tests

[Guest guest]

Hi Jane, I also have a 5 year old little guy who is developmentally delayed.

We have just started testing in our school. Our child psychologist suggested

these tests to use. C-TONI

PPVT- Peobody picture vocabulary

Ravens progressive

Wispy

I really don't know much about each test but she assured me they were non

verbal. Hope this helps a little.

[Guest guest]

Hi a and June,

I haven't posted for a long time, but I continue to read others info. I

just wanted to add some information to the Aspartame issue. A few years ago

I read that one of the airlines -- can't remember which one -- did not allow

their pilots to ingest this sweetener within so many hours of flying. Also,

my best friend's Mom -- a nurse -- was hospitalized with seizures. The

culprit turned out to be the six pack of diet coke she drank daily. Like

anything else, I doubt that an occasional diet coke would harm anyone, but

so many diet drink addicts consume a ton of the junk like I once did. (I

have shared this info before, but there may be readers who missed it).

P.S. My friend Art continues to be RA factor negative 14 months after being

given extensive antibiotics during heart bypass surgery. As I am sure you

remember, assuming I have the right a, he had severe RA for 10 years.

His rheumatologist is clueless and says she has never seen this happen

before, but as a good doctor should, has released his records to UCLA to

further the knowledge of RA.

Hope you are doing well.

Sincerely,

Patsy

Re: [ ] Weight Club Check-In #1

>

>

>

>

> Dear Rainy & Friends...I took my measurement at the waist, since I don't

> have a scale. I don't know if I've lost any weight, but I am being

> pretty faithful to my food plan and drinking of water.

>

> I am a real lover of diet soda, but I have heard that it causes you to

> retain water. Anyone know more details? So, I've cut back my diet pop

> consumption by about 75%, and I do feel less bloated at least. I'm

> drinking more tea.

>

> Tuesday I start physical therapy for the herniated disk and foot drop.

> The CT scan also showed severe arthritis of the spine. I am looking

> forward to perhaps some inspiration and sitting exercise techniques from

> the pt. I am a little scared that the pt will take 1 look at me and

> roll his eyes...I am so overweight. I think it would help if I

> addressed that concern with him right away. Any thoughts?

>

> I pray for you all every day and I am grateful to be with you. A

> special thanks to you, Rainy, for your encouragement with our weight

> loss ~ getting healthier issues.

>

> Love & Hugs...

>

> Tess

>

>

>

[Guest guest]

Hi Patsy. I think about you often too. Thanks for the information on

aspartame. I also read the same thing about pilots. There are so many

horror stories about aspartame on the internet that I am shocked that it

is still used. I've read stories that people have had complete remission

of diseases such as RA from quitting aspartame. For me it is one chemical

I can do without.

I hope UCLA has some answers about Art's remission after antibiotic use.

I've read reports lately that some heart diseases are caused by bacterial

infections. Some scientists believe that the bacterial infections affect

the arteries and weeken the arteries. Cholerserol is formed to PROTECT

the weakened arteries, but doctors prescribe colesterol reducing drugs

to reduce the cholesterol. It sure would be a miracle if heart disease and

rheumatic diseases were as simple as antibiotics.

How have you been doing Patsy? I hope you are feeling well.

a

>

>

> Date: Sun, 17 Mar 2002 23:16:32 -0800

>

> From: Patsy3 <Patsy3@...>

> Subject:RE: [ ] Tests

>

>

>

>

> Hi a and June,

>

> I haven't posted for a long time, but I continue to read others info. I

> just wanted to add some information to the Aspartame issue. A few years ago

> I read that one of the airlines -- can't remember which one -- did not allow

> their pilots to ingest this sweetener within so many hours of flying. Also,

> my best friend's Mom -- a nurse -- was hospitalized with seizures. The

> culprit turned out to be the six pack of diet coke she drank daily. Like

> anything else, I doubt that an occasional diet coke would harm anyone, but

> so many diet drink addicts consume a ton of the junk like I once did. (I

> have shared this info before, but there may be readers who missed it).

>

> P.S. My friend Art continues to be RA factor negative 14 months after being

> given extensive antibiotics during heart bypass surgery. As I am sure you

> remember, assuming I have the right a, he had severe RA for 10 years.

> His rheumatologist is clueless and says she has never seen this happen

> before, but as a good doctor should, has released his records to UCLA to

> further the knowledge of RA.

>

> Hope you are doing well.

