Guest guest Posted June 23, 2005 Report Share Posted June 23, 2005 At 07:32 PM 6/23/05 +0000, you wrote: >Hi all, >I received my 1st pcr results on my visit to the Dr. today. >The test read No BCR/ABL mRNA transcripts were detected.(Normalized >ratio = 0) My Dr. is pleased. He said I am at a molecular remission. I >am very happy. I hope this is right. >Joan P. in ville,Fl >dx'd 7/03 >Gleevec 400 mg 8/03 >Zavie's #662 Great report card Joan!! In case you are not familiar with all the terms.....this is what people call PCRU ( PCR Undetectable) Congrats, C. Quote Link to comment Share on other sites More sharing options...
Guest guest Posted June 24, 2005 Report Share Posted June 24, 2005 Great results! May there be many more zeroes in your life. Adrienne cellphonejoan <joanfporter@...> wrote: Hi all, I received my 1st pcr results on my visit to the Dr. today. The test read No BCR/ABL mRNA transcripts were detected.(Normalized ratio = 0) My Dr. is pleased. He said I am at a molecular remission. I am very happy. I hope this is right. Joan P. in ville,Fl dx'd 7/03 Gleevec 400 mg 8/03 Zavie's #662 --------------------------------- Quote Link to comment Share on other sites More sharing options...
Guest guest Posted January 17, 2006 Report Share Posted January 17, 2006 Hi all, I got my results today from my last pcr test last week. I am up from a very low level in September to 6.98. I am upset to say to least. My oncologist is sending me to Mayo here in ville. He made mention going to Moffitt, but then said Mayo was his choice. Of course I can go where I want, but I want to make the right decision. I have been on 400 mg since dx'd in 7/03. He upped me to 800mg today. I think I am going to split it taking half in the am and pm. Any feedback from anyone on 800mg. Thanks, Joan Porter Dx'd 7/03 Gleevec 400 mg Pcr 0 5/05 Zavie #662 Quote Link to comment Share on other sites More sharing options...
Guest guest Posted January 17, 2006 Report Share Posted January 17, 2006 At 02:49 AM 1/17/06 +0000, you wrote: > I have been on 400 >mg since dx'd in 7/03. He upped me to 800mg today. I think I am going >to split it taking half in the am and pm. Any feedback from anyone on >800mg. Hi Joan, yes, definitely split the dose........ I was taking 400mg at lunch (single pill) and 400mg at dinner.......I have just switched to a BMS trial. Some people notice the side effects much more when doubling the dose, but others do not. All the same rules apply.......just twice a day, which is a bit of a nuisance. With the increase in your PCR, which could be an error and should be retested soon.. maybe in a month or so...........I would also ask about getting mutation testing. If you have developed a mutation, it helps to know which one....because it can make a difference for treatment. Some mutations do fine with just a dose increase, and others do not.......better to know than just experiment. There are many new options out there now also....but good to get under the care of a cml specialist. C. Quote Link to comment Share on other sites More sharing options...
Guest guest Posted January 17, 2006 Report Share Posted January 17, 2006 Upping the dose worked for me. I'm alittle bigger person and the 400mg just wasen't getting me into compleat remission... like you it would go up and down. When it was increased to 600mg I immediatly hit remission. I hope for the best for you and yeah... splitting the dose works. I am horrably forgettful so I don't personaly but I've been told I could if I wanted to. *hugs* Emy G --- In , " cellphonejoan " <joanfporter@c...> wrote: > > Hi all, > I got my results today from my last pcr test last week. I am up from a > very low level in September to 6.98. I am upset to say to least. My > oncologist is sending me to Mayo here in ville. He made mention > going to Moffitt, but then said Mayo was his choice. Of course I can go > where I want, but I want to make the right decision. I have been on 400 > mg since dx'd in 7/03. He upped me to 800mg today. I think I am going > to split it taking half in the am and pm. Any feedback from anyone on > 800mg. > Thanks, > Joan Porter > Dx'd 7/03 > Gleevec 400 mg > Pcr 0 5/05 > Zavie #662 > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted January 17, 2006 Report Share Posted January 17, 2006 > > > > Hi all, > > I got my results today from my last pcr test last week. I am up > from a > > very low level in September to 6.98. I am upset to say to least. > My > > oncologist is sending me to Mayo here in ville. He made > mention > > going to Moffitt, but then said Mayo was his choice. Of course I > can go > > where I want, but I want to make the right decision. I have been > on 400 > > mg since dx'd in 7/03. He upped me to 800mg today. I think I am > going > > to split it taking half in the am and pm. Any feedback from anyone > on > > 800mg. > > Thanks, > > Joan Porter > > Dx'd 7/03 > > Gleevec 400 mg > > Pcr 0 5/05 > > Zavie #662 > > > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted September 8, 2007 Report Share Posted September 8, 2007 Zavie: I have a question for you. I am still pretty new to this CML business, having only be Dx'd 1 March 07. A response you left a day or so ago stating once in remission you will not come out. Is this so? Wow!! I did not know this. Of course, I realize this means staying on my meds. Just curious on this one. Cheers, Chris Dx 1 March 07 400Mg Gleevec per day ************************************** See what's new at http://www.aol.com Quote Link to comment Share on other sites More sharing options...
