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Re: Weight Gain-

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Do you have a treadmill in your home? It sounds like that's worth having.

Is it a big outlay?

Lynn wrote:

> Hi !

>

> Yes, you are right. Many people struggle with their weight while on

> Gleevec. Some gain weight and some lose.. It's weird.

>

> Dr. Druker feels that we will live a long life with CML. If that is

> true, I want to do everything possible to make that happen. I want my

> heart strong and healthy, mind, bones, muscle and everything else sound

> and fit.

>

> The weight gain will cause other problems down the road if I can't find

> a way to nip it in the bud and lose it. I don't want diabetes or other

> cancers to sneak in on top of the CML.

>

> I have recently started an antidepressant, after 2 years on Gleevec. I

> didn't know if my fatigue was Gleevec related or depression setting in,

> so I have started and I feel great! Maybe it was a little of both. I

> still get cold and shiver, and I get fatigued still, but not to point

> of having to take a nap. So, I'm getting more accomplished. I still

> go easy on myself somedays.. and I have learned to pamper myself and

> give back to myself, things that I haven't done for awhile.

>

> I am eating very healthy, and have dropped all white flour and sugar

> out of my diet.. and coffee too. I have stepped up the exercise

> significantly. Even if I don't feel like it, or feel sluggish, I still

> do it. I just set the treadmill to a slower speed, put on my favorite

> tunes, and zone out and go to my happy place and get it done. Then, I

> feel so much better that I did.

>

> This is a topic I think we need to discuss on this group.

>

> Sincerely,

>

> Lynn (Snickersunny)

> DX'd 12/03

> PCRU

>

> I've completely lost hope that I can lose weight on Gleevec. It is

> constant work just not to gain more and sometimes despite my regimen it

> creeps up anyway. I'd be grateful for any and all advice! It sure is

> crummy for the morale.

>

>

>

>

>

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Hi ,

Yes, my hubby and I bought our treadmill about a year ago from HSN

(Home Shopping Network). It's a Proform. They come out with new ones

every year, but our model cost around $650.00 and they let you split

up your payment 5 ways... with no interest attached.. and it had free

shipping.

We bought something that was strong and powerful and had a good wide

and long tread. Don't buy something flimsy. You will only be

disappointed. My husband is 6'4 " and he can easily run on ours

without feeling like he's going to fall off. He was using it the

other night and said to me... " Babe, this is one of the best things

we've bought for ourselves in a long time! " .. I agreed.

We live in WA State, and it rains much of the year. I prefer to walk

outside, but I hate being wet and cold. So, it's a win/win thing.

We also set up my bike trainer. You attach your back wheel of a

regular 12 speed bike onto the trainer, and spin. You can still

change your gears and everything, so I'm going to start that back up

again as well.

Good luck! Lynn

>

> > Hi !

> >

> > Yes, you are right. Many people struggle with their weight while

on

> > Gleevec. Some gain weight and some lose.. It's weird.

> >

> > Dr. Druker feels that we will live a long life with CML. If that

is

> > true, I want to do everything possible to make that happen. I

want my

> > heart strong and healthy, mind, bones, muscle and everything else

sound

> > and fit.

> >

> > The weight gain will cause other problems down the road if I

can't find

> > a way to nip it in the bud and lose it. I don't want diabetes or

other

> > cancers to sneak in on top of the CML.

> >

> > I have recently started an antidepressant, after 2 years on

Gleevec. I

> > didn't know if my fatigue was Gleevec related or depression

setting in,

> > so I have started and I feel great! Maybe it was a little of

both. I

> > still get cold and shiver, and I get fatigued still, but not to

point

> > of having to take a nap. So, I'm getting more accomplished. I

still

> > go easy on myself somedays.. and I have learned to pamper myself

and

> > give back to myself, things that I haven't done for awhile.

> >

> > I am eating very healthy, and have dropped all white flour and

sugar

> > out of my diet.. and coffee too. I have stepped up the exercise

> > significantly. Even if I don't feel like it, or feel sluggish, I

still

> > do it. I just set the treadmill to a slower speed, put on my

favorite

> > tunes, and zone out and go to my happy place and get it done.

Then, I

> > feel so much better that I did.

> >

> > This is a topic I think we need to discuss on this group.

> >

> > Sincerely,

> >

> > Lynn (Snickersunny)

> > DX'd 12/03

> > PCRU

> >

> > I've completely lost hope that I can lose weight on Gleevec. It is

> > constant work just not to gain more and sometimes despite my

regimen it

> > creeps up anyway. I'd be grateful for any and all advice! It sure

is

> > crummy for the morale.

> >

> >

> >

> >

> >

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My same old stretches-and-calisthenics routine I've been doing for years

suddenly isn't enough to keep the brakes on. Plus, you know how Gleevec can

give you those sore bones and joints. I'm thinking I need to find an

alternative type of exercise. Thanks a million all for your helpful

suggestions!

