Guest guest Posted February 3, 2006 Report Share Posted February 3, 2006 HI EVERYONE...WELL FEB 1st BEEN AND GONE AND I FORGOT TO START MY GLEEVEC. BUT COME 2nd FEB, EVERYONE WAS ON MY TAIL TO START AGAIN WHICH I DID. IM SORRY TO SAY NOT MANY NICE THOUGHTS CAME FROM ME THIS MORNING WHILE MY HEAD WAS DOWN THE BOWL...AND IF IT WASNT THAT END IT WAS THE OTHER.. AMAZING...SHOWS HOW STRONG IT IS..MY FINGERS ALSO WERE SO PUFFY THIS MORNING AND WHEN I WENT TO GET OUT OF BED THERE WAS NO MORE LEAPING OUT OF BED..I SEE TIM ON 16th FEB SO WE ARE GONNA HAVE TO DO SOME NEGOTIATION WITH THE NEW DRUG...(I CAN ONLY HOPE) THANKS TO EVERYONE FOR YOUR SUPPORT. PLEASE DONT POST BACK..TRY THIS OR TRY THAT...OR SAY TIM CAN GET YOU THE DRUG....IVE TRIED EVERY DRUG AVALIABLE FROM RAH FOR VOMITING AND DIAREAH..AND PLEASE REMEMBER AUSTRALIA IS BEHIND AMERICA SO THE NEW DRUGS ARENT READY AVALIABLE FOR PEOPLE UNLESS ON TRIAL..WHICH I CANT GO ON AT THIS TIME..mmmm WELL SEE..FINGERS CROSSED FOR FEB 16th. SUSIE LEECH DX NOV 2002 Quote Link to comment Share on other sites More sharing options...
Guest guest Posted February 3, 2006 Report Share Posted February 3, 2006 Hi Susie, We both knew that this would happen. Surely Tim has enough clout to get you on BMS for compassionate reasons. Zavie [ ] Day 1 HI EVERYONE...WELL FEB 1st BEEN AND GONE AND I FORGOT TO START MY GLEEVEC. BUT COME 2nd FEB, EVERYONE WAS ON MY TAIL TO START AGAIN WHICH I DID. IM SORRY TO SAY NOT MANY NICE THOUGHTS CAME FROM ME THIS MORNING WHILE MY HEAD WAS DOWN THE BOWL...AND IF IT WASNT THAT END IT WAS THE OTHER.. AMAZING...SHOWS HOW STRONG IT IS..MY FINGERS ALSO WERE SO PUFFY THIS MORNING AND WHEN I WENT TO GET OUT OF BED THERE WAS NO MORE LEAPING OUT OF BED..I SEE TIM ON 16th FEB SO WE ARE GONNA HAVE TO DO SOME NEGOTIATION WITH THE NEW DRUG...(I CAN ONLY HOPE) THANKS TO EVERYONE FOR YOUR SUPPORT. PLEASE DONT POST BACK..TRY THIS OR TRY THAT...OR SAY TIM CAN GET YOU THE DRUG....IVE TRIED EVERY DRUG AVALIABLE FROM RAH FOR VOMITING AND DIAREAH..AND PLEASE REMEMBER AUSTRALIA IS BEHIND AMERICA SO THE NEW DRUGS ARENT READY AVALIABLE FOR PEOPLE UNLESS ON TRIAL..WHICH I CANT GO ON AT THIS TIME..mmmm WELL SEE..FINGERS CROSSED FOR FEB 16th. SUSIE LEECH DX NOV 2002 Quote Link to comment Share on other sites More sharing options...
Guest guest Posted December 31, 2010 Report Share Posted December 31, 2010 Congrats. This gives me hope since my LO will be banded in a few weeks. He still does not sleep through the night at 7 months so I am hoping for the best. Does your little guy try to pull it off or mess with it? > > My son who is 7 months received his helmet on Tues, but due to him being sick and having a fever we have been unable to put it on him and start the break in process. Today we decided to try a little at a time. We put in on him and within 45 min of him playing he was a sleep We were told if he happens to fall asleep not to wake him up to remove it. He took a great nap with his helmet on, I hope this means that this is going to be easier than I thought. This is a little relief for me since I was expected the worst. > > 7 month son day 1 > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted January 1, 2011 Report Share Posted January 1, 2011 My son has slept through the night since he was 3 months old, and now during the day when he has it on he seems to sleep alot, he won't play he just wants to be held. I am hoping this will get better as he gets use to it. It's day #2 and he has no problem napping in it. We have not any problems with him messing with it, or pulling at it so far. It is cold here and has been for a while so he is use to wearing a hat when we go any where so I think that has helped us. I hope you the best when you get your band. Keep us posted on how he is doing. son 7 months day #2 > > > > My son who is 7 months received his helmet on Tues, but due to him being sick and having a fever we have been unable to put it on him and start the break in process. Today we decided to try a little at a time. We put in on him and within 45 min of him playing he was a sleep We were told if he happens to fall asleep not to wake him up to remove it. He took a great nap with his helmet on, I hope this means that this is going to be easier than I thought. This is a little relief for me since I was expected the worst. > > > > 7 month son day 1 > > > Quote Link to comment Share on other sites More sharing options...
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