Guest guest Posted December 26, 2007 Report Share Posted December 26, 2007 Hello everyone: Just got on this board. Hope I can help w/ my experiences w/ CLL. Quickly-- dx in 2000 @ 15000 wbc went to 80,000 in 2004 w/ swelling of lym nodes in abdomin - treated w/ FCR - got 80% reduction - then treated w/ Campath and got a CR after BMB and blood flow cytometry. wbc stayed at 4.5 until about 6 weeks ago then went to 6.9 Lym went from 3 to 5 - had blood flow cytometry test - indicated small amount of CLL cells detected. have appointment w/ dr first of Feb. Question- has anyone had a similar situation and how long did one go before more treatment was necessary. Does the CLL come back faster the second time or stay at a slow progression - my B2M at dx was .9 or 1.9 can't remember - just above normal level. I am a trisomy 12 on the FISH test. Is it best to treat second time earlier or just W & W again. have a head cold for 3 weeks now- all stuffy - can't seem to shake it! Maybe Dr. can comment. If you have specific questions about my journey I will try to respond - want to help whoever I can... Thanks Thanks Quote Link to comment Share on other sites More sharing options...
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