Re: CLL & Compression Fracture Advice Please

[Guest guest]

Hi Alana,

I'm so sorry you are going through all of this. Back pain is the worse. I hurt

my back awhile back and my oncologist had me have a bone scan because I guess

that CLL can go into the spine. It is usually, as I understand, the lymphoma

that travels to the other organs. CLL stays mostly in the blood and the bone

marrow. As far as the accident causing it to go there, I think that can happen

as well. I had wisdom teeth taken out before all of my stuff was dx and it

seemed to make it come to a peak. My jaw broke and the area took the longest

time healing up.

I hope you get answers to all of your questions from someone who knows more than

I do. You take care and I hope you heal up soon.

Lori

CLL & Compression Fracture Advice Please

Hello to the Doctors and Anyone Else; Advice Please

I have been reading the list, and I received a phone call from my family

doctor last night that has me posting a potentially serious question for

me. I would appreciate any advice from anyone.

Last December I sprained my ankle, which resulted in my having to use

crutches. We came home from the hospital and I was walking with the

crutches and I flipped up in the air and fell really hard on my back in the

house.

I was taken to the hospital by ambulance, and was there for almost a

month. Since then I have been home in a hospital bed. I can not sit up at

computer for very long to do research, so am hoping someone will assist me.

A physical therapist has had me exercise my arms and legs.

I went for an Xray last week of the T9- T10 area of spine. My family

doctor called me last night and told me my compression fracture is

worse.(Six months later and it is worse)!

He said the compression is now 95%. I am waiting for his office to fax me

the Xray and bone scan so I can compare results from December to now.

Perhaps important to note is I have not had chemotherapy yet.

My doctor told me last night that he thinks the CLL went into my spine at

the T10 location. I told him I have never heard of CLL migrating to the

spine, nor it going in the one area where I took a hard fall.

Has anyone ever heard of CLL going into the spine?

Is there evidence to support that this can occur even if it is rare?

Has anyone ever heard of someone getting a compression fracture and

instead of it getting better, it gets worse so CLL is considered the

culprit?

I am to have an MRI to my spine.

Then if it shows that it is CLL, they want to do spot radiation on the

spine. An acquaintance M.D. told my sister that spot radiation to the

spine could cause paralyses.

Needless to say, I am beside myself at the moment, and any input as to

whether CLL can go to the spine, or can after a compression fracture, or

because of a compression fracture, or they both happened independently but

both can exist, would help me tremendously.

If anyone has research they can send me I would also appreciate that as I

can not sit for long periods of time.

I was also told if it is not from CLL then all he could do for me is give

me more pain medication. I guess the last six months in bed is only

indicative of the time I am supposed to spend in bed if I just have a

compression fracture and it is not from CLL.

There is no way I can get to a CLL Specialist unless I were taken by

ambulance, because of my back.

The big question is can CLL go into the spine?

Can this, does this really happen to some of us with CLL?

You are a wonderful group, and when this dilemma was presented to me last

night, I felt grateful that there is this list, and people who are willing

to assist.

I also wish there were CLL specialists we could send an email to if we

are presented with what seems rare or not factual to CLL, so we could ask

them, versus relying on the local oncologist only.

Please answer on-line or privately.

Thank you,

Alana

Alana CE

everll@...

EarthLink Revolves Around You.

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[Guest guest]

I think the MRI should be very informative

For CLL to " go to the spine " , the inference is that it is doing something

physical there, such as, perhaps, enlarging a lymph node in the area (a sort of

SLL thing). Some doctors believe that a CT is better at showing up lymph nodes,

and there is now a procedure which actually combines a CT and an MRI.

If CLL remains CLL, and manifests itself in " bad blood " , anemia, etc. it is

hard to conceive how it could affect the spine, or a compressed disk.

But I have heard of CLL morphing into other things and causing other kinds of

damage.

Kurt, any thoughts on this one?