Guest guest Posted March 13, 2010 Report Share Posted March 13, 2010 : I couldnt agree more. I am not visible on the site but read it daily. The number of irrelevant postings has led me to read your postings and Dr. Furman's only. My computer is jammed with messages unopened from this web site .. If anyone is trying to lead a health lifestyle, which includes exercise or walking, time for friendships, time to purchase and eat healthy foods, keep up with their mail and other e-mail, and other normal life activities, they simply cannot spend valuable time going thru messages on this site that have nothing to do with offering the group assistance. Topics that have benefited me are: treatment choices, medical education in all areas concerning Cll, locations of medical centers dealing with Cll, physicians on the cutting edge of clinical trials and the sharing of their knowledge with patients, information relating to the advancement of research, names of drugs used in the past, present and future, their pros and cons, including their side effects, questions as to what is to be expected with various chemo regimines such as side effects, dosages, and other such items that refer only to Cll. It may take some soul searching, however before someone makes a post, serious discernment must be made as to whether the post meets the criteria of the rules for this site. Correspondence meant for an individual in particular should not be open to the group, rather contact the person via their email address. , I suggest you read new topics.After 2 responses, you can decide on whether or not that topic will be closed to future comments. .There are rules established for all . You can remind everyone of the rules every week by publishing the rules on this site. Pherhaps you should define the criteria. I for one have been considering resigning from theis site because of too many messages that are irrelevant to its goals. Marilyn Barbera. Quote Link to comment Share on other sites More sharing options...
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