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Re: Light headedness

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At 07:44 PM 1/3/06 +0000, you wrote:

>Hi all -- I've developed an on/off symptom of feeling rather light

>headed -- bordering on dizzy.

Hi Kathy,

On Gleevec (I am now on BMS x 7 weeks), I did have an occasional episode of

dizziness and know others who have as well. I attributed it to some

edema....I know I had some edema in the 'head' as I had some R ear

congestion and when bothersome I would take a day or two of diazide

(diuretic) and it helped. Of course it could also be related to low blood

pressure and lack of fluid?? Also at the same time I would sometimes have

those funny eye symptoms.....like vague little rainbows or something. I

found that if I rested for 10-15 minutes usually the symptoms would go

away. I think this goes into the basket of the many little not well

understood stuff that can go along with taking Gleevec??

Next week I return to OHSU for my 2 month BMS check-up.....and maybe I will

post about my experience then. I have posted some on Jerry's BMS Discussion

list.

Take care,

C.

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  • 3 years later...

it is better that he takes it every night .should find something to

help with the sleep.some people benefit from magnesium before the

sleep.400 mg .

>

> Recently I wrote to the group regarding my son with MS and has

been

> on LDN for less than 3 months. He was complaining of light

headedness

> recently and I asked about that to you all. Got some wonderful

> responses and Greg I have to thank you for suggestions especially.

He

> had some blood work done. You suggested Thyroid and Blood Sugar.

I'm

> not sure she checked his blood sugar but the Thyroid and said his

> should have been around 17-18 but it came back on 01. Put him on

> Thyroid med yesterday. This is totally new to me because we've

never

> had any Thyroid problems in the family so I'm ignorant about it.

> So I have a lot of reasearch ahead of me now.

>

> Also, in the beginning when he started LDN he had a few night with

> trouble sleeping. Got over that then started having some vivid

dreams

> (no nightmares) and got over that. He went several weeks doing

fine

> then he said about a week ago (after close to 2 months on LDN)

he's

> having trouble sleeping again. Waking up several times a night. He

> took it upon himself to try a few night with taking the LDN every

> other nights and on those nights he doesn't take it he sleeps

well.

> But when he takes it he says he wakes a few times during the

night.

> Any thoughts on this. Should he continue on a regular nightly

basis

> and hopefully the sleep problems will pass. Thanks to all of you

> wonderful people for helping to educate me. Since my son has

severe

> cognitive problems he doesn't have what it takes to read this

groups

> messages so I have to keep on the ball and translate to him. He

has

> Bipolar also. I'm so glad I found you all. Gloria

>

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