Lynn wrote:

> Hi !

>

> Yes, you are right. Many people struggle with their weight while on

> Gleevec. Some gain weight and some lose.. It's weird.

>

> Dr. Druker feels that we will live a long life with CML. If that is

> true, I want to do everything possible to make that happen. I want my

> heart strong and healthy, mind, bones, muscle and everything else sound

> and fit.

>

> The weight gain will cause other problems down the road if I can't find

> a way to nip it in the bud and lose it. I don't want diabetes or other

> cancers to sneak in on top of the CML.

>

> I have recently started an antidepressant, after 2 years on Gleevec. I

> didn't know if my fatigue was Gleevec related or depression setting in,

> so I have started and I feel great! Maybe it was a little of both. I

> still get cold and shiver, and I get fatigued still, but not to point

> of having to take a nap. So, I'm getting more accomplished. I still

> go easy on myself somedays.. and I have learned to pamper myself and

> give back to myself, things that I haven't done for awhile.

>

> I am eating very healthy, and have dropped all white flour and sugar

> out of my diet.. and coffee too. I have stepped up the exercise

> significantly. Even if I don't feel like it, or feel sluggish, I still

> do it. I just set the treadmill to a slower speed, put on my favorite

> tunes, and zone out and go to my happy place and get it done. Then, I

> feel so much better that I did.

>

> This is a topic I think we need to discuss on this group.

>

> Sincerely,

>

> Lynn (Snickersunny)

> DX'd 12/03

> PCRU

>

> I've completely lost hope that I can lose weight on Gleevec. It is

> constant work just not to gain more and sometimes despite my regimen it

> creeps up anyway. I'd be grateful for any and all advice! It sure is

> crummy for the morale.

>

>

>

>

>

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  • 3 months later...
Guest guest

Thanks for your post . It's always nice to hear from someone going through

the same things. You sound very similar to me. My biggest obstacle is going to

be staying away from the scale. I'm really hoping that the addition of the Udo's

oil is going to help my skin, nails, hair, and cravings. I'm going to try to add

calories slowly. Yesterday and today, I've gotten up to 1800, which is a big

step for me. I'd love to team up and work together to meet our goals!

kaitainen <no_reply > wrote: Thank you, Tara, for your recent

posts.

I am measuring about 18% on the Tanita and/or Omron, so that makes

me.... 13-14%? (Are you using athlete mode on them?) My weight is

just slightly higher than yours so we are probably similar height

and/or composition.

Your posts both inspire me and scare me because they are so in line

with my own experiences. I am up/down with my sugar cravings and

often fulfill them with fake sugar which just makes them worse.

Once I pretty much just ate a whole container of that Walden Farms

chocolate dip with a spoon. Bad aftertaste but it still seemed like

the 'right' thing to do at the time. I think you know what I

mean....

knows what she is talking about so I try to trust her and

BELIEVE what she says. Especially regarding the calorie cut-down

spiral from hell. I'm averaging about 1550 per day and have been

for over a year, but lately have plateaued in weight and even have

this suspicion that I am putting on some fat. Pants fit just a

teeny bit differently than before, etc. Eeek!

So logically I KNOW that I need to shake up the metabolism by eating

MORE for awhile, especially adding good fats, instead of eating

LESS, which is the temptation. But it is SOOOO hard to do that.

Eating " clean " seems to help the most, and that first week is

killer. If I can stay away from both real and fake sugar for a

whole week the cravings just melt away, but thinking about

accomplishing that is almost painful when all I want is a pint of

fat free frozen yogurt, and NOW, dammit! Like you and I do

not have that " too much of a good thing is too much " OFF-switch when

eating carbs in particular. I used to eat a whole box of dry cereal

at a time when I was in college, with no problems whatsoever. At

least then I didn't have guilt about it, though, so in some sense it

was a less messed-up situation.

Please email me directly if you'd like to 'team up' and try to work

together to meet our goals of metabolism reform and clean eating....

maybe peer pressure will help? Hmmm....

in Albuquerque

>

> Great post Felicity. You're right. I have that problem with sweets

like cookies and cake. I just cannot enjoy a small amount and stop.

It sets something off in me that I don't like. I know I need to

figure things out for myself, and I will!

>

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Guest guest

Good work Tara -

What is the date of your upcoming wedding?

n

At 08:32 PM 5/12/2006, you wrote:

><SNIP> Yesterday and today, I've gotten up to 1800, which is a big step

>for me.

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Guest guest

June 17th! It's coming up so soon! My fiancee has been so great and a lot more

supportive. He's finally getting that I need to eat more HEALTHY foods in order

to gain weight, and he wants to start eating healthier too!

n wrote: Good work Tara -

What is the date of your upcoming wedding?

n

At 08:32 PM 5/12/2006, you wrote:

><SNIP> Yesterday and today, I've gotten up to 1800, which is a big step

>for me.

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