Guest guest Posted January 31, 2006 Report Share Posted January 31, 2006 Hi Shari, Sorry to break the news, but you were misinformed. PCRU means PCR Undetectable. The result would have to be 0.000000 to be PCRU. Zavie [ ] finally pcru ! I just received my test results back from MDACC from my appt. Jan.9th. All of my bone marrow tests were mormal. And my pcr test was 0.01 which the physicians asst. was pretty sure that was as good as negitive. I had tested 0.01 in Kansas back in Oct. but I wanted to have that test done again at MDACC. I thought their test might be more sensitive, but I'm not really sure about that. Either way I am very happy with those results. Feb. 10 will be my 3 year anniversary so it did take me a while to get there, but I only had to take 400mg. Hope everyone is doing well. Shari from Kansas dx feb 10, 03 ccr june 12, 03 pcru at MDACC Jan 9th, 06 Quote Link to comment Share on other sites More sharing options...
Guest guest Posted February 1, 2006 Report Share Posted February 1, 2006 Hi Shari, I'm sorry to say that I agree with Zavie. A PCR of 0.01 is not PCRU. Most PCR's will go for a few more decimals beyond that such as Zavie mentioned. I once read somewhere that some labs consider a PCR of 0.005 to be a three log reduction (which isn't even PCRU, but a good place to be). Try not to be too discouraged though as the vast majority of us are not PCRU. The goal is to get to a 3 log reduction, anything beyond that is gravy. Take care, Tracey Quote Link to comment Share on other sites More sharing options...
Guest guest Posted February 1, 2006 Report Share Posted February 1, 2006 Actually, MDACC says that PCRU is 0.05, so by their standards Shari is at PCRU. The 0.000000 is what we all want, but I myself would be rather pleased with 0.05. Congratulations Shari! Quote Link to comment Share on other sites More sharing options...
Guest guest Posted February 1, 2006 Report Share Posted February 1, 2006 > > Actually, MDACC says that PCRU is 0.05, so by their standards Shari is > at PCRU. The 0.000000 is what we all want, but I myself would be > rather pleased with 0.05. Congratulations Shari! ******************************* But if you have a number (such as 0.05) how can that be PCRU. By its very definition, PCRU, the U stands for " undectable " . Undectable means " none " , or " not detected " . If there was 0.05, then there was " some " , not " none " . I don't understand how MDACC can say that " some " is " none " . Tracey Quote Link to comment Share on other sites More sharing options...
Guest guest Posted February 1, 2006 Report Share Posted February 1, 2006 At 03:08 AM 2/1/06 +0000, you wrote: >But if you have a number (such as 0.05) how can that be PCRU. By its >very definition, PCRU, the U stands for " undectable " . Undectable >means " none " , or " not detected " . If there was 0.05, then there >was " some " , not " none " . I don't understand how MDACC can say >that " some " is " none " . >Tracey Just another one of those discrepancies???? maybe they are saying at that level it is a 3-log reduction and a molecular remission????? C. Quote Link to comment Share on other sites More sharing options...
