Guest guest Posted February 16, 2002 Report Share Posted February 16, 2002 We thought a low grade temp was normal for Rebekah until a few days after her first IVIG. She was TEMP FREE. I don't think that I 've ever felt her when she didn't feel a bit warm. Pam wife to (15 years) mother to , 8, Hannah, 5, Rebekah 2, and Leah (5-11-2001) Re: !!!! Amen- we don;t want to go anywhere near the hospital or doctor unless his temp or ph's temp spikes. I had them wear masks when we went on Wednesday-- in the ER Sun night they had ph wear a mask when he'd leave the isolation room ( to go get x-rays, etc) never gets these low-grade temps-- just the two other guys. It has to be part of their illness. Drives me nuts... SOmetimes I wonder if it is just normal for them to get these temps... does that make sense? Pattie RE: !!!! 12 weeks straight of sickness qualifies you for sainthood! I read it in the " mother's manual " . Rebekah's low grade temps have returned. She has been between 99.5 and 100.5 for the last three days. This is the original reason we so concerned about her. I don't know what the fevers mean, but, given how sick with respiratory stuff everyone in town is, I'm not taking her in unless her fever spikes. Pam wife to (15 years) mother to , 8, Hannah, 5, Rebekah 2, and Leah (5-11-2001) Quote Link to comment Share on other sites More sharing options...
Guest guest Posted February 16, 2002 Report Share Posted February 16, 2002 We haven't had life-threatening illnesses either, but Rebekah was not thriving. She was acting more like an 18 month old than a 28 month old child. I'm scared to read about the complications and risks of IVIG, Pam wife to (15 years) mother to , 8, Hannah, 5, Rebekah 2, and Leah (5-11-2001) Re: !!!! AAAHHHH THAT would explain why gets more fevers than ph-- he is the one that has SDS AND CVID... ph just has SDS and doesn;t get as many unexplained fevers... very interesting. Our ped wants us to talk to the HEM again about the IVIG.... I just don't know.. he hasn't had life threatening illnesses... and the risks, etc. pattie Re: !!!! Amen- we don;t want to go anywhere near the hospital or doctor unless his temp or ph's temp spikes. I had them wear masks when we went on Wednesday-- in the ER Sun night they had ph wear a mask when he'd leave the isolation room ( to go get x-rays, etc) never gets these low-grade temps-- just the two other guys. It has to be part of their illness. Drives me nuts... SOmetimes I wonder if it is just normal for them to get these temps... does that make sense? Quote Link to comment Share on other sites More sharing options...
Guest guest Posted February 16, 2002 Report Share Posted February 16, 2002 We haven't had life-threatening illnesses either, but Rebekah was not thriving. She was acting more like an 18 month old than a 28 month old child. I'm scared to read about the complications and risks of IVIG, Pam wife to (15 years) mother to , 8, Hannah, 5, Rebekah 2, and Leah (5-11-2001) Re: !!!! AAAHHHH THAT would explain why gets more fevers than ph-- he is the one that has SDS AND CVID... ph just has SDS and doesn;t get as many unexplained fevers... very interesting. Our ped wants us to talk to the HEM again about the IVIG.... I just don't know.. he hasn't had life threatening illnesses... and the risks, etc. pattie Re: !!!! Amen- we don;t want to go anywhere near the hospital or doctor unless his temp or ph's temp spikes. I had them wear masks when we went on Wednesday-- in the ER Sun night they had ph wear a mask when he'd leave the isolation room ( to go get x-rays, etc) never gets these low-grade temps-- just the two other guys. It has to be part of their illness. Drives me nuts... SOmetimes I wonder if it is just normal for them to get these temps... does that make sense? Quote Link to comment Share on other sites More sharing options...
Guest guest Posted February 16, 2002 Report Share Posted February 16, 2002 Please keep us posted on the news!!!! Or a diagnosis. Thinking of you. It is always stressful waiting for the doctor to call. We've had a relaxing day here... 's temp is up to 100 now. UGH.. We palyed games, builtr forts, read books, did arts and crafts, and watched Star Wars a million times. LOL is out of town and I am about to go STIR CRAZY. I got out with last night and brought him to the book store to use the gift card he got for his B-day. We are now in week 12 of illness for his brothers adn I am going INSANE. I can;t wait until spring-- I pray it brings a week or two of health. Int he last 3 years we have not had much health at all-- our record has been 3 weeks ONCE... mostly we go one week and then the sickness starts up again... sometimes its just days. Sorry for complaining. I'm just suffering from Cabin fever! Pattie Re: !!!! Pam-- we home school but NOT because of the boys being sick... we had decided to home school when our oldest was 2 1/2... although... I do wonder if we hadn;t decided back then if we would have later with the boys being sick Quote Link to comment Share on other sites More sharing options...
Guest guest Posted February 16, 2002 Report Share Posted February 16, 2002 Please keep us posted on the news!!!! Or a diagnosis. Thinking of you. It is always stressful waiting for the doctor to call. We've had a relaxing day here... 's temp is up to 100 now. UGH.. We palyed games, builtr forts, read books, did arts and crafts, and watched Star Wars a million times. LOL is out of town and I am about to go STIR CRAZY. I got out with last night and brought him to the book store to use the gift card he got for his B-day. We are now in week 12 of illness for his brothers adn I am going INSANE. I can;t wait until spring-- I pray it brings a week or two of health. Int he last 3 years we have not had much health at all-- our record has been 3 weeks ONCE... mostly we go one week and then the sickness starts up again... sometimes its just days. Sorry for complaining. I'm just suffering from Cabin fever! Pattie Re: !!!! Pam-- we home school but NOT because of the boys being sick... we had decided to home school when our oldest was 2 1/2... although... I do wonder if we hadn;t decided back then if we would have later with the boys being sick Quote Link to comment Share on other sites More sharing options...
