Guest guest Posted March 8, 2002 Report Share Posted March 8, 2002 You could get a few of those power bars. I'm thinking of Slim Fast, but there are other kinds. It fits in a pocket, so you could take one with you. I sometimes have one for breakfast, and I'm not hungry until lunch. I can understand not wanting to buy food at Six Flags....it's expensive enough to get in the door. Loriann AKA Flitter the Christian clown Wife to Dewight Mom to , 11 years, Down Syndrome, PDD-NOS and Celiac Disease. , 2.5 years and Strong Willed and Celiac Disease Quote Link to comment Share on other sites More sharing options...
Guest guest Posted March 8, 2002 Report Share Posted March 8, 2002 You could get a few of those power bars. I'm thinking of Slim Fast, but there are other kinds. It fits in a pocket, so you could take one with you. I sometimes have one for breakfast, and I'm not hungry until lunch. I can understand not wanting to buy food at Six Flags....it's expensive enough to get in the door. Loriann AKA Flitter the Christian clown Wife to Dewight Mom to , 11 years, Down Syndrome, PDD-NOS and Celiac Disease. , 2.5 years and Strong Willed and Celiac Disease Quote Link to comment Share on other sites More sharing options...
Guest guest Posted March 9, 2002 Report Share Posted March 9, 2002 Thanks for the power bars. I think I'll get one or two. Well I just have to pay 10 dollars for the ticket- think the church got it from a fundraiser or something that's why I gotto pay real cheap. --- Loriann <hsmyangels@...> wrote: > You could get a few of those power bars. I'm > thinking of Slim Fast, but > there are other kinds. It fits in a pocket, so you > could take one with you. > I sometimes have one for breakfast, and I'm not > hungry until lunch. I can > understand not wanting to buy food at Six > Flags....it's expensive enough to > get in the door. > > Loriann AKA Flitter the Christian clown > Wife to Dewight > Mom to , 11 years, Down Syndrome, PDD-NOS and > Celiac Disease. > , 2.5 years and Strong Willed and Celiac > Disease > > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted August 3, 2002 Report Share Posted August 3, 2002 : In our case, 's IgG was in the 200s but finally came up to the low 500s after age two or three (funny how I can't even remember now!), so they don't consider her IgG def anymore. And with extra doses of vaccine we were able to " make " her system develop the right level of antibodies to polio and HiB, two she had trouble with. But endless extra Prevnar vaccines have not helped her develop pneumococcal antibodies, they are lower than ever. So she's considered to have a selective antibody deficiency. That is, she has trouble making antibodies to polysaccharide encapsulated bacteria (such as pneumococcus). I assume that means she supposedly has trouble fighting those bacteria as well, based on the fact that we have to treat most fevers over 102 rectal like they could possibly be an invasive pneumococcal infection. Just our experience -- (mom to , age 3-1/2. Currently has polysaccharide antibody def, previously had transient IgG, IgA, t-cell & other defs) Quote Link to comment Share on other sites More sharing options...
Guest guest Posted August 12, 2010 Report Share Posted August 12, 2010 Hi , I know how the dead man walking thing feels..ok,ok,dead woman walking.My lifesaver has been Provigil.I only take it on days I know I have to go somewhere or on days I keep our grands.It perks me up,gives me more mental clarity.I know several on our board at CLLCfriends are taking it.Ask Dr. Furman what he thinks about you taking it.Before I started taking it I was drained and taking three naps a day.I would get up,take my meds and go to the couch and sleep another three hours and then more naps during the day.I still do this on days I don't take the Provigil. Randy and a few others on our board are having great success with the Cal-101. I hope the two good Drs. can put their heads together and come up with something that will help you.You do so much for others and it doesn't go unnoticed.Hang in there.Praying for you! God Bless, Deb Light www.cllcfriends.com Quote Link to comment Share on other sites More sharing options...
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