WW

[Guest guest]

Pattypooh agrees..Dont Mess with Bloodclots..My Big sister died at 42,

related to bloodclots.. ..Love ya...

RE: WW

>>

>>

>>

>> Yes you do need to call about it.It is not something

> that is just going to

>> go away.It could be arthritus or like you said a

> blood clot.You need to cal

>> l

>> your family doctor and put your mind at rest.

>>

>> Gail

>>

>>

>>

>

>

> d aka danne aka dj aka Dannella

> ALL ARE ME!!!!!

>

>

>

> __________________________________________________

>

[Guest guest]

I know I have had them in left leg twice before and once in lungs. Just don't want him to have an excuse to yank me off tx. Pat McBride <pmcbride1@...> wrote: Pattypooh agrees..Dont Mess with Bloodclots..My Big sister died at 42, related to bloodclots.. ..Love ya... RE: WW>>>>>>>> Yes you do need to call about it.It is not something> that is just going to>> go away.It could be arthritus or like you said

a> blood clot.You need to cal>> l>> your family doctor and put your mind at rest.>>>> Gail>>>>>>>>> d aka danne aka dj aka Dannella> ALL ARE ME!!!!!>>>> __________________________________________________>

[Guest guest]

WW..What kind of meds do they put you on for the blood clots?, what is the name of this condition?..thanks 2

RE: WW>>>>>>>> Yes you do need to call about it.It is not something> that is just going to>> go away.It could be arthritus or like you said a> blood clot.You need to cal>> l>> your family doctor and put your mind at rest.>>>> Gail>>>>>>>>> d aka danne aka dj aka Dannella> ALL ARE ME!!!!!>>>> __________________________________________________>

[Guest guest]

It's called phlebitis Pat & they give you blood thinners like Coumidine for it. Then you have to be careful that you don't fall or cut yourself cause you bleed a lot, like a hemophiliac. They put my old Boss on blood thinners then told him not to get into fights cause he could bleed to death inside & not know it. SuZiePat McBride <pmcbride1@...> wrote: WW..What kind of meds do they put you on for the blood clots?, what is the name of this condition?..thanks 2 RE: WW>>>>>>>> Yes you do need to call about it.It is not something> that is just going to>> go away.It could be arthritus or like you said a> blood clot.You need to cal>> l>> your family doctor and put your mind at rest.>>>> Gail>>>>>>>>> d aka danne aka dj aka Dannella> ALL ARE ME!!!!!>>>>

__________________________________________________>

[Guest guest]

Erythema

nodosum is swelled up bumps (nodules) I got in my legs. My legs swelled

so bad it was painful to walk and there were knots in them. It’s

often an allergic reaction. They weren’t sure if it was from tx or

because my thyroid whacked out then, too. But they had to rule out the

deep vein thrombosis & that test was like an ultrasound on my legs from my

crotch to my ankles. No needles involved.

/De

RE:

WW

Well I was hoping I could wait it out til I see him

May 9th. What is erythema nodosum???

Leg isn't real bad right now lot of swelling has gone

down keep it elevated, I know I should call but don't want to be on heparin or

coumadin, I know I am being hard headed and stupid but unless things get worse

I will mention it 9th. What is a DVT test? Deep Vein

Thrombosis?? Is that the test where they insert needle in top of ankle

and let loose liquid fire in all the veins?? Thats what it felt like to

me both times they did it in the leg, the test for the lung didn't hurt but

kinda made you hot and abit breathless. hugs...ww

[Guest guest]

If it is blood clots,that can kill you.At least go to your GP.

Gail

-----Original Message-----From: Hepatitis CSupportGroupForDummies [mailto:Hepatitis CSupportGroupForDummies ]On Behalf Of patriciaSent: April 26, 2007 7:12 PMHepatitis CSupportGroupForDummies Subject: Re: WWI know I have had them in left leg twice before and once in lungs. Just don't want him to have an excuse to yank me off tx. Pat McBride <pmcbride1@...> wrote:

Pattypooh agrees..Dont Mess with Bloodclots..My Big sister died at 42, related to bloodclots.. ..Love ya... RE: WW>>>>>>>> Yes you do need to call about it.It is not something> that is just going to>> go away.It could be arthritus or like you said a> blood clot.You need to cal>> l>> your family doctor and put your mind at rest.>>>> Gail>>>>>>>>> d aka danne aka dj aka Dannella> ALL ARE ME!!!!!>>>> __________________________________________________>

[Guest guest]

I concur.... acckkk!!!!!!!!!!!!!

