Re: Re: Constipation or something more???

[Guest guest]

Hi, Carol,

Just my two pennies...

Why not write a book, collecting all those benefits for people with DS's health?? I mean this information is not found in any book, perhaps for one issue or other, but for DS alone?? I have read several DS books, but none like this...why not expert moms chip in their experience, how to improve or enrich DS' health, besides doctor's advice or experience? You see, I have learned a great deal from this, and I do not get any information anywhere else.

Doctors really cannot speak out like this. Us, the moms and dads, can. What do you think?

Well, happy new year, lol... kk

PS I love your pictures. is fortune to have a family like yours.

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Jenn,

Poops r us :-) Got kids? Got poop.....

Sorry to hear the constipation issue has vistied your house. My first suspect would be the oatmeal and I would ditch that and use plain unflavored geletan in his bottle. Just add and shake real well to mix. The longer you let it stand, the thicker it will become. There is nothing in it to bother his digestive track.

Prune juice works by pulling moisture into the GI tract and is a good fix for many. I use a boiled down version for - simply buy a bottle of Sunmaid original prune juice with nothing added, simmer it over low heat til it's half it's volume, then add a splash of Tropicana Original OJ, or simply sqeeze some juice from an orange, into it. I think this stuff tastes great... reminds me of gingerbread, and you need less to get the desired effect.

I was listening to a tape of a DS conference and the Dr was discussing the GI tract of people with DS. Seems they have some structual problems that cause GI distress. The little villa in the intestines are shorter then normal and the well around the villa where food pools to be absorbed is also smaller. This would make it more difficult for nutrients to be digested and absorbed from the get go. Low tone also affects internal organs and it slows down perisitalis ( sp?) and sometimes things that work for the typical population - like added fibers and hard to digest bulk items- actually end up causing more problems then they solve!

has had some very serious issues GI issues, and it's GI Drs who handle it, though I ended up fixing her problems on my own, or I should say in spite of the GI drs I have run into. I really dislked them a lot and I LOVE all my Drs other wise.... I did find one who does a lot of research out of Children's that we have been seeing once a year for follow ups who seems to know more and is really into diet type issues. Most GI drs could care less what a kid eats and doesn't see any real connection there, so beware. Her card and dermatologist were much more impressed with her diet then the GI dr was!!! And I liked the ENT better for her GERD issues too... so be prepared to shop around. They will just want to put him on Miralax, or lactolouse and in many cases, this is going to casue more problems. It sure did for us.

I use the Specific Carb Diet for , and when I allow her illegal foods for long periods, she just has all sorts of problems. I am SO GLAD we are done with Christmas and all the food!!! This week has been major detox for her and getting her back on track. I also use digestive enzymes from Houston. You can buy them individually in large quanties and designed for what the child is ingesting at the moment. does have GERD, but these enzymes really help a lot and don't bother her. You can really load a constipated kid up on them and it does help to clear out the mess. Topical glutithione cream also helps to keep her regular and I think also helps her immune system some how. Another thing that can really help is homemade yogurt. Store bought and capsules just don't carry the punch that homemade does. And that alone can help some kids stay regular. Tastes great too. :-)

Could try adding olive oil to his bottle, but if he has any aspiration issues, DON'T do that.... oil in the lung is not a good thing. Just thought of one more- Magnesium! You can up a child's magnesium with supplements and Epsom Salts soaks. :-) Lots of kids with DS are low in it. It's the active ing in Milk of Magnesia which is a great laxative btw if you need one. Tummy massage gets things moving, as does, baby simply moving around. Lots of physical activity is very good for constipation.

If you would like to check out 'legal' foods for SCD and try to stick to them for a while, go here : http://www.breakingtheviciouscycle.info/

This is the glut cream I use - http://www.kirkmanlabs.com/products/antioxidant/l-glutathione/LGlutathione_Lotion_Spec226.html

I also purchase my mag supplements from Kirkman,

Enzymes from here :

http://houstonni.com/

Carol in IL Mom to seven including , 6 with TOF, AVcanal, GERD, LS, Asthma, subglottal stenosis, and DS.

My problem is not how I look. It's how you see me.

Join our Down Syndrome information group -

Down Syndrome Treatment/

Listen to oldest dd's music http://www.myspace.com/vennamusic

Constipation or something more???

Hello-

Be warned. I mention poop a lot.I have been told that people with ds have issues with this already. I'm starting to wonder if Dominic's issues as of late are constipation or something more. Dominic is 18 months now. Oh and he's hypothyroid.It seems like lately he's having issues with pooping more often that not. As in we have more hard poops than soft poops. I'm a 1st time mom so I don't really know how poop should be and if this is normal from time to time.. I do a pretty good job of keeping him hydrated. He gets juice and water ect. I offer it to him every few/couple hours since he doesn't really ask for it.. I just thing, gee, I would be thirsty so he might be too. Lately his poops have been hard little balls.The past day or so he's been more fussy than usual. Last night I gave him some prune juice and that seemed to help ( although he hates the taste ) this morning we at least had 2 little balls of poop. He gets oatmeal with every bottle ( thickened until the next feeding study ) too..So... I've been doing some research on different things. One of them being celiac disease. I hear people talking about it a lot and it could fit with his situation..As I read over these different things it's hard to determine ( I'm not really trying to self diagnose ) if this is simple constipation or something more. Experiance beats what you read.I can't get in to see my ped until January 18th though we are off to the children's hospital before then and I will certainly bring it up.Gah, who handles poop?? Anway- I'm sure that other families have been through this before. Thoughts??

Cross posted everywhere!! !!

Jenn

Dominic has a website!!!

http://www.babysite s.com/sites/ dominickoczan

Southbendforum. com

"Sticking it to the man since 2003"

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[Guest guest]

There was such a book written- Circle of Friends . :-) It was compliation of many mom's and was done as a way to promote TNI. It was loaded with goodies. I don't think you can get any more copies.

There was talk of doing another, but it's gets kind of sticky with legal issues and such. Lawyers are such fun- NOT!

Nothing is as easy as it seems and there is even some risk to posting information with out some disclaimers- which we have at the bottom of each post. Some parents will blindly follow what ever anyone says and cause problems with their child, then look for someone to blame it on and sue. I think a web site would be good. But the idea here was to try and compile all this info in the files so it make it easy to go and find the info.

Thanks for the compliments on the pictures. Actually the family is lucky to have HER :-)

Hope you all had a Merry Christmas and blessing for the New Year.

Carol in IL Mom to seven including , 6 with TOF, AVcanal, GERD, LS, Asthma, subglottal stenosis, and DS.My problem is not how I look. It's how you see me.

Join our Down Syndrome information group -

Down Syndrome Treatment/

Listen to oldest dd's music http://www.myspace.com/vennamusic

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