning, > which i am sure > all of you are familiar with. it takes me a good > amount of time to > get out of bed in the morning. I am waiting for an > appt with a > rheumatologist but for now i take 600 MG of Motrin > 3X a day, and go > to the gym to keep active. > Are there any other tips or ways of coping that you > all have come > across? I know in the morning a hot shower will > usually loosen me up > a bit, but i am still a mess trying to get out of my > car after my 40 > minute drive to work. > Sound familiar to everyone? > > > > > > > > > > > -- In , " JANE " > <janeatregis@y...> wrote: > > > > , welcome sweetie! Tell us a little about > yourself. Where > > are you from? Do you have hobbies or interests? I > am a very proud > > single mom & grandma, I have kids from 29 to > almost 18. I'm an old > > school Jesus Freak! I love antiques and " junk " > shops, vintage > clothes > > & jewelry, cooking, reading, and especially > studying the Bible. I > > have psor. arth, fibro, and " overlapping > diagnoses. " whatever that > > means. makes me sound like a patchwork quilt, > which is probably not > > too far off! I am so sorry you are hurting, and > any time you need > to > > talk or rant or whatever, I'm in and out of the > group several times > a > > day unless work is crazy. You will find a lot of > wonderful > supportive > > people in this group and more information than I > have found > anywhere > > else to help us stay current on medical advances. > God bless & hang > in > > there. > > Jane > > > > > > > > > > > > > Hi all; > > > I just joined this group to educate myself and > learn all i can > > about > > > this disease. i am 23 and have been preliminary > diagnosed. the > > worst > > > is my knees and feet, but it also affects my > shoulders, elbows > neck > > > and fingers...wrists, ankles. pretty much > everything at some > point > > > or another! its so frustrating, i cannot even > get out of bed in > the > > > morning. so i guess i am just looking for any > info or insight re: > > > treatment, coping, day to day tips, etc., > medication, exersise... > > > i just joined a gym and have been using the > eliptical machine as > it > > > does not put as much pressure on my knees. my > aunt has RA > terrible > > in > > > her legs, and while i am not a size 0 i wouldnt > say i am terribly > > > overweight... > > > so thats my story...looking forward to meeting > all of you and > > sharing > > > experiences. > > > thanks for listening! > > > > > > > > > > __________________________________________________ Quote Link to comment Share on other sites More sharing options...
Guest guest Posted February 8, 2005 Report Share Posted February 8, 2005 Thanks very much Kath.This morning i actually did what you suggested...set my alarm for 4 am and took a pill then when i got up i felt the best i have felt in a few weeks. great idea we had huh?!? the car ride, was then not so bad. so today is definately better than yesterday. anyone else have bad neck and shoulder pain? mine is really tight sometimes, i am wondering if its the RA or some kind of muscle thing because of my working out? > > > > > > > > > > > > Hi all; > > > > I just joined this group to educate myself and > > learn all i can > > > about > > > > this disease. i am 23 and have been preliminary > > diagnosed. the > > > worst > > > > is my knees and feet, but it also affects my > > shoulders, elbows > > neck > > > > and fingers...wrists, ankles. pretty much > > everything at some > > point > > > > or another! its so frustrating, i cannot even > > get out of bed in > > the > > > > morning. so i guess i am just looking for any > > info or insight re: > > > > treatment, coping, day to day tips, etc., > > medication, exersise... > > > > i just joined a gym and have been using the > > eliptical machine as > > it > > > > does not put as much pressure on my knees. my > > aunt has RA > > terrible > > > in > > > > her legs, and while i am not a size 0 i wouldnt > > say i am terribly > > > > overweight... > > > > so thats my story...looking forward to meeting > > all of you and > > > sharing > > > > experiences. > > > > thanks for listening! > > > > > > > > > > > > > > > > > > > > > __________________________________________________ > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted February 8, 2005 Report Share Posted February 8, 2005 Thanks very much Kath.This morning i actually did what you suggested...set my alarm for 4 am and took a pill then when i got up i felt the best i have felt in a few weeks. great idea we had huh?!? the car ride, was then not so bad. so today is definately better than yesterday. anyone else have bad neck and shoulder pain? mine is really tight sometimes, i am wondering if its the RA or some kind of muscle thing because of my working out? > > > > > > > > > > > > Hi all; > > > > I just joined this group to educate myself and > > learn all i can > > > about > > > > this disease. i am 23 and have been preliminary > > diagnosed. the > > > worst > > > > is my knees and feet, but it also affects my > > shoulders, elbows > > neck > > > > and fingers...wrists, ankles. pretty much > > everything at some > > point > > > > or another! its so frustrating, i cannot even > > get out of bed in > > the > > > > morning. so i guess i am just looking for any > > info or insight re: > > > > treatment, coping, day to day tips, etc., > > medication, exersise... > > > > i just joined a gym and have been using the > > eliptical machine as > > it > > > > does not put as much pressure on my knees. my > > aunt has RA > > terrible > > > in > > > > her legs, and while i am not a size 0 i wouldnt > > say i am terribly > > > > overweight... > > > > so thats my story...looking forward to meeting > > all of you and > > > sharing > > > > experiences. > > > > thanks for listening! > > > > > > > > > > > > > > > > > > > > > __________________________________________________ > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted July 15, 2005 Report Share Posted July 15, 2005 Hi , welcome. glad you found our group! hope it will help. we do understand. it must be hard trying to raise 2 children when you are in so much pain. Now that they finally " discovered " what you suspected (pa) will they add any meds to help your pain and slow down the disease? Like methotrexate or one of the newer ones like enbrel? hang in there....you have found a good place for help. best wishes, marti > Hi my name is . After nearly a year and five specialist in May I > was finally told I have psoriatic arthritis, which I kinda figured in > the first place! I have had psoriasis for 21 years (since I was 8)I > also suffer from a heart condition and from pleurisy (inflamation > around my lungs and rib cage that causes severe chest pains)since last > Sept I have been on robaxin (1500 mg up to 4 times a day) which is a > muscle relaxer, and take 900 mg of neurontin and lidoderm patches and > now since May I have been taking 200mg of celebrex. It seems to be > helping some, but most days I hurt so bad I can barely stand it. In the > beginning there were days I could barely stand to get out of bed > because my knees and hips hurt so bad. I am a cancer survivor and had > natural childbirth with no drugs so my pain tolerance is pretty high, > but this has really been getting to me. I have lost weight through all > of this stress of doctors (and I didn't need to lose it I was only 97 > pounds to begin with and now I am at 89 pounds!) my appetite is pretty > much non existant. > > I am glad I found this group, hopefully I can find a few new friends to > talk to. It seems like no one in my world understands. The depression > seems to be coming back as well at full force lately. I try to work > past it (as a mother of a 10 and 7 year old I have no time to be down!) > but sometimes it is difficult. > > Hope to hear back from some of you soon, I'll be around. Quote Link to comment Share on other sites More sharing options...
Guest guest Posted July 21, 2005 Report Share Posted July 21, 2005 In a message dated 7/15/05 10:20:18 PM GMT Daylight Time, BMPmama698@... writes: Hi my name is . After nearly a year and five specialist in May I was finally told I have psoriatic arthritis, which I kinda figured in the first place Hi , Welcome to the group. I hope you can get what you are looking for from us. You will certainly get the understanding you mentioned, that's for sure. No matter how well intentioned our friends and families are, they could never fully know what this disease does to us not just physically but mentally too. You sound as if you have had a rougher time through the years than most of us could say we had. You sound as if you are very strong in the way you have dealt with it all up until now. I hope this group helps you in some way. Just " talking " to other people who can identify with what you are saying can make all the difference. Hope to hear from you again soon, Quote Link to comment Share on other sites More sharing options...
Guest guest Posted February 13, 2006 Report Share Posted February 13, 2006 - Welcome to the group. You will find a wealth of information and support on these sites. I know just getting diagnosed is a very scary and uncertain time but trust me those feelings change into hope and faith in the new drugs. Keep a positive attitude and outlook. You have a lot to be thankful for. I was diagnosed just last May so I know more recently then some of the old timers, yet good timers, how fresh those thoughts are, as I still struggle with them recently. People on this site offer great support and advice. Take what benefits you. Maybe it would help you to share how you were diagnosed and what you are currently doing medically. Lets us know what is going on with you and what you and your doctors plan is. Stay involved! (33) CML 5/13/05 Gleevec 600 mg Quote Link to comment Share on other sites More sharing options...
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