immunoglobulin levels

[Guest guest]

Hi, I will also be interested to read Dr. Furman's comments on this because it

comes up a lot.

I would be surprised if low Ig would cause muscle weakness or directly cause

inflammation. I think the issue with low Ig is increased risk of infection?

(Est. Normal Range: 620 - 1400 mg/dl)

I think the common treatment for PR would be prednisone - but I don't know how

having CLL might alter how this is treated. I think PR presents as pain -

generalized or in many parts of the body as a consequence of inflammation.

Hope you get good answers to your questions soon. I would consult my oncologist

to see how much of this coud be related to CLL and could be addressed

potentially with treatment of CLL.

Karl

>

> I am wondering about immunoglobulin deficiency. At what point will the onc.

consider giving Ivig? My IgG level is 453. I am having trouble with weak

gluteal muscles, inflammed eyes, skin & colon, all of which makes me doubley

fatigued. I was put on Medrol 8mg and have reduced it to 2mgs per day. My Rheum.

thinks I have polymyalsia rheumatica and my Derm. thinks I have excema (said

that there is a lot of that around lately)

>

> Would appreciate any thoughts on this.

>

[Guest guest]

Went in to pick up my orders for the Ivig, my Onc. allowed me an informal chat.

Because I had read that cancers/leukemia " can " precipitate what is called

polymyositis (weak proximal muscles - gluteal and shoulder muscles) he said that

at times it can but not always. He did order the Ivig because I was having a

lot of infections. He seems to trust me when I ask for something and seems quite

familiar with cll/sll which is a lot more than what I have read on other forums.

He is now asking for my records from my rheum whenever I go and have tests done

there. However, I do not test out as having any automimmune problems. One thing

I have been concerned with is communication between Drs. and now at least I have

a beginning.