Re: Question regarding sleep

[Guest guest]

In a message dated 25/01/2007 17:13:05 GMT Standard Time, ktripp99@... writes:

hi, ,

Casey's head is considering smaller than my kids'. However, his tongue is not a problem. it is the tonsils. So, I strongly suggest that you get a sleep study to make sure your son sleep properly. Not enough oxgyen in sleep is not good, you know? Yeah, hope it answers your question... kk and Behnke <behnkesw > wrote:

Hey all,I was wondering if anyone ever had issues with thetongue getting in the way of the airway during sleep? I snuck into my son's room and it sounds like histongue gets in the way.

hi were haveing same prob his tong is very big but he allso has massive tonsels wich will be removed

hugs sylvmum to alewx 2,1/2 big bro to oscar little bro to 8

[Guest guest]

hi, , Casey's head is considering smaller than my kids'. However, his tongue is not a problem. it is the tonsils. So, I strongly suggest that you get a sleep study to make sure your son sleep properly. Not enough oxgyen in sleep is not good, you know? Yeah, hope it answers your question... kk and Behnke <behnkesw@...> wrote: Hey all,I was wondering if anyone ever had issues with thetongue getting in the way of the

airway during sleep? I snuck into my son's room and it sounds like histongue gets in the way.What would you do about it? I did not think that histongue was overly big but I do know that his head ismuch small then my 15 month old.Just wondering! B__________________________________________________________Expecting? Get great news right away with email Auto-Check. Try the Beta.http://advision.webevents./mailbeta/newmail_tools.html

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Hi I just had a sleep apnea test done myself and have it and also my grandson with DS has sleep apnea and has a cpap machine he uses at night. You should try to have Casey checked for it as DS children has small throats and this is why my grandson has it. Yes if you do not get enough oxygen while sleeping it can cause heart problems in the future. Good Luck Ann KATHLEEN TRIPP <ktripp99@...> wrote: hi, , Casey's head is considering smaller than my kids'. However, his tongue is not a problem. it is the tonsils. So, I strongly suggest that you get a sleep study to make sure your son sleep properly. Not enough oxgyen in sleep is not good, you know? Yeah, hope it answers your question... kk and Behnke <behnkesw > wrote: Hey all,I was wondering if anyone ever had issues with thetongue getting in the way of the airway during sleep? I snuck into my son's room and it sounds like histongue gets in the way.What would you do about it? I did not think that histongue was overly big but I do know that his head ismuch small then my 15 month old.Just wondering!

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[Guest guest]

His Tonsils and Adnoids were removed at 15 months. At

last check up they had not grown back (3 months ago).

He had his mouth open and was laying on his pillow

and as I watched him, I saw his tongue slid down

(night light) and he would make a sound then move his

tongue and he was fine. It was really interesting. I

watched him for about 45 min. He did it a few times

during that time frame. He has had a sleep study done

- what a pain.

Thanks for your replies.

B

--- sylviabrtpck@... wrote:

>

>

> In a message dated 25/01/2007 17:13:05 GMT Standard

> Time,

> ktripp99@... writes:

>

>

>

>

> hi, ,

>

> Casey's head is considering smaller than my kids'.

> However, his tongue is

> not a problem. it is the tonsils. So, I strongly

> suggest that you get a

> sleep study to make sure your son sleep properly.

> Not enough oxgyen in sleep is

> not good, you know? Yeah, hope it answers your

> question... kk

>

> and Behnke <behnkesw@...> wrote:

>

>

> Hey all,

>

> I was wondering if anyone ever had issues with the

> tongue getting in the way of the airway during

> sleep?

> I snuck into my son's room and it sounds like his

> tongue gets in the way.

>

>

>

>

>

>

>

>

> hi were haveing same prob his tong is very big but

> he allso has massive

> tonsels wich will be removed

> hugs sylvmum to alewx 2,1/2 big bro to oscar little

> bro to 8

>

> (http://glitter-graphics.com/)

> (http://www.glitter-graphics.com/myspace)

> (http://glitter-graphics.com/)

>

(http://glitter-graphics.com/myspace/text_generator.php)

> (http://glitter-graphics.com/)

> (http://glitter-graphics.com/myspacelayouts)

>

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[Guest guest]

During his sleep study it was determined that he only

spent about 20 sec in REM sleep. We have him on

meletonin now for that.

Thank you for your Reply

B

--- mary ann kamp <ekamp@...> wrote:

> Hi

> I just had a sleep apnea test done myself and have

> it and also my grandson with DS has sleep apnea and

> has a cpap machine he uses at night. You should try

> to have Casey checked for it as DS children has

> small throats and this is why my grandson has it.

> Yes if you do not get enough oxygen while sleeping

> it can cause heart problems in the future.

