Guest guest Posted February 11, 2007 Report Share Posted February 11, 2007 Since we deal with seizures on a continuing basis, I thought I would relate our experience. For years I'd been using CLO for our now 22 yr old. We used it topically at first because it made her so irritable orally. She had upper arms and back full of chicken skin that never did clear on it. She was 16 before I could get anyone to do an EFA profile-no I didn't know about Direct labs then. She had omega 3's off the wall high, cis and trans. EPA and DHA were also elevated. Down in the pit was GLA and LA[omega 6's]. The supplements recommended for this included, soy, borage and EPO. All were related to increased seizure activity when I tried them orally. She does tolerate EPO topically and after several months of this, the chicken skin went away. We still do it topically. If we miss a few days the skin symptoms begin to appear again. Her GLA and LA levels upon measuring have come up slightly but still are quite low. The topical EPO has not contributed to any seizure activity or any 'pre-seizure' irritability[very bad behavior by others' observation] that I can see. In Autism Treatment , " Sass and Rem " <Moroza- @...> wrote: > > I'll look it up in her book and also post her website tomorrow. Sara x > > > > Re: Omega 3 > > > > > Sara, > > thanks, I'd love to hear more on this. I'm sorry my message was > probably not clear, the reason I said I would steer clear of EPO is due > to my son having epilepsy and when he was 2yrs I tried EPO and the > seizures were worse on it. > > emily > > > > > > > > > > > > > > > > Hi, > > > > > > > > > > Can you tell me what brand or source of Omega 3, > > > > > you've found that is > > > > > good (apart from Eye Q which was posted about > > > > > recently). > > > > > > > > > > Also what are Vega supplements like, anyone know > > > if > > > > > they are o.k./good? > > > > > > > > > > cheers, > > > > > > > > > > emily > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > ____________ _________ _________ _________ _________ > > > __________________ _________ _________ > > > > It's here! Your new message! > > > > Get new email alerts with the free Toolbar. > > > > http://tools. search.. com/toolbar/ features/ > > > mail/ > > > > > > > > > > > > > > > > > > > --------------------------------- > > > No virus found in this incoming message.Checked by AVG > > > Free Edition.Version: 7.5.441 / Virus Database: > > > 268.17.32/677 - Release Date: 08/02/2007 21:04 > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > __________________________________________________________\ > > ____________ > > > The fish are biting. > > > Get more visitors on your site using Search Marketing. > > > http://searchmarket > > <http://searchmarket > <http://searchmarketing./arp/sponsoredsearch_v2.php> > ing./arp/sponsoredsearch_v2.php> > > ing./arp/sponsoredsearch_v2.php > > > > > > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted February 12, 2007 Report Share Posted February 12, 2007 Hi , Thank you for sharing your experience of EPO and CLO. I've not come across topical EPO or CLO - where do you get it from? You've mentioned that your daughter's Omega 3 were " off the wall " - any reason why or had you been supplementing her with EFAs? Also the " chicken skin " you've mentioned - was this itchy? I'm asking this because N. had a very itchy rash all round his neck when he was 5yrs and we thought it was eczema and now he has an itchy rash on his chest and it does look like chicken skin if he hasn't itched it. I wonder if it is the same as your daughter's. thanks, emily > > > > > > > > > > > > > > > > > Hi, > > > > > > > > > > > > Can you tell me what brand or source of Omega 3, > > > > > > you've found that is > > > > > > good (apart from Eye Q which was posted about > > > > > > recently). > > > > > > > > > > > > Also what are Vega supplements like, anyone know > > > > if > > > > > > they are o.k./good? > > > > > > > > > > > > cheers, > > > > > > > > > > > > emily > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > ____________ _________ _________ _________ _________ > > > > __________________ _________ _________ > > > > > It's here! Your new message! > > > > > Get new email alerts with the free Toolbar. > > > > > http://tools. search.. com/toolbar/ features/ > > > > mail/ > > > > > > > > > > > > > > > > > > > > > > > > > --------------------------------- > > > > No virus found in this incoming message.Checked by AVG > > > > Free Edition.Version: 7.5.441 / Virus Database: > > > > 268.17.32/677 - Release Date: 08/02/2007 21:04 > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > __________________________________________________________\ > > > ____________ > > > > The fish are biting. > > > > Get more visitors on your site using Search Marketing. > > > > http://searchmarket > > > <http://searchmarket > > <http://searchmarketing./arp/sponsoredsearch_v2.php> > > ing./arp/sponsoredsearch_v2.php> > > > ing./arp/sponsoredsearch_v2.php > > > > > > > > > > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted February 12, 2007 Report Share Posted February 12, 2007 Hi , Thank you for sharing your experience of EPO and CLO. I've not come across topical EPO or CLO - where do you get it from? You've mentioned that your daughter's Omega 3 were " off the wall " - any reason why or had you been supplementing her with EFAs? Also the " chicken skin " you've mentioned - was this itchy? I'm asking this because N. had a very itchy rash all round his neck when he was 5yrs and we thought it was eczema and now he has an itchy rash on his chest and it does look like chicken skin if he hasn't itched it. I wonder if it is the same as your daughter's. thanks, emily > > > > > > > > > > > > > > > > > Hi, > > > > > > > > > > > > Can you tell me what brand or source of Omega 3, > > > > > > you've found that is > > > > > > good (apart from Eye Q which was posted about > > > > > > recently). > > > > > > > > > > > > Also what are Vega supplements like, anyone know > > > > if > > > > > > they are o.k./good? > > > > > > > > > > > > cheers, > > > > > > > > > > > > emily > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > ____________ _________ _________ _________ _________ > > > > __________________ _________ _________ > > > > > It's here! Your new message! > > > > > Get new email alerts with the free Toolbar. > > > > > http://tools. search.. com/toolbar/ features/ > > > > mail/ > > > > > > > > > > > > > > > > > > > > > > > > > --------------------------------- > > > > No virus found in this incoming message.Checked by AVG > > > > Free Edition.Version: 7.5.441 / Virus Database: > > > > 268.17.32/677 - Release Date: 08/02/2007 21:04 > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > __________________________________________________________\ > > > ____________ > > > > The fish are biting. > > > > Get more visitors on your site using Search Marketing. > > > > http://searchmarket > > > <http://searchmarket > > <http://searchmarketing./arp/sponsoredsearch_v2.php> > > ing./arp/sponsoredsearch_v2.php> > > > ing./arp/sponsoredsearch_v2.php > > > > > > > > > > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted May 16, 2007 Report Share Posted May 16, 2007 I was made aware today that, presumably under pressure form the insurance industry, a proposal is on the table that EPO (Procrit, Aranesp) would be paid for ONLY if your HGB is below 9, and then only for 12 weeks. Have any of you heard this? If it's true, and if it takes place, we (CIG) should make a hell of a loud noise......Such a rule would border on manslaughter.......(Forgive my emotion......) See what's free at AOL.com. Quote Link to comment Share on other sites More sharing options...
Guest guest Posted May 17, 2007 Report Share Posted May 17, 2007 Worse than useless information. No source, no documentation, no other specifics. Stirs everyone up without any more substance than any random rumor. Quote Link to comment Share on other sites More sharing options...
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