Guest guest Posted February 16, 2002 Report Share Posted February 16, 2002 Amen- we don;t want to go anywhere near the hospital or doctor unless his temp or ph's temp spikes. I had them wear masks when we went on Wednesday-- in the ER Sun night they had ph wear a mask when he'd leave the isolation room ( to go get x-rays, etc) never gets these low-grade temps-- just the two other guys. It has to be part of their illness. Drives me nuts... SOmetimes I wonder if it is just normal for them to get these temps... does that make sense? Pattie RE: !!!! 12 weeks straight of sickness qualifies you for sainthood! I read it in the " mother's manual " . Rebekah's low grade temps have returned. She has been between 99.5 and 100.5 for the last three days. This is the original reason we so concerned about her. I don't know what the fevers mean, but, given how sick with respiratory stuff everyone in town is, I'm not taking her in unless her fever spikes. Pam wife to (15 years) mother to , 8, Hannah, 5, Rebekah 2, and Leah (5-11-2001) Quote Link to comment Share on other sites More sharing options...
Guest guest Posted February 16, 2002 Report Share Posted February 16, 2002 Amen- we don;t want to go anywhere near the hospital or doctor unless his temp or ph's temp spikes. I had them wear masks when we went on Wednesday-- in the ER Sun night they had ph wear a mask when he'd leave the isolation room ( to go get x-rays, etc) never gets these low-grade temps-- just the two other guys. It has to be part of their illness. Drives me nuts... SOmetimes I wonder if it is just normal for them to get these temps... does that make sense? Pattie RE: !!!! 12 weeks straight of sickness qualifies you for sainthood! I read it in the " mother's manual " . Rebekah's low grade temps have returned. She has been between 99.5 and 100.5 for the last three days. This is the original reason we so concerned about her. I don't know what the fevers mean, but, given how sick with respiratory stuff everyone in town is, I'm not taking her in unless her fever spikes. Pam wife to (15 years) mother to , 8, Hannah, 5, Rebekah 2, and Leah (5-11-2001) Quote Link to comment Share on other sites More sharing options...
Guest guest Posted February 16, 2002 Report Share Posted February 16, 2002 AAAHHHH THAT would explain why gets more fevers than ph-- he is the one that has SDS AND CVID... ph just has SDS and doesn;t get as many unexplained fevers... very interesting. Our ped wants us to talk to the HEM again about the IVIG.... I just don't know.. he hasn't had life threatening illnesses... and the risks, etc. pattie Re: !!!! Amen- we don;t want to go anywhere near the hospital or doctor unless his temp or ph's temp spikes. I had them wear masks when we went on Wednesday-- in the ER Sun night they had ph wear a mask when he'd leave the isolation room ( to go get x-rays, etc) never gets these low-grade temps-- just the two other guys. It has to be part of their illness. Drives me nuts... SOmetimes I wonder if it is just normal for them to get these temps... does that make sense? Quote Link to comment Share on other sites More sharing options...
Guest guest Posted February 16, 2002 Report Share Posted February 16, 2002 AAAHHHH THAT would explain why gets more fevers than ph-- he is the one that has SDS AND CVID... ph just has SDS and doesn;t get as many unexplained fevers... very interesting. Our ped wants us to talk to the HEM again about the IVIG.... I just don't know.. he hasn't had life threatening illnesses... and the risks, etc. pattie Re: !!!! Amen- we don;t want to go anywhere near the hospital or doctor unless his temp or ph's temp spikes. I had them wear masks when we went on Wednesday-- in the ER Sun night they had ph wear a mask when he'd leave the isolation room ( to go get x-rays, etc) never gets these low-grade temps-- just the two other guys. It has to be part of their illness. Drives me nuts... SOmetimes I wonder if it is just normal for them to get these temps... does that make sense? Quote Link to comment Share on other sites More sharing options...
Guest guest Posted February 16, 2002 Report Share Posted February 16, 2002 Pam - I wanted to remind you to please cut the previous post that you are replying to from your email. Including the original along with your reply will bog up the digest emails that some subscribers receive, plus it adds to the email byte size and makes it longer to download email. Some subscribers pay by the minute and added byte size delays the download time. Thank you. Ursula - moderator Quote Link to comment Share on other sites More sharing options...
Guest guest Posted February 16, 2002 Report Share Posted February 16, 2002 Pam - I wanted to remind you to please cut the previous post that you are replying to from your email. Including the original along with your reply will bog up the digest emails that some subscribers receive, plus it adds to the email byte size and makes it longer to download email. Some subscribers pay by the minute and added byte size delays the download time. Thank you. Ursula - moderator Quote Link to comment Share on other sites More sharing options...
Guest guest Posted March 11, 2010 Report Share Posted March 11, 2010 Folks - we are going to start losing our serious members if we do not get this group back on track!!! I have never pulled the plug, but I will if I feel our group is in danger. The mission of this group is to discuss serious medical questions and situations!!!! PLEASE!! Quote Link to comment Share on other sites More sharing options...
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