Re: Recent news regarding Gleevec and CHF and an Echo.

[Guest guest]

I did the same thing 2 weeks after starting Gleevec. Clean bill of

health... well, I'm assuming as nobody ever contacted me with the

results.

>

> Hi fellow CML'ers and Family,

>

> Just wanted everyone to know that due to all the recent findings

> regarding Gleevec and Congestive Heart Failure possibly linked to

> Gleevec, I went ahead and had an Echocardiogram done.

>

> I wanted to have a baseline and also had concerns because I have

> edema issues that aren't remedied with Lasix or Cholorothiazide and

a

> low salt diet. I take both pills! Crazy Crazy. I think I'll have

to

> take this stuff forever!

>

> Well, good and surprising news! My ECHO came back completely

NORMAL!

>

> That's my good news for the day!

>

> Sincerely, Lynn

> Dx'd 12/03

> PCRU

> 400 mg Gleevec

>

[Guest guest]

It's always a good idea to keep a personal record of all your test

results such as, CBC's, PCR's, biopsies, kidney/liver functions

tests, etc. Even tests like an Echo, that are related to CML.

You have every right to get a copy of all your tests. Just ask.

Sincerely, Lynn

> >

> > Hi fellow CML'ers and Family,

> >

> > Just wanted everyone to know that due to all the recent findings

> > regarding Gleevec and Congestive Heart Failure possibly linked to

> > Gleevec, I went ahead and had an Echocardiogram done.

> >

> > I wanted to have a baseline and also had concerns because I have

> > edema issues that aren't remedied with Lasix or Cholorothiazide

and

> a

> > low salt diet. I take both pills! Crazy Crazy. I think I'll

have

> to

> > take this stuff forever!

> >

> > Well, good and surprising news! My ECHO came back completely

> NORMAL!

> >

> > That's my good news for the day!

> >

> > Sincerely, Lynn

> > Dx'd 12/03

> > PCRU

> > 400 mg Gleevec

> >

>

[Guest guest]

I agree with Lynn. When you have copies of your records, I think it

gives you a sense of control and makes you feel like you're actively

involved in your treatment. I suppose not everyone wants to feel

like that but I like that I feel in control in some way. Having

copies of your tests also allows you get second opinions if you

choose to without having to bother your doctor.

Tracey

> > >

> > > Hi fellow CML'ers and Family,

> > >

> > > Just wanted everyone to know that due to all the recent

findings

> > > regarding Gleevec and Congestive Heart Failure possibly linked

to

> > > Gleevec, I went ahead and had an Echocardiogram done.

> > >

> > > I wanted to have a baseline and also had concerns because I

have

> > > edema issues that aren't remedied with Lasix or

Cholorothiazide

> and

> > a

> > > low salt diet. I take both pills! Crazy Crazy. I think I'll

> have

> > to

> > > take this stuff forever!

> > >

> > > Well, good and surprising news! My ECHO came back completely

> > NORMAL!

> > >

> > > That's my good news for the day!

> > >

> > > Sincerely, Lynn

> > > Dx'd 12/03

> > > PCRU

> > > 400 mg Gleevec

> > >

> >

>