Re: Re Proprolactic medicins post RF

May 20, 2010

Nice to meet u JB I just wanted to say I am looking to meet people in New Jersey

to converse with about CLL, so as I may not know all the rules for this group I

wanted to say hello. I have what u did call CLL/SLL or what ever it is for lack

of another term, I have it, so any help in joining a new jersey group would be

greatly appreciated, I have no issues with anyone contacting me on this subject

or any meet-ups even if just a social gathering for support of each other,

thanks for reading, God Bless,

>

> I know Dr. Furman has weighed in on this topic but I just wanted to

> say my oncologist Dr Strair agrees with him. I am on prophylactic

> meds every day and he says I will continue until my counts improve. I

> can't take bactrim, it seems I had a reaction to that when I was in

> the hospital for electrolyte imbalance so I take mepron and acyclovir

> and fluconazol.

> I had dental surgery so I have to take amoxicillin 4 x 500 mg before

> surgery and three times a day for the week after the surgery. This is

> mostly because I still have my port.

> My doctor is very cautious. I completed four rounds of RF in March

> and now I have to see him in two months instead of the usual three

> months. I don't mind because he has my best interest in mind.

> Also wanted me to introduce myself to the group although I note

> that most of you know me from ACOR and the CLL forum. I live in New

> Jersey, I was diagnosed with possible b cell lymphoma in November 2003

> which was changed to CLL in January 2004 although Dr. Castro

> my second opinion doctor calls it CLL/SLL my doctor doesn't, but that

> is semantics. I was watch and wait until November 2007 and started

> treatment because of enlarged lymph nodes so bad that they thought I

> had breast cancer! They went down almost immediately after treatment

> and have not yet returned so my doctor says I am in remission although

> I have not yet had another ct/pt scan because there was some issues

> with the insurance, which has been resolved. I am starting a self

> help support group in central New Jersey in the fall.

> Jeannette Brown

>

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