Anyone with big edema issues?

[Guest guest]

Hi everyone,

I have been having a heck of a time with edema in my extremities.

I'm on 20 mg Lasix twice a day, but it really doesn't take care of

the edema. I've been following a low salt/low processed food diet,

but still no avail. My weight has ballooned. :-(

I am so frustrated and it makes me very sad. I honestly don't know

what more to do. I have big legs to begin with, and this side effect

has really changed my life. It's really getting hard to get around.

This has been my only side effect from Gleevec that is very hard to

tolerate. I am PCRU but am wondering if I should try out BMS when it

comes to market? I didn't want to try it until I needed it, because

GLeevec is working... but this edema is getting very old.

Does anyone take a higher dose of Lasix? It's just weird.. If I

don't take Lasix, I hardly go-even if I drink a ton of water. My

kidney function tests all come out normal though. What is going on?

Is anyone else having this problem?

Any and all advice is welcomed. Many Thanks!

Lynn

Dx'd 12/03

PCRU 400 mg Gleevec