> Good Luck

> Ann

>

>

> KATHLEEN TRIPP <ktripp99@...> wrote:

> hi, ,

>

> Casey's head is considering smaller than my kids'.

> However, his tongue is not a problem. it is the

> tonsils. So, I strongly suggest that you get a

> sleep study to make sure your son sleep properly.

> Not enough oxgyen in sleep is not good, you know?

> Yeah, hope it answers your question... kk

>

> and Behnke <behnkesw@...> wrote:

> Hey all,

>

> I was wondering if anyone ever had issues with the

> tongue getting in the way of the airway during

> sleep?

> I snuck into my son's room and it sounds like his

> tongue gets in the way.

>

> What would you do about it? I did not think that his

> tongue was overly big but I do know that his head is

> much small then my 15 month old.

>

> Just wondering!

>

> B

>

>

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> Auto-Check.

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>

>

>

>

>

>

>

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[Guest guest]

Obstructive airway is a very common problem with DS. They have smaller then normal airways, but often normal sized tongues and more importantaly, tonsils and adnoids.

has had numerous issues with her airway over the years and we too are having a sleep study done, tomorrow as a matter of fact. :-)

In the mean time, you can try placing a small blanket roll under his neck so his head hyper-extends back- sounds painful, but it's NOT. :-) You want his chin tilted up towards the ceiling just like they do with CPR. This really opens things up and helps.

You should get an apt with his Ear nose and throat specialist and discuss it with him/her.

Carol in IL Mom to seven including , 6 with TOF, AVcanal, GERD, LS, Asthma, subglottal stenosis, and DS.My problem is not how I look. It's how you see me.

Join our Down Syndrome information group -

Down Syndrome Treatment/

Listen to oldest dd's music http://www.myspace.com/vennamusic

Question regarding sleep

Hey all,I was wondering if anyone ever had issues with thetongue getting in the way of the airway during sleep? I snuck into my son's room and it sounds like histongue gets in the way.What would you do about it? I did not think that histongue was overly big but I do know that his head ismuch small then my 15 month old.Just wondering! B____________ _________ _________ _________ _________ _________ _Expecting? Get great news right away with email Auto-Check. Try the Beta.http://advision. webevents. / mailbeta/ newmail_tools. html

Want to start your own business? Learn how on Small Business.

[Guest guest]

my son (9 weeks old) has trouble breathing at night also. to me he

sounds congested. i suction his nose and the doc said his chest is

clear, so it isn't anyhose two things. my question is this: for a

sleep study should i ask the cardiologist or pediatrician to order

it? or maybe i should visit the ear, nose & throat specialist? i am

lost, please help :-(

-- In Down Syndrome Treatment , and

Behnke <behnkesw@...> wrote:

>

> Hey all,

>

> I was wondering if anyone ever had issues with the

> tongue getting in the way of the airway during sleep?

> I snuck into my son's room and it sounds like his

> tongue gets in the way.

>

> What would you do about it? I did not think that his

> tongue was overly big but I do know that his head is

> much small then my 15 month old.

>

> Just wondering!

>

> B

>

>

>

>

______________________________________________________________________

______________

> Expecting? Get great news right away with email Auto-Check.

> Try the Beta.

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>

[Guest guest]

,

Are you the one that said your son is taking a time-released Melatonin? If so, where did you find it? My kids both take Melatonin which works great to get them to fall asleep, but my daughter still wakes up several times during the night. I wonder if a time-released Melatonin would help her sleep through the night? However, I have never seen one that is time-released.

Thanks.

Jill

Mom to Mac & Kit

Re: Question regarding sleep

During his sleep study it was determined that he onlyspent about 20 sec in REM sleep. We have him onmeletonin now for that. Thank you for your Reply B--- mary ann kamp <ekampsbcglobal (DOT) net> wrote:> Hi > I just had a sleep apnea test done myself and have> it and also my grandson with DS has sleep apnea and> has a cpap machine he uses at night. You should try> to have Casey checked for it as DS children has> small throats and this is why my grandson has it. > Yes if you do not get enough oxygen while sleeping> it can cause heart problems in the future.> Good Luck> Ann> > > KATHLEEN TRIPP <ktripp99sbcglobal (DOT) net> wrote:> hi, ,> > Casey's head is considering smaller than my kids'.> However, his tongue is not a problem. it is the> tonsils. So, I strongly suggest that you get a> sleep study to make sure your son sleep properly. > Not enough oxgyen in sleep is not good, you know? > Yeah, hope it answers your question... kk> > and Behnke <behnkesw > wrote:> Hey all,> > I was wondering if anyone ever had issues with the> tongue getting in the way of the airway during> sleep? > I snuck into my son's room and it sounds like his> tongue gets in the way.> > What would you do about it? I did not think that his> tongue was overly big but I do know that his head is> much small then my 15 month old.> > Just wondering!> > B> >__________________________________________________________> Expecting? Get great news right away with email> Auto-Check. > Try the Beta.>http://advision.webevents./mailbeta/newmail_tools.html> > > > > > > > __________________________________________________________Never Miss an EmailStay connected with on your mobile. Get started!http://mobile./services?promote=mail

[Guest guest]

Just a side note, too on sleep apnea and if your child has reflux. My son had obstructive apnea - where the airway becomes closed off and the child can't breathe properly and also central apnea - where the brain doesn't tell the body to breathe. There is a huge correlation between reflux and central apnea.