Anya~~~~~~~~~~~"I saw the angel in the marble and carved until I set him free."~Michelangelo~

----- Original Message -----

From: Motley

Brutally unfair!

They say brain cells come and go, but fat cells last forever.

arrgghh, Sharon

..

[Guest guest]

Ok, if the insurance company is giving you a hard time, call your drug

manufacturer & tell them you had to waste one and the insurance company is

giving you a hard time. If you're on Pegasys, it's Pegassist

(1-877-PEGASYS) for the 24/7 nurse hotline. If you're on Peg Intron, they

have a patient number, too.

Don't give up unless you absolutely have to. But if you have to, accept it

and don't blame yourself because it won't be you that failed, it will be the

treatment that failed you. Everyone can't do it. It is just too toxic for

some bodies.

/De

RE: De

Hi De sorry missed chat just couldn't do it darn it. Well I haven't been

throwing up lately but every time I eat my stomach just hurts and swells up

hard as a rock. The fools I get my meds from said to get an early

prescrition well that will be a fight they don't like to renew until 7 days

prior to it being last dose. Will go in Sun. and renew and fight they won't

give me an extra one I will just be short one I guess. Don't want to do

that again throwing up or hitting the vein lol. Probably went to far down

leg and can't see any of the veins very clear. Usually use stomach and now

the stinking shots hurt they didn't before. I don't know about ready to say

screw it but then I decide I am not giving Bubba free rein over me. If I go

down it will be with a fight but I am so tired mentally and physically now

so crazy to be like this. She said it usually gets better after 12 weeks

well I am counting hahaaa. Just 41 shots to go lol. Take care De. WW

[Guest guest]

Also let your doc know about the waisted one. They will probably be able to help you with the insurance. d -----Original Message-----From: Hepatitis CSupportGroupForDummies [mailto:Hepatitis CSupportGroupForDummies ] On Behalf OfpatriciaSent: Friday, May 18, 2007 1:39 PMHepatitis CSupportGroupForDummies Subject: RE: DeHi De sorry missed chat just couldn't do it darn it. Well I haven't beenthrowing up lately but every time I eat my stomach just hurts and swells uphard as a rock. The fools I get my meds from said to get an earlyprescrition well that will be a fight they don't like to renew until 7 daysprior to it being last dose. Will go in Sun. and renew and fight they won'tgive me an extra one I will just be short one I guess. Don't want to dothat again throwing up or hitting the vein lol. Probably went to far downleg and can't see any of the veins very clear. Usually use stomach and nowthe stinking shots hurt they didn't before. I don't know about ready to sayscrew it but then I decide I am not giving Bubba free rein over me. If I godown it will

be with a fight but I am so tired mentally and physically nowso crazy to be like this. She said it usually gets better after 12 weekswell I am counting hahaaa. Just 41 shots to go lol. Take care De. WW

Bored stiff? Loosen up...Download and play hundreds of games for free on Games.

[Guest guest]

Check

that thyroid regularly. It gets out of whack easily on tx, especially if it

already had issues.

I

always used by belly for shots. Still do if I have to do Imitrex shot. It’s

just easier & more fat. Legs bruised more & hurt more.

/De

Tim

Hey Tim, doing okay sleep wise but around 3rd

week couldn't sleep at all. I don't do leg anymore after hitting that

vein. Figure its safer in stomach lol. I am really tired but my counts

are low and maybe thyroid is off again, its horrible to force yourself to do

simple things, don't even like visitors right now. Don't know whats up

but it to will pass. hugs...pat

[Guest guest]

