Guest guest Posted April 10, 2010 Report Share Posted April 10, 2010 Hi, Stacey, We all feel devastated when we're given a diagnosis of lymphoma or another form of cancer. I was, but at present I have been four years since treatment and am very well. I saw my hem/onc on 4/8/10 and results of blood tests and physical exam were good. I'm very grateful for those four years...and expect many more, if that is in God's plan. You will find much help from this group, especially encouragement and information that you can't seem to get elsewhere. Welcome to the group. Norma Oxley dx 12/05; tx 2/06 to 3/06 with six weekly infusions of Rituxan. Have been well since 3/31/06. In a message dated 4/10/2010 2:56:25 P.M. US Mountain Standard Time, stamig1127@... writes: Hi everyone!I was recently diagnosed with CLL/SLL & am in the beginning stages of seeing a doctor. Just wanted to introduce myself & am looking forward to meeting others & learning more about this disease!Take care! Stay well!Stacey Quote Link to comment Share on other sites More sharing options...
Guest guest Posted April 10, 2010 Report Share Posted April 10, 2010 Stacey, I understand your concern, but I was Dx with SCLL in 2000; have been on W & W for ten yrs. Feel great. Never have had treatment. See MDA twice/yr and local onc twice. Excercise...enjoy life. evelyn .. > > Hi, Stacey, > We all feel devastated when we're given a diagnosis of lymphoma or > another form of cancer. I was, but at present I have been four years since > treatment and am very well. I saw my hem/onc on 4/8/10 and results of blood > tests and physical exam were good. I'm very grateful for those four > years...and expect many more, if that is in God's plan. > You will find much help from this group, especially encouragement and > information that you can't seem to get elsewhere. Welcome to the group. > > Norma Oxley > dx 12/05; tx 2/06 to 3/06 with six weekly infusions of Rituxan. Have been > well since 3/31/06. > > > In a message dated 4/10/2010 2:56:25 P.M. US Mountain Standard Time, > stamig1127@... writes: > > > > > Hi everyone! > I was recently diagnosed with CLL/SLL & am in the beginning stages of > seeing a doctor. > > Just wanted to introduce myself & am looking forward to meeting others & > learning more about this disease! > > Take care! Stay well! > Stacey > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted April 11, 2010 Report Share Posted April 11, 2010 Stacey, CLL is highly variable and relatively rare compared to other cancers. What that adds up to is the most important thing is to have a doctor who specializes in CLL as part of your team. I can't overemphasize how critical that might be in the future. There is no rush to fly off the a tertiary center as soon as you are diagnosed, but you want someone caring for you who has seen a lot of CLL if you need to consider treatment options down the line, and it is better to have a relationship with that doctor well in advance. This is a great place for help CLLtopics is an another amazing site. Let me know how I can help. We are all in this together. Stay strong. , 58 yr family doc & father of 4, dx 9/05 del 11q unmutated, CD38+, ITP 9/06 failed steroids, IVIG , Rituxan and splenectomy controlled w cyclosporin A & Rituxan combo. RIC MUD HSCT July 1/08 was CR w BMB MRD neg. - lost graft w growing nodes at 6 months 2.8% BM involvement and ITP again at 13 months, CLL is getting worse but ITP still controlled w IVIG see http://bkoffman.blogspot.com/ Quote Link to comment Share on other sites More sharing options...
Guest guest Posted April 12, 2010 Report Share Posted April 12, 2010 Stacey - Be sure to go to lymphoma.org/booklets and order the booklet on CLL/SLL. It is free, or you can read it on line. Don't try to understand everything at once. You probably won't need a lot of the information for a while, if ever, but it is helpful to have a handy guide to CLL both to help understand posts here and for future reference. Pat Quote Link to comment Share on other sites More sharing options...
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