>

> Sincerely,

>

> Patsy

[Guest guest]

Al, that's wonderful news!!!!!!!!!!!!!!!!

I'm so happy for you, my friend. Hopefully soon they will come up with the

answer to why you're losing weight, but just knowing that it's unlikely to

be cancer is an enormous relief, I'm sure. We've all been so worried for

you.

And endo sounds like a good explanation for Randi's problems, as well. It's

a miserable diagnosis (I had it) but far better than ovarian cancer.

It looks like once again our prayers were answered!

You have a great day, and remember we love you.

Love and hugs,

Carol

[ ] Tests

Hi everyone,

Stacey, I am sorry to hear you are having such a hard time. Hang in

there honey and remember how much you mean to us and how much we love

you.

Debs, thanks for the long post. I am sorry I haven't had a chance to

reply, but it meant a lot to me. I love you.

I had my colonoscopy and endoscopy yesterday and although there were

many biospies done, my gastro doc told he is almost positive I

don't have cancer. Needless to say, but I'll say it anyway, that's

great news. They did find that I have a hiatial hernia though where

the top of your stomach protrudes through the diaphragm. I don't know

if I'll need to have surgery. I should have all the results back by

Tuesday and go from there. As all of you know, life is always taken

one day at a time.

Why I am losing weight is still a mystery but the results may lead us

in the right direction. I'm keeping my fingers crossed yet again.

Randi is still waiting for some results but she has endrometriosis.

We're praying that may be the culprit but won't know for sure until

all results are in.

Thanks to all for the prayers and well wishes. It means a lot, as do

all of you.

Have a great day and remember I love you all.

Al

[Guest guest]

Hi Al,

that's wonderful news about your tests, and I'll keep praying for you

and Randi and your sweet family. I'm glad I was able to get on line

this morning & check the posts. It has been a long and tiring 2

weeks, but things are starting to settle down a bit. My daughter is

recovering nicely from her surgery and plans to go back to work next

week, so I will be able to stay home. I think tomorrow I'll sleep

until noon. Keep us posted of everyone's progress, and consider

yourself hugged...

((((((((Al))))))))

Judi

[Guest guest]

<PRE>al, glad to hear the tests sound good. hope they can figure out the problem

soon. kathy in il

[Guest guest]

Great news Al! Hiatal hernias usually do not require treatment unless

you¹re having severe reflux or inflammation of the esophagus. At least you

can put the thoughts of the big C away. But I wish they had some clues as

to why you are loosing weight. I hope Randi also gets the same great news.

Hope your weekend is painfree.

a

> Hi everyone,

>

> Stacey, I am sorry to hear you are having such a hard time. Hang in

> there honey and remember how much you mean to us and how much we love

> you.

>

> Debs, thanks for the long post. I am sorry I haven't had a chance to

> reply, but it meant a lot to me. I love you.

>

> I had my colonoscopy and endoscopy yesterday and although there were

> many biospies done, my gastro doc told he is almost positive I

> don't have cancer. Needless to say, but I'll say it anyway, that's

> great news. They did find that I have a hiatial hernia though where

> the top of your stomach protrudes through the diaphragm. I don't know

> if I'll need to have surgery. I should have all the results back by

> Tuesday and go from there. As all of you know, life is always taken

> one day at a time.

>

> Why I am losing weight is still a mystery but the results may lead us

> in the right direction. I'm keeping my fingers crossed yet again.

>

> Randi is still waiting for some results but she has endrometriosis.

> We're praying that may be the culprit but won't know for sure until

> all results are in.

>

> Thanks to all for the prayers and well wishes. It means a lot, as do

> all of you.

>

> Have a great day and remember I love you all.

>

> Al

>

>

>

>

[Guest guest]

Hi Kathy,

Thanks. So do I! Hope you are doing well.

Love and hugs,

Al

[Guest guest]

Hi a,

Sorry it's taken me so long to respond. I am so far behind on reading

the posts I wonder if I'll ever catch up. I figure I won't need

surgery because I don't have severe reflux or an inflammed esophagus.

I should know everything tomorrow.

I am so relieved it's not cancer. It was quite tense for a while. We

are now focusing our thoughts and prayers for Randi. I'll be sure to

let everyone know what her results are when we get them.

Although she hasn't posted, she knows that everyone is praying for

har and is extremely appreciative, as am I. Thank you.

Hope you're having a pain free day!

All my love,

Al

[Guest guest]

Sorry, Tess. What are the numbers for which tests?

