Re: irregular periods

[Guest guest]

Hi Jackie

It is my husband, Rich, who has cml, so obviously no problems with

periods...... however, we know many female cml'ers and a great

number of them report period changes... either stopping altogether

or getting much heavier and more frequent.

God bless,

Annette

--- In , " Jackie Petropoulos " <blueshar@b...>

wrote:

>

> Hi everyone,

>

> I was wondering if any of you had noticed a change in your periods

since having CML or taking Glivec?

>

> Twice now I have finished a period and then a week later I will

start spotting again, the time before it went on for 11 days (after

the period had finished) and in the end my GP gave some pills to

stop the bleeding. I have had the same thing again.

>

> Also I have noticed that my periods have been unusually drawn out

and quite heavy.

> Jackie

>

>

>

[Guest guest]

Hi Jackie,

I have had some unusual times but I also had some irregular issues prior to

and knew mine were caused by stress. Obviously the first few years after dx

was pretty stressful and adding other events that took place in my life I

kind of just speculated what the problem was. Having it twice a month and

for longer periods.

I am only 40 year sold dx at 35 but I swear I have started menopause and I

also believe it's due to the year of interferon & ARC as well as Gleevec.

Last year I told my Onc all I was going through and he ran some test on my

hormone levels and they came back fine?

Why then for the last 4 years have I endured severe night sweats the week or

so prior to my menstrual cycle beginning? Maybe this is pre menopausal

symptoms?

As for yourself you may want to at-least evaluate your current stress level

To see if that could be it.

I know my OBGYN gave me birth control to get me back to normal when this

very same thing occurred.

ez

Message: 1

Date: Fri, 13 Jan 2006 13:58:07 +1100

From: " Jackie Petropoulos " <blueshar@...>

Subject: irregular periods

Hi everyone,

I was wondering if any of you had noticed a change in your periods since

having CML or taking Glivec?

Twice now I have finished a period and then a week later I will start

spotting again, the time before it went on for 11 days (after the period had

finished) and in the end my GP gave some pills to stop the bleeding. I have

had the same thing again.

Also I have noticed that my periods have been unusually drawn out and quite

heavy. Jackie

[Guest guest]

>> Last year I told my Onc all I was going through and he ran some

test on my

> hormone levels and they came back fine?

> Why then for the last 4 years have I endured severe night sweats

the week or

> so prior to my menstrual cycle beginning? Maybe this is pre

menopausal

> symptoms?

__________________________________________________________

Hi ,

I also get night sweats a few days before my period and I'm only 35

(dx at 31) so I highly doubt that I'm anywhere near menopause (also

I'm very regular which I don't think I would be, if I was near

menopause). I can time when my period is going to start just by the

night sweats.

During the first year or so of Gleevec, my cycle changed from being

every 28 days to every 21-23 days and were extremely heavy but then

it went back to normal again.

No one has been able to concretely associate Gleevec with hormone

levels (not that I've seen in any medical journals anyway) but that

doesn't mean that a correlation doesn't exist. I suspect that it

does since many women have complained about period issues over the

years.

Take care,

Tracey

[Guest guest]

> >> Last year I told my Onc all I was going through and he ran some

> test on my

> > hormone levels and they came back fine?

> > Why then for the last 4 years have I endured severe night sweats

> the week or

> > so prior to my menstrual cycle beginning? Maybe this is pre

> menopausal

> > symptoms?

> __________________________________________________________

>

> Hi ,

>

> I also get night sweats a few days before my period and I'm only 35

> (dx at 31) so I highly doubt that I'm anywhere near menopause (also

> I'm very regular which I don't think I would be, if I was near

> menopause). I can time when my period is going to start just by the

> night sweats.

>

> During the first year or so of Gleevec, my cycle changed from being

> every 28 days to every 21-23 days and were extremely heavy but then

> it went back to normal again.

>

> No one has been able to concretely associate Gleevec with hormone

> levels (not that I've seen in any medical journals anyway) but that

> doesn't mean that a correlation doesn't exist. I suspect that it

> does since many women have complained about period issues over the

> years.

>

> Take care,

> Tracey

>

Hi Ladies,

I am new to this site and I am still working my way around on it,

through it and in it but i noticed your posting about irregular

periods. I was dx in aug. 2005 and I am 36 years old and I have

noticed my periods changing alot over the last five months. they are

much heavier, last longer than my " normal " and quite honestly I can't

keepup with it sometimes and this last month's came a week early. My

oncology dr. has referred me to an OB/GYN to have my ovaries checked.

I think it has to do with the medicine, gleevec becasue prior to

knowing I have CML my periods were different and gleevec is the only

new thing or drug I take.

have dr. ever talked to you about a hysterectomy? not that i want one.

I would almost just deal with my period for now. I haven't had any

night sweats etc.

well let me know if you have any advice or " magic " answers. thanks,

kelly

[Guest guest]

I guess mine did change now that I think on it. I'm glad to read that

someone elses went from a 28 day cycle to a 21 and got heavier.Mine

did also. It'd be interesting to find out why. I got cramps off and

on too once I started the gleevce and I hadn't ever had them before.

Now I'm waiting for it to start up again after the baby and it

hasen't. That has me alittle worried but I've heard that if your

breastfeeding sometimes you won't have one...gah! This is the first

full month not feeding her that way so maybe I'll get one in

Feb...Strange.

Emy G

[Guest guest]

In a message dated 1/28/2006 5:54:48 A.M. Eastern Standard Time,

anninflux@... writes:

I got cramps off and

on too once I started the gleevce and I hadn't ever had them before

I too had irregular periods at the onset of CML. That is what led me to

diagnosis, I went to my OB GYN and she's the one who discovered my cancer. I

also

started to get several pre-cancerous cysts or whatever that had to be

removed. Found one in my breast too, and that all took place within the first

two

years of Gleevec treatment, or maybe it's just the CML.

Anyway, it is interesting that you say you had strange cramping in the

beginning of Gleevec treatment. My very first day of dosing I had excruciating

cramps and bleeding, and it was not menstruation. I panicked and called the

hospital. It happened three times - each occurring once a year, and so bad that

I

was rushed to the hospital emergency room and they could find no reason. I

guess some people have strange reactions to Gleevec, and no ones knows why.

It is curious that once in a while, if I stop Gleevec for a few days and start

up again, I get a pinkish discharge for a day, and then it stops. So it does

create internal bleeding and cramping for me - but only sometimes. Strange,

huh? - Lynne A.