This lab next week the thyroid is being tested this time along with red and white count. Probably won't do a viral load til next time. I am getting antsy to see if the load is changing. She said she will test thyroid every three months but maybe I should see regular doc also?? I am getting real tired of feeling like this but refuse to give up. Its torture trying to eat something no matter what it is now don't even like yogurt anymore lol. WW Motley <dmotley@...> wrote: Check that thyroid regularly. It gets out of whack easily on tx, especially if it already had issues. I always used by belly for shots. Still do if I have to do Imitrex shot. It’s just easier & more fat. Legs bruised more & hurt more. /De -----Original Message-----From: Hepatitis CSupportGroupForDummies [mailto:Hepatitis CSupportGroupForDummies ] On Behalf Of patriciaSent: Friday, June 01, 2007 7:37 PMHepatitis CSupportGroupForDummies Subject: Tim Hey Tim, doing okay sleep wise but around 3rd week couldn't sleep at all. I don't do leg anymore after hitting that vein. Figure its safer in stomach lol. I am really tired but my counts are low and maybe thyroid is off again, its horrible to force yourself to do simple things, don't even like visitors right now. Don't know whats up

but it to will pass. hugs...pat

[Guest guest]

PAT - WW group and chat has been soooo quiet without you we have missed you. We need to keep group going and active more without you. Honey you just hang in there on tx and do the best you can on it. Tx affects all of us very differently some more than others with complications and sides. All we can do is try our best and know that we gave it our best shot or shots no pun intended and hope and pray for all the best. Hoping for All The Best For You. Love and Hugs. Deb patricia <pandas2@...> wrote: This lab next week the thyroid is

being tested this time along with red and white count. Probably won't do a viral load til next time. I am getting antsy to see if the load is changing. She said she will test thyroid every three months but maybe I should see regular doc also?? I am getting real tired of feeling like this but refuse to give up. Its torture trying to eat something no matter what it is now don't even like yogurt anymore lol. WW

[Guest guest]

Get some Boost or Ensure, something you can drink & still get some nutrition. Are you drinking your water? Remember, at least a gallon a day or you'll dehydrate. If you can't do plain water get some Crystal Light or since you're not eating properly, Kool-Aid or the like. You HAVE to eat something girl, how can your body wage war against the dragon with no ammunition! Hugs, SuZie & Sir SpYke the Magnificent - she's right you know, you've got to eat!!!

Next time I'm coming back as a cat

[Guest guest]

We

were checking my thyroid every 3 months till it whacked out then we checked it

every month. We had to triple my synthroid.

/De

RE:

WW

This lab next week the thyroid is being tested this

time along with red and white count. Probably won't do a viral load til

next time. I am getting antsy to see if the load is changing. She said

she will test thyroid every three months but maybe I should see regular doc

also?? I am getting real tired of feeling like this but refuse to give

up. Its torture trying to eat something no matter what it is now don't

even like yogurt anymore lol. WW

[Guest guest]

Hi.. Will try hard to make it to chat even if just for alittle bit. Miss you guys always felt better after a chat. I guess its just nice to post with people who know what you feel and don't judge. Hope all is well with each of you. hugs...WWDeb <posttransplant@...> wrote: PAT - WW group and chat has been soooo quiet without you we have missed you. We need to keep group going and active more without you. Honey you just hang in there on tx and do the best you can on it. Tx affects all of us very differently some more than others with complications and sides. All we can do is try our best and know that we gave it our best shot or shots no pun intended and hope and pray for all the best. Hoping for All The Best For You. Love and Hugs. Deb patricia <pandas2sbcglobal (DOT) net> wrote: This lab next week the thyroid is being tested this time along with red and white count. Probably won't do a viral load til next time. I am getting antsy to see if the load is changing. She said she will test thyroid every three months but maybe I should see regular doc

also?? I am getting real tired of feeling like this but refuse to give up. Its torture trying to eat something no matter what it is now don't even like yogurt anymore lol. WW

[Guest guest]

Hi Suzie yep still drinking water will see doc next week, labs this week yuck. I haven't lost any weight and I do eat but only twice aday with the pills. I do instant breakfast and yogurt etc. during the day between meals. You are such a sweet person Suzie, thank you for being my friend. hugs WW/patsuzie <suzieandsandy@...> wrote: Get some Boost or Ensure, something you can drink & still get some nutrition. Are you drinking your

water? Remember, at least a gallon a day or you'll dehydrate. If you can't do plain water get some Crystal Light or since you're not eating properly, Kool-Aid or the like. You HAVE to eat something girl, how can your body wage war against the dragon with no ammunition! Hugs, SuZie & Sir SpYke the Magnificent - she's right you know, you've got to eat!!! Next time I'm coming back as a cat

