Guest guest Posted October 21, 2007 Report Share Posted October 21, 2007 , wish you good luck with the Flavoperidol. Please keep us up-to-date on how it's working for you. Andy Gach Flavopiridol Trial Something you might all be interested in - Dear Friends, I want you all to know I have been officially admitted to the Flavoperidol phase II study at The Cancer Center at Ohio State University in Columbus, Ohio. Treatment will start on November 7th and consist of six cycles of six weeks. Weeks one through four, I will receive the treatment at OSU and then have two weeks off. There will be some inconvenience of traveling to Columbus every Tuesday afternoon and returning home on Wednesday or Thursday BUT the results so far have shown a 72% response and I am elated to be part of the study. Only 25 patients are in the study in Columbus and 165 world wide so this is cutting edge. I ask for your prayers for myself, family, the doctors who provide the efforts and all of those who have cancer and do not have such excellent options available to them. The treatments will finish around June 20, 2008. Think of all the frequent flier points we are going to get on Delta! Radford Stearns (crstearnsaol) See what's new at AOL.com and Make AOL Your Homepage. Quote Link to comment Share on other sites More sharing options...
Guest guest Posted October 21, 2007 Report Share Posted October 21, 2007 Hi , That is wonderful news! Hope you do well as Randy has.I'm praying for the best possible outcome for you! God Bless, Debbie Light www.cllcfriends.com jb50192@... wrote: Something you might all be interested in - Dear Friends, I want you all to know I have been officially admitted to the Flavoperidol phase II study at The Cancer Center at Ohio State University in Columbus, Ohio. Treatment will start on November 7th and consist of six cycles of six weeks. Weeks one through four, I will receive the treatment at OSU and then have two weeks off. There will be some inconvenience of traveling to Columbus every Tuesday afternoon and returning home on Wednesday or Thursday BUT the results so far have shown a 72% response and I am elated to be part of the study. Only 25 patients are in the study in Columbus and 165 world wide so this is cutting edge. I ask for your prayers for myself, family, the doctors who provide the efforts and all of those who have cancer and do not have such excellent options available to them. The treatments will finish around June 20, 2008. Think of all the frequent flier points we are going to get on Delta! Radford Stearns (crstearnsaol) See what's new at AOL.com and Make AOL Your Homepage. I can only Imagine !!!!! Deb __________________________________________________Do You ?Tired of spam? has the best spam protection around http://mail. Quote Link to comment Share on other sites More sharing options...
Guest guest Posted August 31, 2009 Report Share Posted August 31, 2009 Hi, I am a 37 year old woman that was diagnosed with CLL in Jan 08. I started FCR treatment in May of this year. Today my Onc told me that we need to find a new treatment bec FCR is not working. I believe this conclusion was arrived at based on the growing and shrinking of the lymph nodes (which never fully went down) among other things. I had 4 rounds of FCR treatment. My Onc recommended that I see Dr. Gabrilove (Mt. Sinai) who is doing a clinical trial using Flavopiridol. Does anyone have any opinions on this treatment? Also, are there other treatments I should consider? We are trying to get me into a remission so that I can have a bone marrow transplant in the near future. I should mention my FISH test (done on April 2009) interpretation - 90% cells showing deletion of P53. Deletion of P53 at 17p13.1 chromosomal site is associated with unfavorable prognosis. Dr. Furman - I called your office last week for an appointment and faxed over all my records to De. I am trying to work out an insurance issue and then hopefully will be able to see you. I do always appreciate your input along with the group. Thank you for your help, Suzanne Quote Link to comment Share on other sites More sharing options...
Guest guest Posted September 1, 2009 Report Share Posted September 1, 2009 I am surprised that having p53 and 17p on your FISH test your doctor went for a fluradabine treatment. I thought another reason to have a FISH test before treatment was to see your markers and be able to chose the best treatment for your CLL. HDMP clear the nodes and Campath mops up the marrow very well. I hope you find the right treatment to put you on a good remision for a SCT, you are very young. A few weeks ago I had lunch with a CLL transplanted friend, she is only 50 now and she is 6 years post transplant, doing well and having a normal full life. regards Chonette (UK)dx 10-02 (aged 57)unmutated, CD38 19%, ZAP70 9%,2004 Prednisolone 8 weeks 50 mg. a day,2005 Prednisolone 8 weeks 50 mg.a day, followed bylow doses chlorambucil (2 mg.),2006 Rituximab and low doses chlorambucil (6 mg. a day 14 days on 14 daysoff) 6 rounds,2007 Low doses Rituximab,2007 Fluradabine Lite, HDMP,. Rituximab 200 mg. monthly (5 rounds)Partial Remission, multiple pea size nodes on neck,Started 16 week Campath/HDMP Protocol in June 2008, to follow SCTCMV activation plus two other infections end week 8th of Campath.Hopitalised for 4 weeks. 2 months gap to allow body to recoverDec 2008/Jan 2009 - HDMP to reduce nodes, bone marrow clean - no more Campath needed2009 -Admited to The Royal Free Hospital 15th March, SCT March 25th following Prof. McKinnon's protocol.Feeling well. SCT consultant appointments once a month now. consultant comment "extremely well without any problems or complains" Quote Link to comment Share on other sites More sharing options...
Guest guest Posted September 1, 2009 Report Share Posted September 1, 2009 Hi Chonette, I have to say I really like your comment better than Eri Maa's! haha. I appreciate the feedback and the hopeful outcome. It was welcome news to hear that life could be somewhat normal after a transplant. it is encouraging. thank you again. Best, Suzanne From: Chonette <chonette@...>Subject: Re: Flavopiridol trial Date: Tuesday, September 1, 2009, 8:46 AM I am surprised that having p53 and 17p on your FISH test your doctor went for a fluradabine treatment. I thought another reason to have a FISH test before treatment was to see your markers and be able to chose the best treatment for your CLL. HDMP clear the nodes and Campath mops up the marrow very well. I hope you find the right treatment to put you on a good remision for a SCT, you are very young. A few weeks ago I had lunch with a CLL transplanted friend, she is only 50 now and she is 6 years post transplant, doing well and having a normal full life. regards Chonette (UK)dx 10-02 (aged 57)unmutated, CD38 19%, ZAP70 9%,2004 Prednisolone 8 weeks 50 mg. a day,2005 Prednisolone 8 weeks 50 mg.a day, followed bylow doses chlorambucil (2 mg.),2006 Rituximab and low doses chlorambucil (6 mg. a day 14 days on 14 daysoff) 6 rounds,2007 Low doses Rituximab,2007 Fluradabine Lite, HDMP,. Rituximab 200 mg. monthly (5 rounds)Partial Remission, multiple pea size nodes on neck,Started 16 week Campath/HDMP Protocol in June 2008, to follow SCTCMV activation plus two other infections end week 8th of Campath.Hopitalised for 4 weeks. 2 months gap to allow body to recoverDec 2008/Jan 2009 - HDMP to reduce nodes, bone marrow clean - no more Campath needed2009 -Admited to The Royal Free Hospital 15th March, SCT March 25th following Prof. McKinnon's protocol.Feeling well. SCT consultant appointments once a month now. consultant comment "extremely well without any problems or complains" Quote Link to comment Share on other sites More sharing options...
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