Hunter had his tonsils and adenoids removed at 10 months. After that he still had 3-4 episodes of obstructive apnea an hour, but he also had about 50 episodes of central apnea an hour as well. Since his reflux was so bad, he ended up having a lap nissen or wrap. After that the central apnea went away and he only had about 3 episodes of obstructive apnea a night.

Well, he's managed to undo the surgery from wretching so hard when he was sick and has basically blown out the wrap. On his last sleep study his central apnea was back. We're going to have to take him to the GI doc and figure out what we should do. He's back on prilosec, but it's not stopping the reflux. Hunter had so many complications with his surgery - related to the G tube they put in temporarily and not the nissen that we are very hesitant to go down THAT road again.

By the way, after Hunter's surgery, he stopped getting sick so much during the winter and now that the reflux is back, he's been sick a lot more this winter.

Anyway, I just wanted to let you know about this too.

Cheryl - mom to my personal three-ring circus - Austin, 10; Tyler - 6; and Hunter - 5 DS

Question regarding sleep

Hey all,I was wondering if anyone ever had issues with thetongue getting in the way of the airway during sleep? I snuck into my son's room and it sounds like histongue gets in the way.What would you do about it? I did not think that histongue was overly big but I do know that his head ismuch small then my 15 month old.Just wondering! B____________ _________ _________ _________ _________ _________ _Expecting? Get great news right away with email Auto-Check. Try the Beta.http://advision. webevents. / mailbeta/ newmail_tools. html

Want to start your own business? Learn how on Small Business.

[Guest guest]

My 16 month old does this herself when she sleeps. She is on her side, her body is in a straight line, but her head is almost at a 90 deg angle to her body, like she is looking up. I guess I need to mention that to the ped next time we go in.

On 1/25/07, Carol in IL <ps1272000@...> wrote:

Obstructive airway is a very common problem with DS. They have smaller then normal airways, but often normal sized tongues and more importantaly, tonsils and adnoids.

has had numerous issues with her airway over the years and we too are having a sleep study done, tomorrow as a matter of fact. :-)

In the mean time, you can try placing a small blanket roll under his neck so his head hyper-extends back- sounds painful, but it's NOT. :-) You want his chin tilted up towards the ceiling just like they do with CPR. This really opens things up and helps.

[Guest guest]

Our daughter sounded the same way. We slept her in a bouncey chair for her first year. The doctors who checked her said it was Tracheamalacia (a floppy trachea due to low muscle tone.). She made so much noise I could not sleep with her in our room at all. She was breatfed, but did have 2 heart defects. Has his heart been echoed and checked out? Joan

[Guest guest]

what i did was asking my pediatrician and he ordered a sleep study. Then I was referred to an ENT doctor after a result of the sleep study. It is a good idea that teh pedicarician could cross out one thing after another thing to make sure things go corrected properly. All you ask for the sleep study. kkmymiraclepj <mlynnbryant@...> wrote: my son (9 weeks old) has trouble breathing at night also. to me he sounds congested. i suction his nose and the doc said his chest is clear, so

it isn't anyhose two things. my question is this: for a sleep study should i ask the cardiologist or pediatrician to order it? or maybe i should visit the ear, nose & throat specialist? i am lost, please help :-(-- In Down Syndrome Treatment , and Behnke <behnkesw@...> wrote:>> Hey all,> > I was wondering if anyone ever had issues with the> tongue getting in the way of the airway during sleep? > I snuck into my son's room and it sounds like his> tongue gets in the way.> > What would you do about it? I did not think that his> tongue was overly big but I do know that his head is> much small then my 15 month old.> > Just wondering!> > B> > > >

________________________________________________________________________> Expecting? Get great news right away with email Auto-Check. > Try the Beta.> http://advision.webevents./mailbeta/newmail_tools.html>

[Guest guest]

Yep! 1 very small hole between his ventricles. To

small for surgery. I may ask about that trach

thing....

Thanks.

B

--- JoanElder@... wrote:

> Our daughter sounded the same way. We slept her in a

> bouncey chair for her

> first year. The doctors who checked her said it was

> Tracheamalacia (a floppy

> trachea due to low muscle tone.). She made so much

> noise I could not sleep

> with her in our room at all. She was breatfed, but

> did have 2 heart defects.

> Has his heart been echoed and checked out?

> Joan

>

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