Guest guest Posted February 1, 2006 Report Share Posted February 1, 2006 -If you notice in my post I said she said it is almost as good as negative and that Dr. Faderl considers it a molecular remission. And I am pleased with it either way. If it bothers some that I said I was pcru then I will just keep that to myself. Shari from Kansas -- In , " Zavie miller " <zmiller@s...> wrote: > > Hi Shari, > > Sorry to break the news, but you were misinformed. > > PCRU means PCR Undetectable. The result would have to be 0.000000 to be > PCRU. > > Zavie > > > > > [ ] finally pcru ! > > I just received my test results back from MDACC from my appt. Jan.9th. > All of my bone marrow tests were mormal. And my pcr test was 0.01 > which the physicians asst. was pretty sure that was as good as > negitive. I had tested 0.01 in Kansas back in Oct. but I wanted to > have that test done again at MDACC. I thought their test might be more > sensitive, but I'm not really sure about that. Either way I am very > happy with those results. Feb. 10 will be my 3 year anniversary so it > did take me a while to get there, but I only had to take 400mg. Hope > everyone is doing well. > > Shari from Kansas > dx feb 10, 03 > ccr june 12, 03 > pcru at MDACC Jan 9th, 06 > > > > > > > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted February 1, 2006 Report Share Posted February 1, 2006 -Thank you Amy, I am very pleased with my results. I hope you hit those numbers real soon too. Shari from Kansas -- In , " Amy B. " <aimesc31@y...> wrote: > > Actually, MDACC says that PCRU is 0.05, so by their standards Shari is > at PCRU. The 0.000000 is what we all want, but I myself would be > rather pleased with 0.05. Congratulations Shari! > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted February 1, 2006 Report Share Posted February 1, 2006 Sorry Zavie but I think your comment was a bit miserable and uncalled for. If I was at that level and felt so pleased and then received that kind of comment I would have felt crushed! Jackie Petropoulos [ ] finally pcru ! > > I just received my test results back from MDACC from my appt. Jan.9th. > All of my bone marrow tests were mormal. And my pcr test was 0.01 > which the physicians asst. was pretty sure that was as good as > negitive. I had tested 0.01 in Kansas back in Oct. but I wanted to > have that test done again at MDACC. I thought their test might be more > sensitive, but I'm not really sure about that. Either way I am very > happy with those results. Feb. 10 will be my 3 year anniversary so it > did take me a while to get there, but I only had to take 400mg. Hope > everyone is doing well. > > Shari from Kansas > dx feb 10, 03 > ccr june 12, 03 > pcru at MDACC Jan 9th, 06 > > > > > > > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted February 1, 2006 Report Share Posted February 1, 2006 Dear Shari, I am truly sorry that I upset you with my comment. My intention was to point out that Dr. Faderl's assistant was wrong. We use the term PCRU to mean molecular remission. Dr. Faderl is one of the top doctors at MD , especially when it comes to treating patients with ALL. Dr. Faderl knows exactly what PCRU is and would never say that a PCR result of .01 is PCRU. I realize that I spoiled your joy and apologize to you and anyone else who was offended by my untimely comment. Zavie [ ] finally pcru ! > > I just received my test results back from MDACC from my appt. Jan.9th. > All of my bone marrow tests were mormal. And my pcr test was 0.01 > which the physicians asst. was pretty sure that was as good as > negitive. I had tested 0.01 in Kansas back in Oct. but I wanted to > have that test done again at MDACC. I thought their test might be more > sensitive, but I'm not really sure about that. Either way I am very > happy with those results. Feb. 10 will be my 3 year anniversary so it > did take me a while to get there, but I only had to take 400mg. Hope > everyone is doing well. > > Shari from Kansas > dx feb 10, 03 > ccr june 12, 03 > pcru at MDACC Jan 9th, 06 > > > > > > > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted February 1, 2006 Report Share Posted February 1, 2006 My information (my husband's PCR is done at MDACC) is the 0.05 is considered a 3 log reduction at MDACC. > > But if you have a number (such as 0.05) how can that be PCRU. By its > very definition, PCRU, the U stands for " undectable " . Undectable > means " none " , or " not detected " . If there was 0.05, then there > was " some " , not " none " . I don't understand how MDACC can say > that " some " is " none " . > Tracey > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted February 3, 2006 Report Share Posted February 3, 2006 > > > > Hi Shari, > > > > Sorry to break the news, but you were misinformed. > > > > PCRU means PCR Undetectable. The result would have to be 0.000000 > to be > > PCRU. > > > > Zavie > > > > > > > > > > [ ] finally pcru ! > > > > I just received my test results back from MDACC from my appt. > Jan.9th. > > All of my bone marrow tests were mormal. And my pcr test was 0.01 > > which the physicians asst. was pretty sure that was as good as > > negitive. I had tested 0.01 in Kansas back in Oct. but I wanted > to > > have that test done again at MDACC. I thought their test might be > more > > sensitive, but I'm not really sure about that. Either way I am > very > > happy with those results. Feb. 10 will be my 3 year anniversary so > it > > did take me a while to get there, but I only had to take 400mg. > Hope > > everyone is doing well. > > > > Shari from Kansas > > dx feb 10, 03 > > ccr june 12, 03 > > pcru at MDACC Jan 9th, 06 > > > > > > > > > > > > > > Quote Link to comment Share on other sites More sharing options...
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