Re: !!!! -

[Guest guest]

--Would it be at all useful to give one or two examples of what constitutes "serious medical questions and situations" and one or two examples of what you don't want on the site? I know you've done this before, but I get the feeling that some people are not altogether clear about what you mean, or think you don't mean *them*. Witness the fact that you seem to have to repeat your plea so often!

FOLKS - STEPHANIE ASKS FOR ME TO DEFINE "SERIOUS MEDICAL QUESTION OR SITUATION", OR WHAT IS NOT IN THAT CATEGORY. I WILL TRY TO COMPLY:

THE FOLLOWING IS IN THE FIRST CATEGORY:

My oncologist informed me this week that my immunoglobulins are "mildly low." She doesn't think I need to do anything about it at this time, but to let her know if I have recurring infections (sinus, bronchitis, etc.), at which time she'll recommend beginning IV gammaglobulin treatment, which generally becomes a "life-long monthly infusion," once I start. I dread the thought of having an infusion every month for the remainder of my life and am wondering if anyone is aware of an alternative procedure for increasing one's immunoglobulins. Any suggestions would be welcomed. [i'm 63, have had CLL for 10 years, am refractory to F and R and just finished two cycles of bendamustine to clear up adenopathy in my neck. Other than the low immunoglobulins, all other bloodwork is within normal ranges.]

THE FOLLOWING IS WORTH TWO OR THREE POSTS BUT NOT 25 POSTINGS, PARTICULARLY INDIVIDUALS DEBATING WITH EACH OTHER. JUST TAKE IT OFF THE LIST, WE DO NOT ALL NEED TO SEE 25 POSTINGS ON THESE ISSUES:

Too numerous to post, but.......: The endless discussion about drug costs, traditional Chinese medicine............

FOLKS, I FEEL STRONGLY ABOUT THIS. WE HAVE A GREAT GROUP WITH MANY KNOWLEDGEABLE PEOPLE WHO CAN HELP AND MANY PEOPLE WHO ARE IN NEED OF INFORMATION. THEY DO NOT WANY TO SEE 20-30 UNINTERESTING POSTINGS EVERY DAY.

THANKS FOR YOUR HELP.

JOHN