Guest guest Posted January 19, 2010 Report Share Posted January 19, 2010 I know about LRF and LLS - I'm wondering if there are other research facilities out there that deserve out consideration.On Tue, Jan 19, 2010 at 11:19 PM, Ellen Diamond <e.diamond@...> wrote: Pat, this and more is available to everyone -- Just Google LLS. I used to volunteer with this organization -- they're legit and do good work. Why not Google LRF and post that info? This took me about 1 minute to find. -Ellen Financial Information The Leukemia & Lymphoma Society (LLS) is committed to curing leukemia, lymphoma and myeloma, and helping patients and their families. The support you provide is invested wisely. In fiscal year 2008 $71.4 million was invested, including funding for 129 new grants to researchers in academic institutions and $4 million in contracts through the LLS Therapy Acceleration Program. As of June 2008, LLS was supporting 388 research projects and 9 research contracts in the U.S., Canada, and 14 other countries. LLS also provides financial assistance to patients; sponsors scientific conferences around the country; produces educational materials and videos; and runs dozens of Family Support Groups nationwide. Because we receive no federal funding, we depend on you for continued support of these needed programs. On Jan 20, 2010, at 2:01 AM, pkennedy16@... wrote: It would be nice to develop a list of reputable organizations who fund CLLaresearch including the percent of funds they receive that go to research, patient education, patient assistance, overhead, advertising, workshops,etc. If you have information on organizations with a breakdown of where their money goes please send it in. It would provide a valuable resource for all of us.Re: LLS - where does the rest of their money go?Pat LLS's low percentage of funds given for researchRegarding LLS's funding, wonder how many people are aware the LLS only allots 27.7% for research? Sure would be nice to find a way to encourage them to raise this unfortunately low percentage. Think what a huge difference that might make for all of us! Any ideas? Quote Link to comment Share on other sites More sharing options...
Guest guest Posted January 20, 2010 Report Share Posted January 20, 2010 One aspect of the LLS, which I have always found very helpful for patients is their co-payment assistance program. These monies are not spent on research, but do a tremendous amount of good for patients. > > > It would be nice to develop a list of reputable organizations who fund > > CLLaresearch including the percent of funds they receive that go to > > research, patient education, patient assistance, overhead, advertising, > > workshops,etc. If you have information on organizations with a > > breakdown of where their money goes please send it in. It would provide > > a valuable resource for all of us. > > > > Re: LLS - where does the rest of their money go? > > > > Pat > > > > LLS's low percentage of funds given for research > > > > Regarding LLS's funding, wonder how many people are aware the LLS only > > allots 27.7% for research? Sure would be nice to find a way to > > encourage them to raise this unfortunately low percentage. Think what a > > huge difference that might make for all of us! Any ideas? > > > > > > > Quote Link to comment Share on other sites More sharing options...
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