[Guest guest]

SWEET????? SuZie??????? You sure you've got the right person? I'm the sweet one around here, ask anybody!!! Sir SpYke the Sweetie (Yeah sure - Sir SpYke the Brat is more like it. Thank you Pat, you're a sweetie too. SuZie)patricia <pandas2@...> wrote: Hi Suzie yep still drinking water will see doc next week, labs

this week yuck. I haven't lost any weight and I do eat but only twice aday with the pills. I do instant breakfast and yogurt etc. during the day between meals. You are such a sweet person Suzie, thank you for being my friend. hugs WW/patsuzie <suzieandsandy > wrote: Get some Boost or Ensure, something you can drink & still get some nutrition. Are you drinking your water? Remember, at least a gallon a day or you'll dehydrate. If you can't do plain water get some Crystal Light or since you're not eating properly, Kool-Aid or the like. You HAVE to eat something girl, how can your body wage war against the dragon with no ammunition! Hugs, SuZie & Sir SpYke the Magnificent - she's right you know, you've got to eat!!! Next time I'm coming back as a cat

Next time I'm coming back as a cat

[Guest guest]

Before My Husband started tx his dr made sure to have all stomach/digestive issues under control. He said tx is very hard on a digestive system. So it makes sense to have all issues addressed.Del Compton <go_deliman@...> wrote: Hi you tx peeps! It sounds as if everyone is doing pretty good , and thats great! WW, not to alarm, but just to nudge a litle... you may have an ulcer in your stomach. This could ked to many other things that could have a negative effect to your health. Are you

eating food that is orange? If bile is coming back up via your esophagus, ("heartburn" is a common term used to describe this), and your poop is orange..well... I look at this as those things are not normal, and when something isn't normal, it ain't right... and if somethin' ain't right, I call the doctor. It's just a thought, I hope you will consider. Deljerri neely <all4jerri > wrote: Hi Tim,I did my shots in my belly till it got too sore and Ilost all the fat there. Now am doing my thighs. Ialso get the silver dollar sized red spots andbruises. The red spots usally last about 6 weeks. Itry and get someone to give me a shot in the butt ifanyone is around to give myself some relief. I take my riba whenever I get up and

have something toeat and usually do the second dose around 8 to 10hours later.Jerri --- Hillbilly Tim <knoxweb1 > wrote:> i was told reba did not matter i do 7 am and 8 pm,my> shots leave bigger then dollor red spots.on my> bellyi got maybe 2 spots left.4 wshots ate up my> whole belly.your fine i guess my issues aint as> bad,i have to be thankful more i guess,like micheal> said.> > > > patricia <pandas2sbcglobal (DOT) net> wrote:> Tim are you rotating your shots? Like> last week I used right side of belly tonight I will> do it on the left. My redness stays for along time> and they are large sometimes I bruise also. I don't> do my legs anymore after hitting vein and I have the> fat believe me lol. There is lots of room on

tummy> for injections still can't believe they are testing> viral load already I am jealous just kidding. Also> don't take your pills[ the poison ones] to close to> going to bed as they do keep you awake did your doc> tell you that? I was also told doses need to be at> least 6 but better 8 hrs. apart. On shot night they> have me do a tylenol extra strength GEL tab as it> works faster 1 hour before shot second tylenol after> shot and then restoril and its nighty-nite for me> usually. My big problem is my stomach hurts all the> time now alot of indigestion and that nasty burning> yuk that comes up. I am just a mess today plus I> have the runs today and it is orange. HA to much> info> sorry to gross you out but that was kinda trippy> never happened before and no it wasn't blood just> weird. Rambling sorry going to leave you alone now> Tim. You aren't

alone so when you cry just remember> Pat [WW] in Calif. is crying with you sweetie, yeah> like that makes you feel better lol. I am in the> battle with you Tim I say death to Bubba my dragon> or at least his evil self. I actually am fond of> Bubba as I love dragons but I want his evil side> dead and gone. Sorry there I go again rambling. > WW/pat> > Hillbilly Tim <knoxweb1 > wrote: ALSO> THE RED IS STILL THERE WHERE ALL 4 SHOTS HAVE GONE> DOLLOR SIZE NO BURNING BUT IT LEAVES LITTLE ROOM FOR> SHOT #5 GO BETWEEN ? OR WHAT.LEGGS I CANT DO NO FAT> THERE DOC S> > > > > > > > > > > > > Tim Parsons > > knoxville,tn 37931 > > 865-588-2465 x107 work> > > www.knoxville1.com> >