[ ] tests

> Hi...got letters in the mail from both my rheum and pcp today. The

> anemia has " worsened " consistently over the past 3 tests and there is

a

> high wbc in my urine, plus all the " regular irregularities " . My pcp

> wants me to come in and discuss this.

>

> Love...

>

> Tess

[Guest guest]

Tess,

I'm glad to hear that you are feeling a little better. I hope this means

that you are finally getting over the pneumonia and the viral infection.

White blood cells. Pyuria, or the presence of too many leukocytes or white

blood cells, is a sign of infection in the upper or lower urinary tract. If

two or more leukocytes per each high-power field show up in noncontaminated

urine, the sample most likely is abnormal.

http://www.medicaldistribution.com/Rep/Rep_2002_May/Rep_52420029284228.htm

Rheumatoid arthritis and Anemia:

http://www.arthritis.co.za/raanemia.html

a

> Hi...got letters in the mail from both my rheum and pcp today. The

> anemia has " worsened " consistently over the past 3 tests and there is a

> high wbc in my urine, plus all the " regular irregularities " . My pcp

> wants me to come in and discuss this.

>

> Love...

>

> Tess

>

>

>

>

[Guest guest]

tess, i feel so far behind in my mails. i hope you are feeling better and the

dr's can finally get a agrip on this. kathy in il

[Guest guest]

What are all these tests that you talk about? The only test I've had

since finding out that I had CML last July is the BMB and CBC blood

work. Should I have been having other tests that I don't know about?

Please enlighten me. My head is spinning from all this and last night

I went to CML Hope and realized there was more that should be done that

hasn't. I am thinking of changing Oncologists again, seems she's not

doing what needs to be done. My white count stays in normal, red count

is below normal, I've been given 3 pints of blood already. But the

Gleevec since having gastric bypass eats up my potassium, and has

caused errosions in my new pouch. There is no way you can take the

Gleevec with a meal. One we aren't allowed to drink 30 minutes prior

to eating or 30 minutes after eating. We can't drink down an 8 oz glass

of water with the pills, we have to sip. Had I known this would be the

problem, I would never have had the weightloss surgery that Amy is

getting ready to have. Don't get me wrong, I have no regrets having

the surgery, but I wish I had known more before I even considered the

surgery. But I didn't know and now I am paying for it being sick

constantly. Thank you Kathy

[Guest guest]

Hi again Kathy,

I can hear your dispare in your post and I wish I could do something

to help you.

As for the tests you ask about, you should be having regular CBC's.

How often, depends on your counts. Having a slightly low red count

is normal with Gleevec. If it gets REALLY low, then you can

consider red cell boosters such as Procrit. If your counts are more

or less stable, then a CBC every 4-6 weeks is the norm. If you have

very low counts or they aren't stable, you could be going as

regularly as every week.

You should also be getting liver and kidney function tests

regularly. Again, if you're stable, these can be done at longer

intervals (even up to 3 month intervals).

You should also be having PCR's done every 3 months. If you're not

in CCR, then you should have a BMB every 3-6 months until you are,

then once you are, you can stretch those out to every 12-18 months

or even indefinitely, depending on who you speak to. The PCR test

is really the critical test you need to be monitored with if you are

in CCR.

I hope I've answered some of your questions,

Take care,

Tracey

>

> What are all these tests that you talk about? The only test I've

had

> since finding out that I had CML last July is the BMB and CBC

blood

> work. Should I have been having other tests that I don't know

about?

> Please enlighten me. My head is spinning from all this and last

night

> I went to CML Hope and realized there was more that should be done

that

> hasn't. I am thinking of changing Oncologists again, seems she's

not

> doing what needs to be done. My white count stays in normal, red

count

> is below normal, I've been given 3 pints of blood already. But

the

> Gleevec since having gastric bypass eats up my potassium, and has

> caused errosions in my new pouch. There is no way you can take

the

> Gleevec with a meal. One we aren't allowed to drink 30 minutes

prior

> to eating or 30 minutes after eating. We can't drink down an 8 oz

glass

> of water with the pills, we have to sip. Had I known this would

be the

> problem, I would never have had the weightloss surgery that Amy is

> getting ready to have. Don't get me wrong, I have no regrets

having

> the surgery, but I wish I had known more before I even considered

the

> surgery. But I didn't know and now I am paying for it being sick

> constantly. Thank you Kathy

>