Guest guest Posted December 20, 2004 Report Share Posted December 20, 2004 Hi group members - a cry for help form your moderator..... I think I posted this once before, but I have now seen Dr. Kanti Rai and Dr. Mort , both, and they confirmed my view..... My CLL has been in nice remission for going on five years. Plus, there are now so many choices for dealing with relapsed CLL that this situation was not really worrying me. What had become the major and dominant problem is the AIHA I developed this summer (always on the wrong side of the stats, 15-20% only). It was fixed with high dose Prednisone and Rituxan, but there it hangs over my head, waiting to come back..... All my docs agree that the AIHA is what I need to worry about, not the CLL. Strange turn of events, no? And, as for AIHA, nobody knows what causes it, the fixes are few, and it is totally unpredictable. The last time I mentioned this several of you were kind to post your experiences, which were generally positive. Although I'm still very much involved in starting the CIG group, I need to begin to think about AIHA. Any thoughts would be much welcome. PS: Please keep bringing us people to sign up for CIG. We're up to 130, not enough. Quote Link to comment Share on other sites More sharing options...
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