> ---------------------------------> Luggage? GPS? Comic books? > Check out fitting gifts for grads at Search. > > > > > > > > > > > Tim Parsons > > knoxville,tn 37931 > > 865-588-2465 x107 work> > > www.knoxville1.com> > > > ---------------------------------> Need a vacation? Get great deals to amazing places> on Travel. __________________________________________________________Got a little couch potato? Check out fun summer activities for kids.http://search./search?fr=oni_on_mail & p=summer+activities+for+kids & cs=bz

Boardwalk for $500? In 2007? Ha! Play Monopoly Here and Now (it's updated for today's economy) at Games.

Looking for a deal? Find great prices on flights and hotels with FareChase.

[Guest guest]

When I first found this group, I was so happy to find that alot of what I had been through was real. I had felt like I was losing what little mind I had left. I would experiance something and be dismissed. The first hep dr I had down played my problems. Then I only had him 3 months during tx. The dr I found that would finally agree to put me on tx had never had a hep patient before me!!! He was never checking my labs like they were supposed to be checked. Not watching my blood counts and such. But somehow I made it through tx. I found this group and realised I WAS CRAZY BUT I WAS NOT INSANE!!!! HAHAAAAA. love and hugs dpatricia <pandas2@...> wrote: Wow that is weird so happy that its not in my head haa. My husband said is it a cramp etc. and I couldn't explain it. I will get kid vitamin am willing to try anything LOL. Its happened three times now and I don't like it at all. Hugs...ww .

Get your own web address. Have a HUGE year through Small Business.

[Guest guest]

What stuff? I've got two '08 calendars ... ??? "You can deprive the body, but the soul needs chocolate"-Sapphyre

WW

Anyone know when the new 2008 stuff comes out?

NH. 236 June 25th

See what's new at AOL.com and Make AOL Your Homepage.

[Guest guest]

Usually WW changes there books to reflect the year and the materials. I thought it was in oct the 2008 stuff came out.

NH. See what's new at AOL.com and Make AOL Your Homepage.

[Guest guest]

no the plan is changing some, at least core is a little not sure about flex. At least from what I heard.

amy

Re: WW

Usually WW changes there books to reflect the year and the materials. I thought it was in oct the 2008 stuff came out.

NH.

See what's new at AOL.com and Make AOL Your Homepage.

[Guest guest]

ww has some changes coming out for their plans this next year.

amy

WW

Anyone know when the new 2008 stuff comes out?

NH. 236 June 25th

See what's new at AOL.com and Make AOL Your Homepage.

[Guest guest]

Group, I love what Sylvia had to say about WW "watch and worry". Three weeks in and I can actually see light at the end of the tunnel. While I know that I can not control my CLL I can control my understanding and attitude. Wow! I can actually sleep now.. Thanks to everyone for the guidance and encouragement. Re: What should I look for? - Date: Monday, July 6, 2009, 10:43 PM

- keep on top of your blood readings, and you can do a self poking around, your armpits, your neck and your groin. These things alone will tell you how you are doing.

In a message dated 7/5/2009 8:03:20 P.M. Eastern Daylight Time, skiserddscomcast (DOT) net writes:

My next visit to the Oncologist is not until September. What questions should I be asking and what should I be looking for? I guess I am one of the WW the group has made reference too.

I had night sweats about three months ago but they are now gone. Is this typical and are there other things I should be looking for are doing?

Salt Lake City Utah Age 50 Diagnosed with CLL June 8 2009 count was 50,000 and blood test did not indicate the type of CLL that is most agressive. Mother passed away from leukemia at age 58.

..

Summer concert season is here! Find your favorite artists on tour at TourTracker. com.