Guest guest Posted May 16, 2006 Report Share Posted May 16, 2006 Yes I do. Have been fighting it for 3 years. On Gleevec, 400mgs, and bone pain can be a 10 (scale 1-10) at times, like today when weather is cold, raining. Have you mentioned it to your doctor? - Lynne A. Quote Link to comment Share on other sites More sharing options...
Guest guest Posted May 16, 2006 Report Share Posted May 16, 2006 Hi Chris I am a 76 year old male with a long history of anemia and am currently on aranesp. I sometimes have a pain in the femur and sometimes red spots on my lower leg that itches. Some of the blood diseases I have read about on the net lists bone pain and itchy red spots as recuring symptoms. Take care and good luck hedhunter On 5/16/06, Finsand <chrisfinsand2@...> wrote: > > does anyone else out there ever have severe bone pain in the femur? I > have it at times so that it feels almost debilitating. Have taken to using > a cane at times. Also, severe pain in the ribs on one side? > > chris in minn > dx 12/03/03 > remission 06/04 > gleevec 4oo daily > > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted May 21, 2006 Report Share Posted May 21, 2006 Unfortunately your problem is quite common. I've found the bone pain unbearable at times. Hang in there!!! :{ View our family's photos at webshots Our pet's pages: Simba: www.catster.com/?219163 Nala: www.dogster.com/?215653 Pumbaa:www.dogster.com/?225974 [ ] bone pain does anyone else out there ever have severe bone pain in the femur? I have it at times so that it feels almost debilitating. Have taken to using a cane at times. Also, severe pain in the ribs on one side? chris in minn dx 12/03/03 remission 06/04 gleevec 4oo daily Quote Link to comment Share on other sites More sharing options...
Guest guest Posted October 25, 2006 Report Share Posted October 25, 2006 In a message dated 10/25/2006 12:05:25 P.M. Eastern Daylight Time, loggin23@... writes: supplements. Check with your doctor to see what you can take. If you get the pain under control, it is easier to keep it in check. Take pain medicines at the start of the pain before it gets too bad. It is easier to control it then. Listen to your body. Take frequent rests and group your activities so you be I am experienced in this subject, as I have suffered moderate to severe bone pain during the past four years. It gets worse for me as I try and exercise. I have fought long and hard to live pain free, but it was not easy. The other night I was in so much pain I woke up and had to literally crawl to the bathroom. I was up all night. I did find that adding a heated blanket over the legs helps a lot to relieve the pain. Not much but it helps. It is not a common side effect for most Gleevec patients to last such a long time. Usually, it occurs during the first month or so of treatment, and people tell me it has gone away for them. For me it is different. I am one of the small percentage of people that suffers. If I try to get on a regular exercise program, I fall back because of this. I can only tell you that I joined a pain clinic at one time and did all sorts of things to try and relieve the pain without medication, but last resort was medication. Novartis did write me a letter stating that it is a legitimate side effect that afflicts around 20-40% if the Gleevec population, cause unknown. If you have any questions, please feel free to email me privately. I may be of some help. - Lynne s Quote Link to comment Share on other sites More sharing options...
Guest guest Posted October 25, 2006 Report Share Posted October 25, 2006 Lynne, I too have the bone pain. Not all the time but it comes and goes. Some months I have none and other times it feels like every day is a struggle to move. I found that my heated mattress pad helped as well. Just figured I'd let you know that it helped me as well. I was prescribed ocycodone for the pain and it works well without knocking me out. I only use it when it gets especially bad as I don't want to get addicted but it does the trick when I need it to. :} Re: [ ] Bone pain In a message dated 10/25/2006 12:05:25 P.M. Eastern Daylight Time, loggin23 (DOT) com writes: supplements. Check with your doctor to see what you can take. If you get the pain under control, it is easier to keep it in check. Take pain medicines at the start of the pain before it gets too bad. It is easier to control it then. Listen to your body. Take frequent rests and group your activities so you be I am experienced in this subject, as I have suffered moderate to severe bone pain during the past four years. It gets worse for me as I try and exercise. I have fought long and hard to live pain free, but it was not easy. The other night I was in so much pain I woke up and had to literally crawl to the bathroom. I was up all night. I did find that adding a heated blanket over the legs helps a lot to relieve the pain. Not much but it helps. It is not a common side effect for most Gleevec patients to last such a long time. Usually, it occurs during the first month or so of treatment, and people tell me it has gone away for them. For me it is different. I am one of the small percentage of people that suffers. If I try to get on a regular exercise program, I fall back because of this. I can only tell you that I joined a pain clinic at one time and did all sorts of things to try and relieve the pain without medication, but last resort was medication. Novartis did write me a letter stating that it is a legitimate side effect that afflicts around 20-40% if the Gleevec population, cause unknown. If you have any questions, please feel free to email me privately. I may be of some help. - Lynne s Quote Link to comment Share on other sites More sharing options...
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