Guest guest Posted February 13, 2006 Report Share Posted February 13, 2006 It takes another newbie to speak the words right out of my mouth ... I wonder how many more people are going to make the comment about intimidation from this group ... I am glad in some ways that I don't join in the live chats at present because I couldn't stand it, the thought of putting some reasonable comment forward to it thrown right back in my face. I really hope that some of the 'oldies' to this group will realise what is happening here and stop the bickering. [ ] Newbie stuff OK -have been lurking long enough. I have not felt able to post before because I don't understand half of what you guys are talking about. I was diagnosed in November 05, spent some weeks on Hydroxy Urea and am on day 13 of Gleevec. I live in cape Town, South Africa. I hope that the little spats I have seen are unusual because I group ike this is so important. I must say, however, that it is quite intimidating for a newly diagnosed person to join in. Perhaps we need somebody to take on the job of inducting newbies? Anyway...I have a question. I am on day 13 of Gleevec. I keep hearing about all of you dealing with hectic side effects which are so bad that you have to stop taking it etc. Other than feeling really tired I have experienced nothing? Does that it mean it hasn't kicked in yet? What should I expect and when should I expect it? I must admit to havingfelt really sore on Hydroxy urea but the Gleevec seems not to have had any effect. Any ideas? Quote Link to comment Share on other sites More sharing options...
Guest guest Posted February 13, 2006 Report Share Posted February 13, 2006 > > OK -have been lurking long enough. I have not felt able to post > before because I don't understand half of what you guys are talking > about. I was diagnosed in November 05, spent some weeks on Hydroxy > Urea and am on day 13 of Gleevec. I live in cape Town, South Africa. > > I hope that the little spats I have seen are unusual because I group > ike this is so important. I must say, however, that it is quite > intimidating for a newly diagnosed person to join in. Perhaps we > need somebody to take on the job of inducting newbies? > > Anyway...I have a question. I am on day 13 of Gleevec. I keep > hearing about all of you dealing with hectic side effects which are > so bad that you have to stop taking it etc. Other than feeling > really tired I have experienced nothing? Does that it mean it > hasn't kicked in yet? What should I expect and when should I expect > it? > > I must admit to havingfelt really sore on Hydroxy urea but the > Gleevec seems not to have had any effect. > > Any ideas? > Hi there and WELCOME from Downunder. I hope you enjoy the message board on and ask Zavie lots of Questions...we have lots of chats but I guess Zavie will contact you. Because you are not sufferening much side effects at the moment dosnt mean to say you will. You might be one of the lucky ones that breeze through (i hope for yoursake you do) some do go through treatment with Gleevec without side effects, some like myself end up with severe side effects that at times we need to stop. Sounds like your doing ok..and thats great. Glad you found the group and once again WELCOME. SUSIE LEECH DX NOV 2002 CURRENTLY OFF GLEEVEC Quote Link to comment Share on other sites More sharing options...
Guest guest Posted February 13, 2006 Report Share Posted February 13, 2006 Dear Recentmahogany, Gleevec side effects are quite variable. Some people, as you have read, suffer terribly from them, and others are not bothered much at all. Many people have trouble in the beginning, i.e., the first few months of Gleevec, and then their bodies seem to adjust. With time, people also figure out strategies to minimize the impact of certain side effects, such as taking Gleevec on a full stomach and drinking lots of water for nausea, taking calcium and magnesium supplements, ibuprofen or naproxen and taking hot baths for muscle cramps, using various creams for skin rashes, taking imodium for diarrhea, etc. But as I said, everyone's reaction is different. And if you're not experiencing many side effects that is wonderful and does not mean that Gleevec is or is not working. It just means that you tolerate it well, which is a very good thing. A warm welcome to the group and please feel free to ask any questions you want; there are many caring and knowledgeable people on this site. Adrienne Wife to Jim Diagnosed 8/03 Taking 800mg/day regentmahogany <merlinh@...> wrote: OK -have been lurking long enough. I have not felt able to post before because I don't understand half of what you guys are talking about. I was diagnosed in November 05, spent some weeks on Hydroxy Urea and am on day 13 of Gleevec. I live in cape Town, South Africa. I hope that the little spats I have seen are unusual because I group ike this is so important. I must say, however, that it is quite intimidating for a newly diagnosed person to join in. Perhaps we need somebody to take on the job of inducting newbies? Anyway...I have a question. I am on day 13 of Gleevec. I keep hearing about all of you dealing with hectic side effects which are so bad that you have to stop taking it etc. Other than feeling really tired I have experienced nothing? Does that it mean it hasn't kicked in yet? What should I expect and when should I expect it? I must admit to havingfelt really sore on Hydroxy urea but the Gleevec seems not to have had any effect. Any ideas? Quote Link to comment Share on other sites More sharing options...
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