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High priced gleevec

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hi everybody,

I'm not posting much here but would like to just comment on the high

priced Gleevec shortly.

I have been diagnosed with CML February 2005 and since then I am on

Gleevec 400, subsidised from our Government.

The original price of Gleevec is AUD 3927,97 per Month.

I pay AUD 28,60 on prescription.

After the results of my Bone Marrow Biopsy on January 9th this year (

the 2nd since diagnosed with CML) I will know if I still get Gleevec

subsidised.

I am off Gleevec since January the 8th, had a blood Test done 6 days

ago, have not heard anything from my doctor, I assume so far all is ok.

I will have another Blood test done this sunday and then meet with my

doctor on tuesday to hear the news.

After having been on and off Gleevec constantly because of strong

headaches, I believe that the 400mg are too strong for me, but..who knows.

I had the doseage reduced to every second and then third day and now

have some 6 full packs left.

Should the subsidy not be granted I have at least a little time to

look for an alternative.

Let's hope for the best;-)

With my best wishes for all my fellow CMLer,

Ursula in Australia

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