Thanks Annie

[Guest guest]

Hey Annie

Your statement about the Universe really made me laugh - I am MUCH

more circumspect now! Whereabouts in CT are you from? We are in

Somerset West. How long have you been in the States? How's your

son doing? - he is so young to be dealing with this. Shame!

Thought the use of that good old South African word will warm your

heart. For the rest of you - " shame " in South Africa can mean

anything from " poor thing " to " isn't he cute? " Weird country this.

Regards

Jane

tennese

>

> Hello Jane

>

> I am sorry about your diagnosis and hope you find a doctor that be

> able to help you feel comfortable with your choices about BMT or

not

> and help you handle this disease.

>

> My 22 year old son was diagnosed with CML in March this year and

> this board and the

> http://asia./group/AsianCMLSupportGroup/

> have been absolutely wonderful! Anjana and Roy and so many

others

> are a mine of information and so helpful and kind.

>

> Regarding " asking the universe..... " I have learned to be

> reeeeeaaaallly careful how I word those questions and requests! LOL

>

> We are from CT South Africa and live in Tennesse now.

> Take care

> Annie

> (Mom of )

> www.livingwithcml.blogspot.com

> www.roadrunnersusa.blogspot.com

>

>

>

> >

> > Hi there

> >

> > Been lurking but not posting for a while. Mainly because I know

I

> > have questions but I haven't been sure how to form them. Now I

am

> > feeling really low so I am just gonna take a shot at it. So

many

> of

> > you are so wise, I can only benefit huh?

> >

> > During the whole oflast year I was fighting a horrible battle at

> > work which looked like it was going to end up in the labour

court.

> >

> > I got really stressed out in November and asked 'the universe'

to

> > find a way for me toget out of the situation with a little money

> and

> > without having to go to court. Later that same week, I took

> myself

> > off to the doctor to deal with the " stress " symptoms and got the

> CML

> > diagnosis! Bummer.

> >

> > Anyway, it now became a possibility to apply for disability

> benefits

> > and to leave the organisation that way so I stopped fighting my

> > employer and concentrated on fighting the CML.

> >

> > The insurers are now suggesting that, because of Gleevec, the

CML

> is

> > not a disability but something more like Diabetes and therefore

I

> am

> > not disabled. Which, I guess, is probably true except that I am

> so

> > exhausted on the Gleevec that I can hardly do anything!

> >

> > I am 47 years old, I have 3 kids and a husband and am under

> pressure

> > to go full steam ahead for a BMT. My gut is shrieking " NO " but

> the

> > doctors are really keen to try it. I do not have a sibling

match.

> >

> > I really need to talk with a CML specialist because the more I

see

> > of my oncologist, the more I understand that her knowledge is

> > shallow. Also, she just doesn't have the skill to help me make

my

> > case.

> >

> > I live in South Africa and, to my knowledge, we don't have any

CML

> > specialists here (unless one of you knows better) so I was

> wondering

> > if any of the amazing docs that you all talk about would be

> willing

> > to enter into an email conversation with me.

> >

> > There is a chance that I may get the opportunity to travel to

> > England in September - are there any really good specialists

there?

> >

> > Another strange thing - a close friend and work colleague who

has

> > also gone through the kind of work stress that I did and is also

> > fighting a legal battle has also been diagnosed with CML - do

you

> > think that is at all significant?

> >

> > I will be interested to hear your responses

> >

> > Regards

> >

> > Jane

> >

>