Best Intentions

[Guest guest]

Hello to my CML family,

I just wanted to express my feelings about what has transpired on

this site recently.

I think we all have the best intentions when we write to people on

this important site. We are either patients with CML or have loved

ones with it.

It is often confusing and frustrating to learn about a diagnosis. We

have such high hopes, and you almost have to completely immerse

yourself in this disease, just to understand it.

Some members have a great working knowledge of this disease, and they

are invaluable to this group. Others don't need to know all the in's

and outs of it, but just the simply the nuts and bolts, so to speak.

We are all here to gather information, sort through it, and try to

make sense of it all. Even the experts on CML disagree from time to

time. But, in the end, you have to take a step back, emotionally,

and realize that we all have only the best of intentions.

It's easy to get fired up, when you have a disease with no cure. Life

is difficult enough at times when you are well, but it's extra hard

when you are dealt with a chronic disease. All the while, we are

all still alive, moving along day to day, raising children, managing

households etc. and trying to carve out a meaningful life for

ourselves.

We, as a group, need to come together, and know that this is site is

used for learning, sharing our experience, happiness and

heartbreaks. We are all one family. A very rare family. One in

100,000 people get this. We come from all parts of world. I feel

privilged to be part of this group.

Sincerely,

Lynn (Snickersunny)

Dx'd 12/03

400 mg

PCRU