Guest guest Posted September 8, 2007 Report Share Posted September 8, 2007 Hi That’s what the clinical trials have shown. Once you achieve a 3 log reduction, or better, there is little or no chance that you will relapse. So far this has been holding up. There is now 7 years of data to confirm this. We still need to take the Gleevec daily. Zavie Zavie (age 69) 67 Shoreham Avenue Ottawa, Canada, K2G 3X3 dxd AUG/99 INF OCT/99 to FEB/00, CHF No meds FEB/00 to JAN/01 Gleevec since MAR/27/01 (400 mg) CCR SEP/01. #102 in Zero Club 2.8 log reduction Sep/05 3.0 log reduction Jan/06 2.9 log reduction Feb/07 3.2 log reduction Jun/07 e-mail: zmiller@... Tel: 613-726-1117 Fax: 309-296-0807 Cell: 613-202-0204 ID: zaviem _____ From: [mailto: ] On Behalf Of letitbe@... Sent: September 8, 2007 9:10 AM Subject: Re: [ ] PCR Results Zavie: I have a question for you. I am still pretty new to this CML business, having only be Dx'd 1 March 07. A response you left a day or so ago stating once in remission you will not come out. Is this so? Wow!! I did not know this. Of course, I realize this means staying on my meds. Just curious on this one. Cheers, Chris Dx 1 March 07 400Mg Gleevec per day ************************************** See what's new at http://www.aol. <http://www.aol.com> com Quote Link to comment Share on other sites More sharing options...
Guest guest Posted September 8, 2007 Report Share Posted September 8, 2007 Thanks Zavie!! Wow, that really gives me something to look forward to. I can now honestly say after being a CML patient for 6 months now, CML is now just a part of me and not what I am about. I was worried I would never get there, but am good with my life and would not trade it for anything! Just 3-4 months ago, I did not want to be me. It still is hard for me to believe this is me reality. I guess that is a good thing, I am not all that bothered with it, now! Chris ************************************** See what's new at http://www.aol.com Quote Link to comment Share on other sites More sharing options...
Guest guest Posted September 9, 2007 Report Share Posted September 9, 2007 Hi Chris: It makes me so happy to hear you say this - huge progress! My husband, , is pretty much at the same point...he was diagnosed over a year ago, but we had a shaky road, and after developing liver intolerance with Gleevec, is now coming up on month 3 of Sprycel....took almost 2 months to churn through all the side affects, but the last 4 weeks or so have evened out. I think, if I remember right, you and I shared some emails about no longer being able to drink beer and be the life of the party..? Was that you? Is so, so glad to hear of your progress..., too, has embraced the fact that bed time is no later than 10Pm these days, and a beer here and there is so much more savored now! Thanks for sharing, Cervera (wife of Cervera) >From: letitbe@... >Reply- > >Subject: Re: [ ] PCR Results >Date: Sat, 8 Sep 2007 17:47:10 EDT > >Thanks Zavie!! Wow, that really gives me something to look forward to. >I >can now honestly say after being a CML patient for 6 months now, CML is >now >just a part of me and not what I am about. I was worried I would never >get >there, but am good with my life and would not trade it for anything! Just >3-4 >months ago, I did not want to be me. It still is hard for me to believe >this >is me reality. I guess that is a good thing, I am not all that bothered >with it, now! > >Chris > > > >************************************** See what's new at http://www.aol.com > > > Quote Link to comment Share on other sites More sharing options...
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